Minnesota Governor's Coun…velopmental Disabilities/Minnesota Governor's Council on Developmental Disabilities - Disc 1.iso/mac/TEXT/GT006.TXT

Text File | 1997-07-08 | 305KB | 3,282 lines

INFORMATION EXCHANGE
Published Monthly by the Metropolitan Region XI Developmental Disabilities Programs of the Metropolitan Heath Board.

Metropolitan Council  300 Metro Square Building  St. Paul, Minnesota  55101
Toni Lippert:  291-6364
Vol. 7.  No. 1.
January 1982
METRO DD PROGRAM NOTES

Grant Announcement

Information about The McKnight Foundation Grants can be found in the State Supplement (blue section.)

Health Board Seeks Members

The Metropolitan Council is seekinq nominations for three Health Board members: the member from a mental health or social services specialty to comp1ete a term ending July 1983; one member from District 3 (eastern St. Paul) for a term ending July 1984; and one member from any of Districts 4, (northern Ramsey County), District 5 (northeast Minneapolis) District 11 (Edina and second-ring suburbs west of Minneapolis) or District 13 (central Anoka County) to complete a term ending July 19s33.  The 30-member Health Board and the Council review health projects, certificates of need for intensive Care facilities for the mentally retarded and other DD proposals for compatibility with the reqional health plan and other regional glans and pro-trams. Deadline is Jan. 20.  Call Rosemarie Johnson (291-6391) for applications.

Metropolitan Area residents concerned about the interests of developmentally disabled persons are urged to apply.

PUBLICATIONS AND BOOKS

Single copies of the revised 4th edition of Epilepsy: A Handbook for Physicians, a comprehensive, multi-disciplinary approach to the problem of seizures, edited by Robert J. Gunmit, M.D. are available free to physicians and others involved in treatment of people with epilepsy. Multiple copies are available for $5 each. Contact the Comprehensive Epilepsy Program, 2829 University AV. SE., #318, University of Minnesota, MinneaDolis, MN 55414 (612)376503'.

Group Homes and Property Values: A Second Look, by Christopher Wagner and Christine Mitchell, explores the effect, or rather the lack of effect, of group homes on neighborhood values in Franklin County, Ohio.  Available at no charge from Metropolitan Human Service Commission, 360 S. Third St., Suite 305, Columbus, OH 43215.

A Parents' Notebook has been developed by the Education DeDartment of the State of New York to assist Darents in maintaining relevant information on their developmental and educational histories. Photocopies of the notebook are available for $1.75 from The Association for the Severely Handicapped, 7010 Roosevelt Way, NE., Seattle, WA 98115.

Nutritional Care of the Young Child with Cerebral Palsy presents descriptions of some problems faced by parents in the feeding of the cerebral palsied children. Available for $2.50 from United Cerebral Palsy Association, Inc., 66 E. 34th St., New York, NY 10016.
 PUBLICATIONS AND BOOKS (Continued)

Accessible Fashions, A 24-page report from the National Access Center, reviews fashion from the perspective of disabled consumers.  It provides a comprehensive list of publications for people who want to learn how to make or alter clothes at home.  Written by Angela Thompson and Susan Voorhees, the book is available for $1 from National Access Center, 1419 27th St., NW., Washington D.C. 20007.

Making Aids for Disabled Living, by Stuart E. Grainger, is an ingenious book of patterns for handmade independent living aids for disabled people that are practical and eyepleasing. Each pattern is clearly diaqrammed and can be followed quite easily.  Available from Batsford, North Pomfret, VT 05053. Cost $13.95.

Planninq Barrier-Free Libraries developed by the National Library for the Blind and Physically Handicapped (NLS) of the Library of Congress, is a quide to the design and construction of a functional, barrier-free library for blind and physically handicapped people. It also discusses planning prerequisites, architect selection and includes plans for reading rooms, reception areas, etc. Write: NLS, The Library of Congress, Washington D.C. 20542.

ACCESSIBLE HOUSING

An affordable alternative to the high cost of traditional rental or ownership housing is offered by the Selby/Dale Cooperative. The units are accessible to handicapped people and are Section 8 assisted. For further information, call Donna Folstad, Director of Marketing at (612)2275121, or write the Selby/Dale Cooperative, 328 W. 6th St., St. Paul, MN 55102.

FAMILY STRESS STUDY

A child with a disability can increase a family's vulnerability to stress. Parents are often anxious about the child's survival and may even feel guilty. Special care means extra work that can tie

FAMILY STRESS STUDY (continued)

a parent to home and disrupt family life. The financial burden for hospitalization, clothing and transportation can be immense. Why some families are better able to code with these problems is the subject of a study by researchers at Gillette Children's Hosoital and the University of Minnesota. The study, entitled Family Coping with Physical Handicaps is funded by the Medical Education and Research Association (MERA), the physicians association affiliated with Gillette, and the Agricultural Experiment Station at the University of Minnesota. The primary participants are families of Gillette patients.

The project is designed to find out how family stress, family resources and abilities to cope affect a child with a handicap. It has developed tests that can identify specific factors in managing stress and measuring relationships between the degree of family stress and a child's well-being. Treatment for stress could involve counseling or support therapy with hospital social workers and psychologists. People may also be referred to appropriate human service agencies. Parents could use the tests to evaluate their own level of coping and compare their situation with others in similar circumstances. Results could indicate whether or not they should seek professional help.

Hamilton McCubbin, PH.D., professor and chairman of the Family and Social Science Department at the University of Minnesota is overseeing the three-year project.

VOLUNTEERS NEEDED
The COUNT ME IN project of PACER (Parent Advocacy Coalition for Educational Rights) Center is conducting a training session on handicap awareness in the Metropolitan Area. Persons interested in learning how to re1ate inform ation about disabilities to children or in helping COUNT ME IN staff present puppet shows are invited to attend. Volunteers will be expected to attend a two-day training session to be held Jan. 27-28 at House of Hope Presbyterian Church, 797 Summit Av., St. Paul, and a one-day practice session in early February. For further information, call PACER Center at [phone].

SPECIAL PROGRAMS
Jan.2: KTCA-TV.4 p.m., "People and Causes." Association of Retarded Citizens people discussinq budget cut-backs. The show will be repeated Jan. 5 at 3 p.m. Jan. 3: WAYL radio, 6 a.m. "Community ~lose-up." Interview with oresident 20nita Soucek of the Dakota County Association for Retarded Citizens. Jan.4 . NBC-TV. "The Kid from Nowhere,"features Speci al OlymDics. Jan.7. KSTP-TV, 9 P.m. "20/20" will feature a segment on an undate on Willowbrook State Hospital, New York by Geraldo Rivera (date may change.)

ART COMPETITION
Artists are invited to enter their work in the 1982 Courage Cards competition. Courage Cards are original-art Christmas cards thath are sold nationwi de on a suggested donation basis. Funds raised from the sale of the cards support Courage Center, Golden Valley, Minnesota, a rehabilitation organization for peoole with physical disabilities and speech, hearinq and visual impai rments.

Artwork and photographs should be submitted to Courage Center by Feb. 15. Winninq entries will be reproduced as the 1982 Courage Cards collection. For more information write to Fran Bloomfield, Courage Center, 3915 Golden Valley Rd., Golden Valley, MN55422 or call [phone].

FUND-RAISING OPPORTUNITY
A letter from Eunice Kennedy Shriver says that Proctor and Gamble has agreed to donate 5ó for each coupon redeemed on its products up to a total of $500,000 to Special Olympics.

Watch for the Publishers Clearing House Sweepstakes mailing due in early January. It contains a packet of coupons from Proctor and Gamble worth approximately S4. Each coupon redeemed will bring in 5ó for Special Olympics and 54 in savings for the purchaser upon redemption. Please ask your grocery market to call its nearest Proctor and Gamble representative to receive a display. Tell the manager how important Special Olympics is to developmentally disabled people in Minnesota.

BEGINNING KARATE FOR PEOPLE WITH DISABILITIES

The Inver Hills Community College/Oneida Program is offering an introductory course in the fundamentals of Karate, including self-defense techniques, for people with physical disabilities. Classes will be held at the Louis Park Apartments, 180 Wayzata, St. Paul, Jan. 5. through Mar. 16, 1982, 6-7:50 p.m. The cost is $15 tuition for one credit. For further information, cal1 ( 612) 455-9621.


WORK SHOPS

Jan.  8, 9, 22 and 23

"Burnout in the Helpinq Professsions." Participants will discover how to identify the four stages of burnout on mind and body and explore techniques for managing stress through the application of coanitive, affective and psychomotor principles. Two semester hours of graduate level of Continuing Education credit wJJl be given. The course will be held Frida~s~ 4-9 p.m. and Saturdays 8:30 - 5 p.m. in ~om 302 at the O'Shaughnessy Education Center, Colleue of St. Thomas, St. Paul. Cost $190. For more information, call [phone].

WORKSHOPS (Continued)

Jan. 21, Jan. 28

"Math Readiness" and "Cooperative Learning Strategies in the Mainstreamed Classroom," 3:30 to 5 p.m. "Reading Readiness: and ''Positive Behavior Management in the Classroom"3:30 p.m. These courses are offered by the Washburn Child Guidance Center to classroom teachers working with special needs children in mainstreamed situations. No charge for the sessions. For more information call [phone].

Jan. 21

"Comparative Approaches to Psychotherapy." One day conference designed to examine and compare four approaches to psychotherapy in terms of their treatment goals, major assumptions and concepts and appropriateness for particular types of persons and problems. It will be held at the Earle Brown Continuing Education Center on the St. Paul campus of the University of Minnesota. For further information call Shiriey Zimmerman at (612) 37335831.

INFORMATION EXCHANGESTATE SUPPLEMENT
Developmental Disabilities Program / Dept. of Energy, Planning and Development
201 Capitol Square Bldg.  550 Cedar Street  St. Paul, Minnesota  55101
Roger Strand: 612 / 296-4018

McKNIGHT FOUNDATION ANNOUNCES PLAN FOR DEVELOPMENTAL DISABILITIES PROJECT

As a result of an eight-month review, the directors of the McKnight Foundation announced last December the establishment of a four-year, $3.5 million comprehensive plan to support a wide range of activities designed to meet the needs of Minnesota residents who have a developmental disability. In a new approach to grantmaking, the McKnight Foundation focused its attention upon the developmental disabilities field and designed a funding program intended to change and improve the and improve the human service delivery system.

The comprehensive plan consists of the following elements:

Program grants totalling $2 million between 1982 and 1985 are to develop more effective ways of meeting needs of clients who live in community-based residences and those who are participating in day and employment programs.  Grants will be awarded in response to a Request for Proposal (RFP) to be issued by the Foundation in conjunction with Walker and Associates, a human service research and evaluation firm. The firm has been selected to serve as a coordinator and evaluator of those demonstration projects and the other parts of the Foundations's pro-trams. RFP information will be available early in 1982.

Grants of $130,000 in 1982, $110,000 in 1983 and $100,000 in 1984 are to go to Legal Advocacy for Persons with Developmental Disabilities, a project of the Legal Aid Society of Minneapolis. This agency, serving as the Minnesota Developmental Disabilities Protection and Advocacy Agency, will be enabled to increase staff and provide related support costs.

McKNIGHT FOUNDATION (continued)

A grant of $322,324 annually in 1982, 1983 and 1984 to the Minnesota Developmental Disabilities Planning Program is to be used for three regranting programs. programs. First, $100,000 will be available in each of three years to support management development, organizational development and staff training of community agencies serving people with developmental disabilities. Second, $100,000 will be available in each of the three years to support innovative regional projects and development of cooperative service models in critical areas of need. Emphasis will be placed on coordinating existing resources in the areas of transportation, respite care, educational services for infants and preschool children and specialized foster care. Third, $100,000 will be available in each of the three years for small start-up grants for day and residential facilities for hard-to-place clients and for citizen advocacy programs that meet conditions regarding availability of other funding and future financing. In addition, the Developmental Disabilities Planning Program will receive $22,324 each year to offset administrative costs to manage the three programs. Requests for proposals and other program announcements will be issued in March 1982 with grant awards mace inJuly.

The directors of the McKnight Foundati on also approved a grant of $50,000 annually in 1982, 1983 and 1984 to support the work of the Office of the Court in the Welsch v. Noot Consent Decree of 1980. This approval, however, was contingent upon the determination of the Federal District Court as to whether outside private fundinq was permissible under the decree. The determination was later made by Federal District Court Judge, Earl R. Larson, that the Court Monitor's Office could not receive such outside support.

For further information, contact Russell V. Ewald, Executive Vice President
[phone].


THANK YOU, DAC's

All information in the Survey of Developmental Achievement Center (DAC's) has now been collected and fed into the computer. Interpretation of the combined data will be completed in January. The survey was a joint effort on the part of the Minnesota DAC Association, the Department of Public Welfare and the Developmental Disabilities Program Office. Most of the credit must go to the personnel in each of the DAC's who so willingly gave of their time in providing the information. There are very few among similar studies that can claim 100 percent cooperation. Thank you, DAC's!

HHS CALLS FOR CONCEPT PAPERS

Awards ranging from $50,000 to S400, 000 per year are being made available by the U.S. Department of Health and Human Services (HHS), Office of Human Development Services. Awards are to go to public and Drivate institutions for new research, evaluation, demonstration, training and technology-exchanqe and cooperative agreements directed at improved delivery of social services. Of the grants totalling S35 million, any state, Public or nonprofit organization may submit concept papers rather than formal proposal as in the past. Details on priority areas and concept paper content were announced in The Federal Register, Nov. 16, 1981.

About $7.5 million will go to areas where the Administration on Developmental Disabilities will be the lead agency. These areas are:

1. Family Centered Preventive Social Services Modalities (930,000 for six to eiqht projects.) This area is concerned with preventive social service for vulnerable populations, including developmentally disabled people, who previously have been dependent on government. Innovative approaches to enhancing the family and community capacity to help in conjunction with formal social service systems are called for. Concept papers should adapt existing models for special target groups to expand the technology to serve a broader population and address such iniatives as: use of volunteers for respite care, training of family members and informal care givers, providing linkages between informal and formal service providers, and providing in-home care treatment. 2. Improving private-public linkages and service delivery ($300,000 for three projects.) With the need to identify alternate sources of funding for human services, there has been an increased emphasis on developing linkages between the private and public sectors. Concept papers should follow orientation seen in No. 1. above 3. The placement of minority developmentally disabled children and adults in appropriate, least-restrictive settings (S300,000 for three projects.) This consideration is with hard-to-Dlace clients not covered by the child welfare system such as minority developmentally disabled children and adults. Concept papers are sought from state DD Protectio' and Advocacy agencies addressing the problem of placing minority persons in permanent and least-restrictive settings (adoptive homes and group homes).

For a copy of the program announcement, write to the Office of Program Development and Demonstration Division, Administration on Developmental Disabilities, 3194 North Bldg., Washington D.C. 20201. Note: Papers must be submitted by Jan. 15, 1982.

DEVELOPMENTAL DISABILITIES ADOPTIONS PROJECT

The North American Center on Adoption (NACA) of the Child Welfare League of America has recently released caching Out: A Resource Book for the Adoption of Children with DeveloDmental Disabilities. This volume of materials represents the culmination of experiences gained from operations in each region of the U.S. under a national significance grant from the Administration on Developmental Disabilities, U.S. Department of Health and Human Services. Limited copies are available for S5 from NACA, Child Welfare League of America, Inc., 67 Irving 2P54ace741New York, NY 10003. Phone: (212)

TWO HARBORS GROUP HOME WINS ZONING DISPUTE

The Minnesota Supreme Court recently ~etermined that the Caromin House, Inc., a ,noup home for six mentally retarded adults in Two Harbors, Minnesota, complies with local zoning ordinances for a singlefamily dwelling. The group home complied with the restrictive covenant applicable to the property permitting one dwelling and one garage on each lot. Previous permission given for the construction of the facility was found to be in keeping with public policy and that a denial of the temporary injunction was not an abuse of the trial court's discretion. It was also determined that future residents of the group home have a right to intervene in this action.

Plaintiffs (Costley et al.) had argued that Minnesota Statutes that specify that "A licensed group home for six or fewer mentally retarded persons shall be considered a single-family residential use for zoning purposes," were an arbitrary and capricious imposition of legislative will upon local-zoning matters and therefore unconstitutional as a violation of due ~rocess. In response, the Supreme Court opinion stated that, "Where the statute is unreasonable or arbitrary is a question primarily for the legislative body concerned, and unless the decision of that

ZONING DISPUTE (continued) body on that question appears to be clearly erroneous, courts will not interfere." Furthermore, "The zoning statutes guarantee that local governments cannot frustrate state and national policy of permitting mentally retarded persons to participate in normal communities." (Minnesota Supreme Court, Costley et al. vs. Caromin House, Inc., Dec. 11, 19813.

UNJUSTIFIED TERMINATION OF DISABILITY BENEFITS SUSPECTED BY MHLP

The Mental Health Law Project (MHLP) in Washington D.C., said last November that the Social Security Administration has adopted a goal of substantially reducing the number of persons who receive Social Visability Insurance and Supplemental Security Insurance (SSI) benefits. The Social Security Administration plans to review 500,000 cases by Sept. 30, 1982, to determine whether recipients continue to be disabled.

Calls to the MHLP from advocates in several states indicate that many disabled people and chronic mental patients are being dropped from disability rolls after perfunctory on-paper reviews of their files. Many of these people are then being relegated either to county or state relief rolls or to psychiatric hospital wards.

MHLP asserts that although review of the status of SSI and Social Security recipients is technically legitimate under the law, such reviews should not serve as a device to slash disability spending at the expense of people who are unable to support themselves. With the strong possiblity of generating a national coalition, MHLP will need information about the scope of the problem from advocates and others who have received an unusual number of calls from people whose benefits are being terminated. Call or write MHLP, 2021 L St., Suite 800, Washington D.C. 20036.  Phone: [phone].

DISTRICT COURT AFFIRMS DECISION ON REDUCED FUNDING OF KITTSON COUNTY DAC

A decision to reduce the number of days of service in a developmental achievement center (DAC) from five to three has been upheld in District Court. The Kittson County Welfare Board had argued that it did not have funds to pay for the DAC services and was not obligated to expend funds it did not have.

On Dec. 9, 1981, Judge John A. Spellacy of the Ninth Judicial District Court determined that, "the Commissioner's (Arthur Noot's) interpretation of Department of Public Welfare Rules 160 loaf 185 is clearly erroneous; in fact, it was mandated by the statutes..." In other words, the Commissioner's instructions to the Kittson County Welfare Board that would permit the provision of daytime activities for mentally retarded and cerebral palsied persons within the appropriations made available was upheld by the court.

Judge Spellacy continued, "To permit the servicing or host county to foist a budget deficit upon Kittson County simply because five days of DAC care is preferable to three days is both unreasonable and unaccountable. Were we faced with complete elimination of the DAC programs for aDpellants, our decision would, obviously be different. We note that all American citizens, including those physically or mentally handicapped, might well expect some changes in the services which have been, in the past, provided by governmental agencies and taken for granted. Kittson County's reaction to its impending deficit was logical and reasonable under the circumstances." (Lindstrom et al. vs. State of Minnesota, Department of Public Welfare and Kittson County Welfare Board, Minn. Ninth District Court, Dec. 9. 1981.)

INFLUENCING LEGISLATURES DO'S AND DON'TS

In a paper, "Participating in the Political Process," by E. Clarke Ross, Nov. 12, 1981, several suggestions were made that might serve as a guide to those who want to make a positive impression upon their legislators during the upcoming session of the State Legislature:
DO:
     -Familiarize yourself with the perspective of the legislators whom you wish to persuade.
     -Present information in language that legislators can understand.
     -Present an organized aDproach, the key to a consistently articulated presentation.
     -Use data and information, the keys to convincing Public policy-makers.
     -Document positions and fact.
     -Explain to public policymakers why you are interested in a particular subject. (It may be helpful to present a fact sheet that describes your organization, mission, purpose, goals, services, activities and its clientele.)
     -Know the issue and facts that support your position.
     -Make your presentation clear and brief.
     -Respect time allotments.
     -Have all relevant cost figures on hand.
     -Understand the legislative committee process.
     -Support your cause with a long-range educational campaign.

DON'T:
     -Distort information.
     -Overdo it.  Know when to stop talking.
     -Assume that a legislator has read materials you have sent.
     -Be evasive.
     -Be antagonistic.
     -Insult a legislator's intelligence or look down your nose at him or her.
     -Cry wolf.
     -Make a legislator look foolish.
     -Threaten anyone's job security.
     -Lose your temper.

Maintaining a positive attitude is the key.

Metropolitan Council DD Program 300 Metro Square Bldg., 7th & Robert St. Paul, MN 55101

MR. ROGER STRAND STATE PLAN DEV DISAB PRO 200 CAPITOL SQUARE BLDG.  ST. PAUL, MN 55101

BULK RATE U.S. POSTAGE PAID Permit No.7029 St.Paul, MN

DEC 31 1981


INFORMATION EXCHANGE

Published monthly by the Metroptilitan Region Xl Developmental Disabilities Program of the Metropolitan Health Board.

Metropolitan Council 300 Metro Square Building St. Paul, Minnesota 55101
Toni Lippert: 291-6364 Joachim Banda: 291-6365

Vol. 7,  No. 2  February 1982
METRD DD PROGRAM NOTES

DD Curriculum Library

The DD Curriculum Library is a new resource available to directors and staff who work in residential facilities, developmental achievement centers (DACs) vocational rehabilitation facilities, Headstart/Homestart, public schools and other centers servinq severely handicapped children and adults. The curriculum library is located in the DD Program offices of the Metropolitan Council, 300 Metro Square Bldg., 7th and Robert Streets, St. Paul.

Curriculum materials are available on a loan basis for three weeks if materials are requested in person. There is no charge for use of these materials. A list of the materials now available is attached to this newsletter. This service is designed to keep the DD service community informed of new approaches and techniques designed for developmentally disabled persons. It also offers Potential buyers an opportunity to preview a variety of programs prior to purchasing them.

The materials are the property of the State Developmental Disabilities Proqram Office, but circulation is the resDonsibility of the Metro DD Regional Program. These same materials will be available in every renion of the state where there is a regional DD program. Please save this list and come in to borrow the materials soon. DD secretary Marjorie Segell acts as librarian. These materials are distinct from the DD Resource Library that consists of reports, studies, Publications, etc. on DD issues and Dolicy.

DD Staff Replacement

Tom Chapel joined the staff of the Metropolitan DD Reqional Program as a research analyst on Dec. 28, 1981.  He replaces Joachim Banda who left in early October to work for Control Data Corp. Mr. Chapel is a graduate of the Hubert H. Humphrey Institute of Public Affairs and has worked for the Leqislative Auditor's Office, the Joint Religious Leqislative Council and as an intern with the State Developmental Disabilities Program Office.

One of his tasks will be to work on a regional survey of residential facility personnel to determine turnover and retention factors. Another task is to work on the statewide survey of residential and day program personnel to determine what they see as their priority training needs. Mr. Chapel will also be available to provide data information and other technical assistance to the Metropolitan Area DO community.

McKnight Request for Proposals (RFPs)

Be sure to read about the McKnight RFPs) for grants to be administered through Walker and Associates, Inc. This information is in the State Supplement of this issue.

DAC SURVEY REPORT - Metropolitan Area presentation on Tuesday, March 2, 1982.
See last pane for additional information.

METRO DO PROGRAM NOTES (Continued)

Proposal-WritingWorkshop

The Metropolitan DD Proqram is sponsoring a workshop early in March on "Sharpening Proposal-Writinq Techniques-. As another in its series of capacity building activities, the workshop is intended to--assist applicants to preparegrant applications related to the needs of developmentally disabled persons.

Presentations will focus on three aspects: reading RFPs accurately, developing clear proposal concents and improving technical aspects of writinq grant applications. Skills acquired should be useful in applyinq for governmental and private funds.

Reeistration is limited to 50 participants and there is a registration fee. Detailed information on date, time, location and fees will be sent in a brochure and registration form next week to Metropolitan Area residents who receive this newsletter.

Deinstitutional Model for Minnesota

A computer-aided policy planning model to specifically aid Minnesota in planning and budgeting for deinstitutionalization of the DD population has been completed. The model was developed by the University of Minnesota's Hubert H. Humphrey Institute of Public Affairs under a grant from the Administration for Developmental Disabilities, Department of Health and Human Services. The authors are William Copeland and Iver A. Iverson.

The model is to be used in Droviding technical assistance to Minnesota in its deinstitutionalizat on efforts. The Minnesota Model assesses the Department of Public Welfares Compliance Plan (Welsch vs. Noot) and two other strategies.  It projects caseloads, staffing, costs and reimbursement for seven years for each of the strategies. The authors recommend the specific ste to be taken to implement each plan and identify new fundinq opportunities that are now allowable usinq recently

Deinstitutional Model (Continued)

Published-Medicaid waivers. Single copies are available free of charge from this office by calling 291-6363. Ask for the Copeland-Iverson deinstitutionalization model.

BOOKS AND PUBLICATIONS

The National Association of State Mental Retardation Proqram Directors (NASMRPD) has prepared a publication that provides background information and practical advice for mental retardation pro-tram directors and others interested in applying for a home and community- based waiver. The Publication is entitled "The Medicaid Home and Community-Based Care Waiver Authority." It provides details on services, eliqibility and considerations for completing the comolex formula of averaqe per capita costs of institutional and non-institutional services.

Copies are S10 each and are available by writinq to NASMRPD, 2001 Jefferson-Davis Hwy., Suite 806, Arlington, YA 22202. A copy of this publication is also available for use in the MetroDolitan Council DD Resource Library.

Working With Mentally Handicapped Persons in Their Residences, by Dean and Mary Tdosvold. This book assesses current theory and research and draws upon their personal experiences to helo handicapped people to develop their abilities and increase their independence. Available from The Free Press, A Division of MacMillan Publishina Co., 866 3rd Av., New York, NY 10022. Cost: Sll .95.

The followinq books are available from the Prader-Willi Syndrome Association, 5515 Malibu Dr., Edina, MN 55436. Postace and handling costs are included in the price of each book. Prader-Willi Syndrome, by Dr. Holm, et al, 524.50; Prader-Willi Svndrome - A Handbook for and An Overview of the Prader-Willi Svndrome,-bv Lota Mitchell, M.S.W., $3.

LaBAR HONORED

The Business and Professional Women's Club of Minneapolis Presented an award to Leah LaBar, founder and executive director of ComPrehensive Services for Disabled Citizens, Inc., last December for her "Outstanding Achievement as a Business Woman."

Mrs. LaBar, who has been a quadriplegic for 32 years, did not let physical limitations stop her from organizing Comprehensive Services in 1972.  The purpose of the aqency is to help people with physical disabilities gain as much independence as possible. This nonprofit service started by providing an attendant referral service. Today the aqency not only helps find attendants, it also offers attendant training classes and provides advocacy, information and referral and counseling.

For further information on this service, contact Leah LaBar, Comprehensive Services for Disabled Citizens, 4114 39th Av. S., Minneapolis, MN 55406, or call [phone].

VOLUNTEERS NEEDED

Dr. Gary Birnbaum of the University of Minnesota is investiqating the role of aenetic susceptibility to the development of multiple sclerosis (MS).  He is actively enqaged in measurinq immune cell responses to MS patients and their families. Of particular interest and importance are his investigations of MS patients who are one of a pair of identical twins. If any such individuals are willing to participate in Dr. Birnbaum's investiqation, they may call him at [phone].

This proiect is currently being funded by a research grant from the National Multiple Sclerosis Society.

SERVICES

New Foundation

The Chicago Resource Center is a new foundation that will focus its support on newer, grassroots organizations. It is a private foundation with a total of $500,000 to be made available to agencies nationwide. Although it will consider proposals from established organizations, the center is particularly interested in those groups generally overlooked by traditional funding sources. For further information, contact the Chicago Resource Center, 209 W. Jackson, Chicago, IL 60606; Tel. [phone].

Technical Assistance Available

Technical Assistants from the State Department of Public Welfare are available to assist community residences, developmental achievement centers and semiindependent livinq aqencies with development, regulatory problems, program consultation, or other needs. This is a free service. Call Gordon Krantz (296-2136), Mary Kudla (297-3829) or Gerry Nord (2973828) or write DPW-MR Division, 4th flr., Centennial Bldg., St. Paul, MN 55155.

Nationwide Arts Promotion

The National Committee, Arts for the Handicapped (NCAH) has created six new regions and appointed regional advisors in order to promote nationwide arts programming for disabled people. NCAH hoses to strengthen ties with related national programs to improve informational dissemination concerninq available arts programs. For further information, contact Bette Valenti, NCAH, Connecticut Av. N.W., Suite 418, Washington, D.C. 20009.

SERVICES (Continued)

Communication Device Available

A device called the Autocom, a batterypowered, wheelchair-mounted communication board is available for non-oral, motorimpaired people from Telesensory Systems, Inc. The Autocom can be personalized to a person's motor skills and it offers' features such as communication viewing continuous feedback systems and personalized vocabulary overlays. The device was orginally developed at the Trace Research and Development Center for Severely Communicatively Handicapped at the University of Wisconsin with the support of the National Science Foundation and the Office of Special Education of the Department of Education. For information: Telesensory Systems, Inc., 3408 Hiliview Av., P.O. Box 10099, Palo Alto, CA 94304.

Developmental Disabilities Clinic

Minneapolis Children's Health Center announces the formation of a developmental disabilities clinic to provide comprehensive evaluation of children's developmental problems. Emphasis will be on children up to age three who may have a developmental The clinic will assist in Planning intervention that will provide optimal growth and development.

Clinic staff includes a pediatric nurse associate, developmental pediatrician, social worker, audiologist, speech/language-pathologist, psychologist, occupational therapist, community resource specialist, as well as access to various other specialty clinics in the hospital.

Children may be referred by their families, private physicians or any person involved in an ongoinq relationship with the child and family. For further information or to make referrals, call Mrs. Nancy Pflacer, coordinator, at [phone].

EMPLOYMENT OPPORTUNITIES

Summer Employment

Two or three positions are open to mentally retarded adults to do dishwashinq, lawn maintenance and general cleaning at a lodge in northern Minnesota next summer. Pay is $330 per month, plus room and board.

For more information, contact Bruce Kerfoot Gunflint Lodge, Gunflint Trail, Grand Marais, MN 55604.

RECREATIONAL ACTIVITIES

The Courage Alpine Skiers club teaches downhill skiing to amputees, people with spina1 cord injuries or other physical disabilities. Members meet every Saturday during the season at Welch Village, near Welch, Minnesota, and Spirit Mountain near Duluth, to receive instruction and to practice their skills using adapted skiing equipment. For information, call Michelle Beach at [phone] or Joann Cicerelli at [phone]. In northeastern Minnesota, call Mary Schmitz at [phone].

A Cross-Countrv Ski Marathon, a winter "fun raiser," will be held on the Phalen Golf Course on Feb. 14 from 9-5 p.m. There will be a spaghetti dinner after the skiing. To obtain pledqe sheets or tickets for the dinner, call the Association of Residences for the Retarded in Minnesota (ARRM) at [phone].

The Vinland National Center, Pilot Programs is sponsoring several healthsport sessions and summer activities. Activities are for people who are 16 years or older who have physica1 or sensory impairments and able bodied persons who are interested in participatinq with disabled persons in the healthsDorts philosophy. Amonq Dlanned activities will be bike, canoe and horsepackinq trips. For additional information, contact: Vinland National Center, Pilot Proarams, 3675 IhduhaDi Rd., P.O. Box 308, Loretto, MN 55357.

WORKSHOPS, CONFERENCES

Feb. 9, Feb. 13

Parent Advocacy Coalition for Educational Rights (PACER) is sponsoring two workshops, identical in content, on the above dates beginning at 9:15 a.m. Topics will include riqhts and responsibilities of Parents, assessment, individual education plans and team staffing. To register for either of these free workshops, or to obtain more information, contact PACER Center Inc., 4701 April 9-10 Chicano Av. S. Minneapolis, MN 55407 [phone].

WORKSHOPS (Continued)

.

"Protecting and Letting Go," 7-9:30 p.m. at the Creekside Community Center, Room 103, 9801 Penn Av. S., Bloomington. Cost is $1 per person. To pre-reqister, call: Office of Soecial Services, 881-5811, Ext. 315.

Feb. 11

A Bio-Medical Ethics Workshop, funded by the National Conference of Christians and Jews, will discuss two case studies. They include "A Case of Serious Post-Natal Deformity," and "A Case of Cooperation in SelfDetermined Death." The workshop will be held from 8:30 a.m.-4:30 p.m. at the Beth El Synagogue, 5224 W. 26th St., St. Louis Park, Minnesota. Registration fee of $16 must be prepaid. Registration is limited.

Feb. 12

"Physical Control Alternatives" is a workshop that Provides an opportunity to practice alternative means of physical control that are humane and do not aggravate an already bad situation. It will be held from 8:30 a.m. to 4 p.m. at the Sheraton Airport Inn, 2525 E. 78th St., Bloomington, MN 55450. For information about costs and registration, call the Association of Residences for the Retarded in Minnesota, [phone].

Beginning Feb. 25

The Minneapolis Association for Retarded Citizens (MARC) is co-sponsoring the following workshops for families with a handicapped family member. For six consecutive Thursdays, 7-9 n.m, beginning Feb. 25: "A Couples Support Group for Parents of Handicapped Children," St. David's School, 13000 St. David's Rd., Minnetonka. Limit of four couples. Cost is $15 a couple (or ability to Pay). For more information: MARC 874-6650. March 9:

FUTURE EVENTS

The 34th annual National Wheelchair Basketball Tournament will take place at the Minneapolis Auditorium. For information, call Courage Center at [phone].

April 17

The Third Annual Metro Areawide Consumer Conference will be held at the Colonial Church of Edina, 6200 Colonial Way, Edina. This conference is being planned by and for people who are mentally retarded.  Ten workshops, chosen by consumers, will be presented during the afternoon of April 17. The Associations for Retarded Citizens of Anoka, Dakota, St. Paul and Minneapolis are sponsoring the conference, and will be mailing registration brochures during the first week of March.

Apri1 25-27

National Industries for the Severelery Handicapped (NISH), a non-profit agency whose primary aim is to provide jobs for severely handicapped persons and promote their placement in competitive emoloyment, is sponsoring a national conference April 25-27 in San Antonio, Texas. For further details, contact Evelyne R. Villines, NISH, 4350 East West Hiqhway, Suite 1120, Bethesda, MD 20814.

SAVE...SAVE...SAVE...SAVE...SAVE...SAVE...SAVE...SAVE...SAVE...SAVE

DEVELOPMENTAL DISABILITIES CURRICULUM LIBRARY RESOURCE MATERIALS

Albrecht, Karl, Ph.D., Successful Management by Objectives -An Action Manual.

Apolloni, Toni., Joanna Capuccilli and Thomas Cooke: Toward Excellence: Achievements in Residential Services for Persons with Developmental Dlsabilitles.

Baker, Bruce L., Alan J. Brightman, Stephen P. Hinshaw; Toward Independent Living.

Bender, Michael., Peter J. Valletutti; Teaching the Moderately and Severely Handicapped, Vol. I Behavior, Self-Care and Motor Skills.

--- Teaching the Moderately and Severely Handicadded, Vol. II - Communication Time Socialization, Safety and Leisure Skills.

--- Teaching the Moderately and Severely Handicapped  Vol.  III - Functional Academics for the Mildly and Moderately Handicapped.

Bigge, June L. With Patrick A. O'Donnell; Teachinq Individuals with Physical and Multiple Disabilities.

Budde, James F., Measuring Performance in Human Service Systems - Planning, Organization and Control.

Ehlers, Walter H., Curtis H. Krishef and John C. Prothero; An Introduction to
Mental Retardation - A Programmed Text (2nd edition)

Flynn, Robert J and Kathleen E. Nitsch; Normalization, Social Interaction and Community Services.

Gardner, Jamers F., Linda Long, Roann Nichols and Diame M. Lagulli; Program Issues in Developmental Disabilities - A Resource Manual for Surveyors and Reviewers.

Kennedy, Evelyn S: Dressinq with Pride Vol.I.

Mager. R.; The Mager Library: Developing Attitudes Toward Learning; Measuring
Instructional Intent; Preparing Instructional Objectives, Developing Vocational Instruction; Goal Analysis; Analyzinq Performance Problems.

Magic Valley Rehabilitation Services Inc.; An Activities of Daily LivingCurriculum for Handicapped Adults.

Marr, John., and Bob L. Mears; Psychosocial Problems in Rehabilitation.

Perske, Robert and Judy Smith; Beyond the Ordinary; The Preparation of Professionals to Educate Severely and Profoundly Handicapped Persons Toward the Development of Standards and Criteria.

Perske, Robert, Andrew Clifton, Barbara M. McLean and Jean Ishler Stein: Mealtimes for Severely and Profoundly Handicapped Persons - New Concepts and Attitudes.

Perske, Robert, New Life in the Neighborhood - How Persons with Retardation or Other Disabilities Can Help Make a Good Community Better.

Popopvich, Dorothy and Sandra L. Laham; The Adaptive Behavior Curriculum, Vols. I. and II.

Popovich, Dorothy : Effective Educational and Behavioral Programminq for Severely and Profoundly Handicapped Students, A Manual For Teachers and Aides.

Rabby, Rami; Locatinq, Recruitinq and Hirinq the Disabled.

Rotatori, Anthony F. and Robert Fox; Behavioral Weight Reduction Program for Mentally Handicapped Persons - A Self-Control Approach.

Sailor, Wayne, Barbara Wilcox and Lou Brown; Methods of Instruction for Severely Handicapped Students.

Sontaq, Ed, Editor, Judy Smith and Nick Certo, Assoc Ed.; Educational Programminq for the Severely and Profoundly Handicapped.

Stout Vocational Rehabilitation Institute, Materials Development Center, University of Wisconsin-Stout;. Contract Biddinq for Rehabilitation Facilities.

TASH (The Association for the Severely Handicapped): (in one volume) Bibliography and Materials List 1981.

Taylor, V., and D. Close; Community Living Observation System, Paper #110.

Texas Tech University, Research and Training Center ln Mental Retardation; Cooperative Occupational Preparation of the Handicapped-Examplary Models.

--- 1980 Information and Research Materials.

Warren, Rachel D., and Irving R. Dickman; For This Respite...Much Thanks - Concepts, Guidelines and Innues in the Development of Community Respite Care Services.

Wehman, Paul, Ph.D., contribution by Ronald P. Reynolds: Adaptations, Techniques and Curriculum Leisure Proqrams for Handicapped Persons.

--- Competitive Employment - New Horizons for Severely Disabled Individuals.            DEVELOPMENTAL DISABILITIES


PUBLIC INFORMATION SESSION

A REPORT

on the

STATEWIDE DAC SURVEY (1979-1981)

presented by

Dr. Colleen Wieck Executive Director State Developmental Disabilities Program

Tuesday, March 2, 1982 7-9 p.m.

Metropolitan Council Chambers 300 Metro Square Building Seventh and Robert Streets St. Paul, Minnesota, 55101



Policy Analysis Series - Reports 6, 7 and 8 Financial Status Program and Personnel Client Characteristics and Movement Trend

This survey was a joint effort of the Department of Public Welfare; the Minnesota Developmental Achievement Center Association and the Minnesota Developmental Disabilities Program

Sponsored by the Metropolitan Region Developmental Disabilities Program of the Metropolitan Health Board/Metropolitan Council

Registration: 6:30 p.m.

Information: 291-6363

Copies of the DD Policy Analysis Series Reports will be available free of charge


INFORMATION EXCHANGE STATE SUPPLEMENT

Developmental Disabilities Program / Dept. of Energy, Planning and Development 201 Capitol Square Bldg. 550 Cedar Street St. Paul Minnesota 55101

OUIE APPOINTS DR. RICHARD NELSON TO HEAD STATE D.D. COUNCIL

Cov. A1. Ouie has recently appointed Dr. Richard Nelson to serve as the new chairperson of the Governor's Planning Council on Developmental Disabilities.  Dr. Nelson replaces Dr. Bruce Balow who has faithfully served in that capacity for the past three years.

Dr. Nelson is currently the director of Services for Children with Handicaps in the Minnesota Department of Health. He is also an assistant professor in public health and a faculty member of the Pediatrics Department at the University of Minnesota.  Dr. Nelson moved here in 1978 from Boston, where he was associated with the Children's Hospital and Harvard University.

The governor will also be appointing new Council members. They will be announced in next month's newsletter.

McNIGHT FOUNDATION ANNOUNCES REQUESTS FOR PROPOSALS FOR THE DD PROGRAM

The McKnight Foundation announced its Request for Proposals (RFPs) Jan. 15. The RFPs are for the development of more effective ways of meeting client needs for persons with developmenta1 disabilities who live in community-based residences or who are participating in day or employment programs. A total of $1,950,000 is available to support three orants over a fouryear period, one each in residential, day and employment proqrams.Besides requesting proposals, the McKnight Foundation is also requestinq brief concent papers that may be submitted by organizations and individuals.

Roger Strand - 612/296-4018


February 1982

McNIGHT FOUNDATION (Continued)

Proposals and concept papers in response to the RFP are due by 4:30 p.m. March 12, 1982, at the foundation's office. Notification of awards for the planning grants will be made on April 16, 1982.

Telephone inquiries concerning the content of this RFP may be made by calling Bob Walker, Walker and Associates, Inc., (612) 8700-4420.

NEW DEVELOPMENTAL DISABILITIES OFFICE ESTABLISHED IN REGION 10

The dissolution of the Regional Development Commission in southeastern Minnesota's Region 10 caused the Regional Developmental Disabilities Council to lose its host acency and its planning office in Rochester. However, planning and coordination activities on behalf of persons with developmental disabilities will continue out of a new location: S.E. Minnesota Developmental Disabilities Project, Box 4, Court Sauare Mall, 132 St. Anthony, Preston, MN 55965. Tel. (507) 7h5-2700. Mari1yn Bothun will continue as the regional coordinator.

POLICY ANALYSIS SERIES PROFILES DEVELOPMENTAL ACHIEVEMENT CENTERS

Two of three issue papers resulting from a statewide survey of developmenta1 achievement centers (DACs) were recently released by the State Develoomental Disabilities Program Office. The purpose of the study of 106 developmental achievement centers was to assess the financial, program-and client status during 1980, 1981 and 1982. The study was conducted as a joint effort of the Department of Public Welfare, the Minnesota Developmental Achievement Center Association and the Minnesota Developmental Disabilities Program.

Policy Analysis Series #6 is entitled "The Financial Status of Minnesota DACs: 1980-1982." This resort summarizes financial data for each economic region within the state and provides statewide totals. The total revenue reported by the DACs during 1980, 1981 and 1982 (estimated) was 522.9 million, $26 million and $27.3 million, respectively. The statewide average increase in revenues from 1980 to 1981 was 13.5 percent. The increase from 1981 to 1982 is projected to be approximately 5.3 Percent. Expenditures were compared to revenues on the data analysis. Thirty-four (32 Dercent) of the 106 DACs reported losses in 1980; 32 (30 percent) resorted that expenditures exceeded revenue in 1981 and in 1982 40 of 105 DACs (38 percent) anticipate losses. The rest of the report analyzes program and transportation per diems, capita1 assets, building accessibility, licensed capacity and average daily attendance. In 1981, the 106 DACs had a total licensed capacity of 5,584, with an average daily attendance total of 4,429.

Policy Analysis Series #7 is entitled The Program Status of Minnesota DACs: 1980-82." This report describes program personnel, staff training, staff turnover, program hours and days, out-of county clients, parent/client fee schedules and policy changes. The total administrative staff complement statewide for 1981 in the 106 DACs was:

DD POLICY SERIES (Continued)

253.96 administrative staff, 975.07 professional/paraprofessional staff and 141.07 support/nonproqram staff. The full-time equivalent staff complement in 1981 was 1,379. This is projected to decrease in 1g82 to 1,351, particularly in program and support staff. About half of the program personnel have college degrees, a proportion comparable to those of previous reports by the Department of Public Welfare. Turnover among staff is lower than that of residential facilities but showed a three percent increase from 1980-81. There is stability in the reported number of days and hours of service provided, but given the 1,234 out of-count placement contracts and anticipated budget constraints, there may be complex changes at the individual level in terms of units received.

The third Paper, Policy Analysis Series #8 will profile individual client characteristics and movement trends. In addition, a summary of other policy and program changes due to budget considerations will be presented.

Copies of the entire series or the individual reports may be obtained free of charge from the State Developmental Disabilities Program Office. Tel.[phone].)

WORKSHOP ON CONSULTATION

Feb. 10

A workshop entitled "Consultation in the Human Services: The-Art and Skills" is being sponsored bv the Department of Continuing Education in Social Work at the Universitv of Minnesota, Earle Brown Continuing Education Center on the St. Paul camous.  It runs from from 8 a.m.-4:15 D.m. William Koke, Ph.D., professor of social work at the university of Wisconsin-Extension, is the lead facultY member. Renistration fee is $43. For further information: Shirley Zimmerman [phone].

YEARNING FOR LEARNING

The State Developmental Disabilities Program office has acquired several educational and training resource materials now available on a loan basis in each of the Regional Developmental Disabilities Offices and in the State Program office, St. Paul. Each month, this section of DD Information Exchanqe highlights selections from these resources. This service provides an opportunity for a potential buyer to ensure wise investments.

Social Skills for Severely Retarded Adults; An Inventory and Training Program, S. E. McClennen, R. R. Hoekstra and J.E. Bryan, Research Press, Champaign, Ill., 1980. Based on the tenet that every person is capable of learning, the authors of this publication have developed a basic social skills inventory and training program that covers behaviors essential to community adjustment. In addition to their outline of individual programs, their discussion and description of a basic social skills inventory and their guidelines for the implementation of the programs are so well thought out and organized that the guidelines can be used effectively by parents, paraprofessionals and professionals. (A commentary by R. C. Scheerenberger, Director of Development Center, Madison, Wis.)

Leisure Skills Curriculum for Severely Handicapped Persons, P. Wehman and S. Schleien, Virginia Commonwealth University, Richmond, Va., 1979. This four-volume series outlines a detailed curriculum on object manipulation, games, hobbies and sports. The many suggested activities are each described by means of instructional objectives, materials needed, verbal cues, task analysis, correction procedures, activity guidelines and special adaptations. This useful guide can serve as an excellent time-saver for construction of individual and qroup plans. It also serves as a means to consider the many steps required for the successful accomplishment of a single activity.

Contemporary Assessment of Adaptive Behavior for Mentally Retarded Adolescents and Adults, A. Halpern, et al:  University of Oregon, 1981. The book is developed under a grant from the Department of Education, and the National Institute of Handicapped Research. It is written for teachers, counselors and evaluators who need assessment information to held them decide which programs they will provide on an individualized basis to adolescents and adults whom they serve.

Adaptive behavior has been operationally defined into 51 domains of measurable behavior. The authors carefully review 23 instruments in conjunction with their definition of contemporary assessment-....those practices which clearly link the purposes and outcomes of assessment with the goals and techniques of instruction and other forms of service intervention." This approach is in contrast to traditional assessment, viewed as a practice whose primary intent has been to label and classify people. These classifications are done often for the purpose of determining eligibility to receive benefits from a service program. Reviews of each assessment instrument cover the following items: purpose, item content and format, materials and cost, administration and scoring, technical characteristics and other special considerations.

EARLY CHILDHOOD SERVICES REVIEWED BY UNIVERSITY OF NORTH CAROLINA -

As part of series of topical papers on Developmental Disabilities (D.D. Themes are issues of the University of North Carolina he: released A Review of Early Childhood Services; A State-of-the Art Series, by R. Wiegerink, et al, 1981. The purpose of this state-of-the-art study of early childhood services is toreview federal and state agency efforts and to explore models of local comprehensive service programs.

The study points to the need for more inteqration in administration and coordination of service delivery. States need interagency coordination for early childhood services and most likely they need a lead agency for ages birth to three and another agency for ages three through six. Accordinq to Wiegerink, the Developmental Disabilities program should be ideal for stimulating interagency cooperation and be a relatively unbiased evaluator of what the best lead aqency or agencies in each state could be.

Metropolitan Council DD Program

300 Metro Square Bldg., 7th & Robert  St. Paul, MN 55101

CHILDHOOD SERVICES (Continued)

Regarding federal programs alone, the study found 25 major programs providing services to meet the needs of young children. At the local level of service de1ivery, there are at least ten critical components identified that would make an ideal local comprehensive service system for young children with developmental disabilities. They include: a collaborative child-find program; multi- or trans-disciplinary diagnosis and assessment; individual treatment or habilitation plans; a case management system; a range of locally available, comprehensive intervention services; consumer involvement; a follow along system; adequate pre-service and inservice sta ff training; theoretical adequacy and consistency, and evidence of program effectiveness.

Price for the entire package (Themes and Issues Nos. 15-26) is $30. Individual issue papers may also be purchased. Contact DD/TAS Publications and Print Products, Suite 300, NCNB Plaza, ChaDe Hill, NC 27514. Tel. [phone].

BULK RATE U.S. POSTAGE PAID Permit No.7029 St.Paul, MN

FEB 8, 1982


 INFORMATION EXCHANGE

Published monthly by  the Metropolitan Region Xl Developmental Disabilities Program of the Metropolitan Health Board.

Metropolitan Council 300 Metro Square Building St. Paul, Minnesota 55101
Toni Lippert: 291-6364  Tom Chapel: 291-6357
March 1982   Vol. 7, No. 3
DD METRO PROGRAM NOTES

Curriculum Library Rules

Materials in the DD Curriculum Library will not be sent to users.  Materials must be picked up in person.  Library materials in our office may be circulated only in the Twin Cities Metropolitan Area, which includes Anoka, Carver, Dakota, Hennepin, Ramsey, Scott and Washington Counties.

     -other requests should be directed to local DD programs at the Regional Regional Development Commissions.

DD Resource Library Has New Items

A list of recent additions to the DD Resource Library is enclosed with this issue of Information Exchange. This material may be used only in the Metropolitan Council library.

DD PROGRAM NOTES (Continued)

State to Aid Educational Services for Hearing Impaired Persons

The Minnesota Department of Education administers a program that fully reimburses local school districts and community agencies that provide services to persons with hearing impairments. The Minnesota Legislature appropriated approximately $30,000 for the period from July 1, 1981 to June 30, 1982 and $37,000 for the period from July 1, 1982 to June 30, 1982.

Services are available for both interpreting and notetaking. Interpreter services provide translation to an individual or group of adults. Notetaker services convert spoken languaqe to written language under conditions where it is also necessary to maintain visual contact with the instructor or interpreter.

Interested individuals may request this assistance by contacting the school district or community agency providing the instruction. These agencies may then request an "Application for Funds-Support Services for Hearing Impaired Adults." For further information, call the Special Education Office at (612) 2968246 .

NOTE: The Metro Region DD Programs' "Capacity-Building" workshops qualify for fee reimbursement for persons who have hearing impairments.

EDUCATION GRANT AVAILABLE FOR HANDICAPPED CHILDREN

U.S. Department of Education has announced a grant to help educate children who are handicapped. The grant issues awards to help implement statewide plans for preschool and early education for the children and to accelerate provision of the services. The grant is called Handicapped Children's Early Education Program:  New State Implementation Grants (CFDA No. 84.024C).  The deadline is April 20, 1982.  For information contact: Jane DeWeerd, Handicapped Children's Early Education Program, Special Education Programs, U.S. Department of Education, 400 Maryland Av. S.W.,Washington, D.C. 20202-4714. Tel. (20?) 245-9722.




BOOKS AND PUBLICATIONS

An updated Guide to Recreational and Camping Program is available from the office of the Minneapolis Association for Retarded Citizens (MARC), 2344 Nicollet Av. S. Minneapolis, MN 55404. The cost is $2.50. The guide contains information about leisure programs in Hennepin County and camping programs throughout Minnesota. All programs listed specialize in services to people who are mentally retarded.

For this Resorte, Much Thanks... Concepts. Guidelines and Issues in the Development of Community Respite Care Services describes how respite care services and specialized training can helo families care for disabled members at home. Order from Professional Services Proqram Dept., UCPA, 66 E. 34th St. New York, NY 10016. Cost: $3. tAlso available from DD curriculum libraries throughout the state.)

BOOKS AND PUBLICATIONS (Continued)

Personal Computers for the Physically Disabled:  A Resource Guide.  This guide, produced by Apple Computer, Inc., provides basic information about personal computer applications for handicapped people. Computers can be the key to an independence that might not otherwise be possible. The guide describes some unique products and ground-breaking uses of personal computers by persons who are handicapped. To obtain copies, contact Apple Computer, Inc., 10260 Bandley Dr. Cupertino, CA 95014. Tel.
[phone].

SERVICES

Admfssion and Application Forms Becoming Uniform

The Developmental Services Organization, Inc., (DSO) recently completed a followup study of its project on uniform admission'and application forms for residential facilities for developmentally disabled people. In the Metropolitan Area, all of the Human Services departments and all but four residential providers plan to use tne forms.  Preliminary feedback from an outstate follow-up study is equally encouraging.

DSO encourages all developmenta1 service facilities not using the forms to call Jane Birks for more information. Tel. [phone].

Library Provides Access for Deaf and Hearing-Impaired People

Hennepin County Library offers Telecommunication Device for the Deaf (T W ) service. Deaf and hearing-impaired persons who have access to a TDD may call the library for general information, reference service and reservation of library materials. Calls are answered by the Southdale Library switchboard during library hours: Monday through Thursday, 10 a.m to 9:30 p.m.; Friday and Saturday, 10 a.m. to 5 p.m.; and Sunday, 12-5 p.m.


EMPLOYMENT

Small group homes in the Metropolitan Area for young adults who are mentally retarded need aides and substitutes to work weekends, weekday afternoons and evenings. Persons with academic or work experience with mentally retarded or emotionally disturbed young adults are preferred. For more information, call Kristina A. Felbeck, personnel director, at (612) 9330248.

GIFTS

During March, Courage Center Homecrafters will sponsor two sales featuring gifts made by artisans with physical disabilities.

Clothing, toys, woodcrafts and other items will be displayed at the Southtown shopping center, Hwy. 494 and Penn, March 20 and at the Village North center in Brooklyn Park, March 26-27.

CLASSES, WORKSHOPS, CONFERENCES

March 9 and 13

Two identical workshops designed to inform parents of handicapped children of their legal rights and responsibilities in the educational field are being held this month. Parent Advocacy Coalition for Educational Rights (PACER) and the Special Education Council of the St. Paul Schools are sponsorinq the workshop at the William Mitchell College of Law, 875 Summit Av., St. Paul. There is no charge.  Advance registration is requested. For more information, contact PACER Center, Inc., 4701 Chicago Av. S., Minneanolis, MN 55407. Tel. [phone].

March 29-April 2

The Wisconsin Coalition for Advocacy in Madison, Wis., will sponsor a workshop: "Assessing Service Quality from a Normalization Perspective Using Program Analysis of Service Systems." For more information, contact Barb Billings, Wisconsin Coalition for Advocacy, 2 Mifflin St., Madison, WI 53703. Tel [phone].

March 29-June 12

Spring quarter extension classes offered by the Department of Continuing Education in Social Work, University of Minnesota, will be in session March 29-June 12. Three human services classes are as follows:

--"Orqanizational Development within Human Services" (SW 0312C) is taught by Frank Ouisenberry on Mondays 6:30- p.m., $67.50, three certificate credits.
--"Fostering the Mentally Retarded" (SW 0031C) is taught by Bob Schauerhamer and Jan Gibson on Wednesdays, April 14 - May 14, 1982, 7-10 p.m. Call [phone] and specify title of class.
--"Development of Paraprofessional Skills in Instruction" (four different schedules), will be taught by Mary Lou Gilstad. For more information, call [phone].

April 19

"Managing Aggressive Disruptive Behavior" is a workshop on how to manage behavior without violating human and legal rights. It will be held from 8-4 p.m. in the Earle Brown Continuing Education Center on the St. Paul campus of the University of Minnesota. Registration fee is $47. For more information, contact Marv Kay Wood, program director, or Dawn Kolumbus, program assistant, at the Continuing Education in Social Work, 338 Nolte Center, 315 Pillsbury Dr. SE., University of Minnesota, MN 55455. Te1. [phone].



Community Reactions to Deinstitutionalization. Carol K. Sigelman, Cynthia L. Spanhel, Cathy D. Lorenzen, University of Texas. Discusses thqe fact that opposition to community-based residential facilities for the developmentally disabled is often grounded in misconceptions such as property values will decrease and that crime will increase.

Community Residential Alternatives for the Developmentally Disabled. James R . Gardner, December 1977. Describes.a system for providing comprehensive community residential living for the developmentally disabled.

MISCELLANEOUS
Accessible Fashions.  Susan Voorhees and Angela Thompson.  Helpful suggestions for clothing for disabled people.

NEED ASSESSMENTS
Assessment of Need for a Childrens' Transitional Care Facility.  The Junior Leaque of St. Paul, Inc. and the St. Paul Section of the National Council of Jewish Women. Minnesota, August 1978. A community study that assesses the need for, and the feasibility of providing transitional health care for developmentally disabled children in the Twin City Area.

REHABILITATION
Independent Livinq Rehabilitation for Severely Handicapped People.  The Urban Institute, Washington, D.C. 1978. Reports on the initial findings of the demonstration projects undertaken by the Rehabilitation Services Administration (RSA) of the Department of Health, Education and Welfare on the needs of severely handicapped people and the extent to which their needs are met.

RESIDENTIAL SERVICES
Minnesota Model Standards.   Minnesota Department of Public Welfare MR Proaram Division, January 1980. A report presentinq the development, pilot-testing and evaluation of a model qualioty assurance mechanism for residential program services for those who are mentally retarded.

TRAINING
A Helpful Guide in the Traininq of a Mentally Retarded Child. Elsie Blanton,  FHN, Richmond, VA. 1968.  Should be helpful to physicians, nurses, teachers, parents and others who are interested in training, stimulating and motivating mentally retarded children.

ADDITIONS TO DO RESOURCE LIBRARY

ADVOCACY
Aids to Advocacy.  Developmental Disabilities Protection and Advocacy System, Minnesota State Planning Agency, January 1979. A bibliography and resource guide that will assist those who have the desire learn more about the advocacy theory and techniques as well as how to keep abreast of new information and events.

Potential Fundinq Sources for Advocacy Programs. Developmental Disabilities Protection and Advocacy System, State Planning Agency, St. Paul, MN. A guide to potential funding sources that will aid advocates working for the rights of developmentally disabled persons.

COMMUNITY SERVICE SYSTEMS
Intermediate Care Facilities for the Mentally Retarded(ICFMR).  Iowa Developmental Disabilities Program, Des Moines, Iowa. December 1980.  An overview of the intent, development, provisions for services and current usage of Medicaid funds in ICF-MR settings.

CRIMINAL JUSTICE
Residential Opportunities for Developmental Disabled Offenders. Thomas J. Schmid, Sharon Southard, Cristine E. Boswell, Cynthia Ann La Coeur, Minnesota, January 1979. A directory of residential facilities that are willinq to accept develoDmentally disabled clients who have been convicted of criminal offenses or adjudged delinquent. The facilities have been categorized on a geographic basis, using the eleven Minnesota Development Regions.

DEINSTITUTIONALIZATION
A Model For Deinstitutionalization. R. C. Scheerenberger, Madison, WI. December 1974. Explores some of the problems associated with this process and considers five aspects deemed important to a successful effort.

Barriers to Deinstitutionalization in Minnesota. Wendy Bliss-Brown, June 1978. A Paper presented to the Advocacy and Protective Services Committee of the Governor's Planning Council on Developmental Disabilities.

Summary of Findings Presented to House Committee on Deinstitutionaliztion.
Minnesota 1985 . A Paper on Costs of Care, Quality of Care in the state (institutional and
community-based, and roles and responsibilities of various levels of government in the provision of care.

INFORMATION EXCHANGE

Devolopmental Disabilities Program   Dept. of Energy, Planning and Development
201 Capitol Square Bldg.  550 Cedar Street St. Paul Minnesota  55101

STATE SUPPLEMENT   Roger Strand - 612 / 296-4018      March 1982

March 1982
QUIE FILLS STATE DD COUNCIL VACANCIES

Five people have been reappointed and 11 were newly appointed by Gov. Al Quie in
February to serve on the Governor's Planning Council on Developmental Disabilities.
Reappointments are:
- Mary Hinze, parent of handicapped children, counselor, Association for Retarded    Citizens of St. Paul (threeyear term).
- Raymond F. Lundaren, St. Paul, learninq disability [two-Year term).
- Elaine M. Saline, St. Paul, health coordinator, Ramsey County Nursing Service (three-year term).
- Kurt E. Strom, St. Paul, asst. director of the Council for the Handicapped (two-year term).
- Marvin Tritz, Dumont, parent of handicapped child, board member, Association for Retarded Citizens of Minnesota (three-year term).

New appointments are:
- Richard S. Amado, psycholoqist and building director, Brainerd State Hosoital (one-year term).
- Douglas H. Butler, Rochester, Exec. Director, Hiawatha Children's Home (three-year term).
- Roger A. Deneen, director, Pine County Develonmental Achievement Center, Sandstone (twoyear term).
- Eric Errickson, director of research and evaluation, Cambridge State Hospital (three-year term!.
- Marian F. Greiner, parent of son with cerebral palsy, work activity coordinator, North Country Industries, Bemidji (one-year term).
- Virginia Hanel, Mankato, mother of son with severe handicaps (two-year term).
- Robert A. Johnson, Duluth, Arrowhead Epilepsy League (two-year term).


COUNCIL VACANCIES (Continued)

- Virginia Marolt, Gilbert, parent of mentally retarded son, secretary for Association of Retarded Citizens (ARC) Minnesota, treasurer, ARC Ranqe Center (three-year term).
- Ruth M. Rafteseth, Crookston, parent of son with Downs Syndrome, part-time secretary, Probation Office, Polk County Courthouse. (three-year term)
- Kathleen E. Sturre, Staples, has eDilepsy and is a parent of handicapoed children. Employed by Todd County Social Services, Lonq Prairie (oneyear term).
- Marge A. Wett, parent of child with developmental disability, exec. director of a parent support group in Edina (one-year term).
Dr. Richard Nelson was appointed to a two year term as Chair of the Council. Dr. Nelson is director of services for children with handicaps in the Minnesota Department of Health.

HANDICAPPED TRAVELERS' CLEARINGHOUSE

A clearinghouse offers travel information tailored to the needs of persons with handicaps. Updated files covering accessible sites, accomodations, tourist attractions, public facilities and transportation help create an itinerary for the traveler for international and domestic trips. For more information write: Travel Information Center, Moss Rehabilitation Hospital, 12th St. and Tabor Rd., Philadelphia, PA 19141.


POLICY ANALYSIS SERIES COMPLETES DEVELOPMENTAL ACHIEVEMENT CENTERS STUDY

The Developmental Disabilities Program Office recently released Policy Analysis Series Number 8 and 9. This completes the survey of 106 Developmental Achievement Centers(DACs) in Minnesota;. The study is a cooperative-effort between the Department-of Public Welfare, The Minnesota Developmental Achievement Center Association and the Minnesota Developmental Disabilities Program.

Policy Analysis Series #8 is entitled The Client Status of Minnesota Developmental Achievement Centers: 1980-1982." A total of 5,154 people are enrolled in DACs, with 73 Percent in adult programs (age 21 and above.) Fifty-six percent of the clients are 21 to 50 years old. Seventeen percent are 50 years or older. Twenty-four percent of the DAC population are pre-schoolers up to four years of age. Due to legislatively mapdated public school enrollment at age four, the number of children age 4 to to 21 in DACS has decreased to three percent.

While 45 percent of DAC clients live in their natural or adoptive homes, nearly as many (41 percent) live in Intermediate Care Facilities for the Mentally Retarded (ICF/MR) or group homes.

The study showed client mobility was lacking.  This may indicate a lack of of employment, transportation, residential arrangements or other support services:  Currently 450 clients are ready to move into work activity or sheltered work situations, according to to the study. Approximately 300 adults are on DAC walting lists for program services and work activity placements. At the same time, statewide admission data indicates that DACs are admitting more people than they are graduating.

DAC STUDY (Continued)

Policy Analvsis Series #9 is entitled

"Summary of Issues, Program and Clients in Minnesota Developmental Achievement Centers: 1980-82."  This report underscores the interdependence of the many components of the service system.  Cutbacks or bottlenecks anywhere in the provision of services will eventually have an impact at the DAC level, the report says.  Current DAC problems, fiscal or otherwise, will not be solved easily or quickly, says the report.  Problems will require thoughtful solutions at all levels---state, county and local.

Copies of the entire series, or individual reports, may be obtained free of charge from the State Developmental Disabilities Program Office. Tel. [phone].

CAMP COURAGE MINI-VACATIONS

Physically disabled People and their families can enjoy inexpensive-minivacations through the family camping program at Camp Courage, near Maple Lake, Minn.

Families with disabled members have the opportunity to enjoy recreational activities in a quiet, barrier-free retreat. Bedroom apartments with kitchen facilities can be rented on a day-to-day basis for a nominal fee, which includes free use of the camp's indoor swimming pool, gymnasium and other recreational activies. The camp's staff can help families enjoy horseback riding, crosscountry skiing and videotape cinematography.

For information contact the Camping Department, Courage Center, 3915 Golden Valley Rd., Golden Valley, Minn. 55422. Te1. [phone].

REGULATION OF INTERMEDIATE CARE FACILITIES FOR MENTALLY RETARDED

In an effort to meet President Reagan's goal of increased state flexibility and proqram derequlation, the Health Care Financing Administration is reviewing its rules and regulations qoverning the statutory provisions of the Title XIX Medicaid Program. It is currently reviewing Medicaid rules governing skilled nursing facilities. By early spring, review of requlations governinq intermediate care facilities for the mentally retarded (ICF/MR) should be completed. These rules apply to both large and small facilities.

The Long Term Care Division is reportedly considering the following changes:

Trimming excessive paperwork and recordkeepinq requirements in existinq regulations; Clarifying responsibilities of qualified mental retardation professionals; Clarifyinq responsibilities of state survey teams, especially concerninq adequacy of services rendered to ICF/MR residents; Clarifying the meaninq and intent of the "active treatment" requirement; Clarifyinq the client evaluation, treatment and reporting process; Reviewinq the existing direct care staffing ratio; and Reviewinq professional staffing requirements.

March 1982 is the proposed deadline for internal review. A notice on proposed rulemakinq will be put in the Federal Register by early fall.

SUGARMAN RESPONDS TO BLOCK GRANT REGULATIONS

The Department of Health and Human Services issued requlations governing the P.L. 97-35 block grants last year. Mr. Jule Suqarman, former director of the Head Start Proqram and now president and managing director of Human Services Information Center, a private consulting firm, made the following observations on the effects of the P.L. 97-35 block grants Program:

- "There are no state or local funds to replace lost federal funds. Program cutbacks are already under way." - "Most states were ill-prepared to move quickly, but the transition provisions in the final laoislation allow time for states to do a qood job of planning if they want to do so. Some do; some have no idea of what that means." - "Effective coalitions of advocates for human services are rare." - ""ost people whc Darticipated are appalled at what was hanpeninq, but think it is up to somebody else to do somethina. Some desire to act and pursue coalitions, but there is a wariness of futility and potential internal turf battles." (From: Word from Washinaton , Vol.12, No. 11, Dec. 1981, pp. 10, 11.)

ART SHOW BY DISABLED ARTISTS

More than 400 works of art by over 120 disabled artists from the United States and around the world, will be displayed on the 2nd floor of the Sister Kenny Institute, 800 E. 28th St., Minneapolis from 7 p.m., Apr. 22 through May 7.

The exhibition will be oPen 8 a.m. to 4 D.m. weekdays and 1-4 p.m. weekends. Preshow displays are to be held at Honeywell's main office, 3M and 1st Bank of St. Paul. For further information call Mary Ellefson, Community Relations and Advocacy Deoartment. Tel. [phone].
 JOURNAL ANALYZES RELATION BETWEEN PEDIATRIrS AND SPECIAL EDUCATION

The Jan. 1982 edition of ExceDtiona Children contains several articles addressinq the collaborative interactions between special education and pediatrics. These disciplines have differences in style and approach to the Droblem of disabilities.

The articles discuss newly developed Pediatric training programs and the changing roles of pediatricians. One article concludes, "If in fact, the activities and trends described are accurate indicators of future efforts, then there has indeed been a aualitative shift in the relationship between Dediatrics and special education; a relationship, it is hoped, that will benefit children and their families in the years ahead."

Exceptlonal Children is published by the Council for Except'onal Children, 192O Association Dr., Reston, Va. 22091. Tel. (toll free) 1-800-336-3728.

MODIFICATION OF ACCESSIBLE DESIGN REGULATIONS DRAWS PUBLIC REACTION

The Architectural and Transportation Barriers Compliance Board in Washington, D.C. has published proposed revisions to its minimum guidelines and requirements for accessible design. Modified rules were issued in the Federal Reqister on Jan. 27. 1982. The modifications ease tension between federal and Dublic members over an earlier proposal to rescind the regulation altopether.

Public reaction during a 90-day Public comment Period preceding the board's Dec. 1st meeting turned the tide. The board received 3,366 timely comments on the earlier proposal to rescind its own rule, most opposing rescission.

The deadline for submission of comments on the new revisions is March 15. Conies of the Federal Reoister notice are available 7~irTiTE-~[ on cassette from the Public Information Office, Architectural and Transportation Barriers Comoliance Board, Rm. 1010, 330 C St., Washington, D.C. 70202. Tel. [phone].

2LEVISED COURSE ON REHABILITATION

Usinq satellite technoloqy, the Rehabilitation Services Network (RSN) offers a new anProach to learninq in the field of rehabilitation.

Televised conferences are beinq scheduled hy the RSN sponsor, the West Virqinia Research and Traininq Center of the National Institute on Handicapped Research. Minnesota is one of 19 states that receives the network. The local station is KTCA/KTCI-TV Studio, 1640 Como Av., St. Paul, Minn. 55108, Tel. [phone]. The local facilitator is Mary Schumacher at the MultiResource Center in Minneano1is, [phone].

Continuing education credits are available. Registration and fee payment must be arranged in advance with the sponsor, Rehabilitation Services Network, West Virginia Research and Traininq Center, One Dunbar Plaza, Suite E, Dunbar, W, Va. 25064. The toll-free number (voice or TTY) is 1-800-624-8284.

Dates and topics scheduled are: March 23 --"Employer Develooment," tauqh. by Dave Molinaro, Training Associate wi' the West Virninia Research and Traininq Center. May 4 -"Motivation...Counselinq to Reduce Client Dependency," taught by Dr. Joseph B. Moriarty, Ph.D., Director of West Virginia Research and Training Center and Professor of Clinical PsycholoQy at West Virqinia Universitv. June 8, 9--"The Preliminary Diagnostic Questionnaire," taught by Elizabeth Minton, Director of Traininq at the West Virainia Researcn and Trainino Center.

BEHAVIOR ANYALYSTS TO 80LD SPRING CONFERENCE

"Behavior Management" is the subject of the spring conference of the Minnesota Association of Behavior Analysts (ABA) to be held at the Mankato Holidav Inn March 2h-27. Chairpersons are Mike Fatis and Bill Wooten. For information, write Peggy Graham, PACE Prooram, Box 349, Brainerd State Hospital, Brainerd, Minn. S64O1 .
 lRKSHOPS ON TEACHING SEVERELY nANDICAPPED LEARNERS OFFERED

The Psychoeducational Studies Department of the University of Minnesota and the Upper Midwest Regional Resource Center are co-sponsoring a series of workshops featuring nationally recognized leaders in the education of severely handicapped students. Participation will be limited to the first 100 persons registered for each session. University credit is available by registering for PsyS 5126 (4 credits for attending all sessions.) Continuing Education credits are available by registering for PsyS 5304 tl to 4 credits). A fee of S35 per session will cover tuition and materials.

Dates, presentors and topics are:

April 2-3--"Functional Curricula to Prepare Severely Handicapped Students for Community Environments: Overview and Educational Best Practices." Lou Brown, Ph.D., Department of Behavioral sabilities, University of Wisconsin.

April 16-17--"Instructional Technology for Severely Handicapped Learners: Skill Acquisition." Martha Snell, Ph.D., Department of Special Education, University of Virginia.

April 23-24--"Instructional Technology for Severely Handicapped Learners: The Individualized Curriculum Sequency Model." Marilyn Mulligan, Ph.D., Department of Special Education, University of Kansas.

May 7-8--"Design of Hiah School Proqress for Severely Handicapped Learners: Curriculum Content and Service Delivery." Barbara Wilcox, Ph.D., Div. of Special Education and Rehabilitation, University of Oregon.

For additional information, please call Upper Midwest Reqional Resource Center, Tel. [phone].

PUBLIC HEALTH ú MINARS OFFERED

Maternal and Child Health Seminars will be offering one graduate credit in PubH 5648 throuqh the School of Public Health and Extension at the University of Minnesota. Seminars are conducted from 3:15-4:30 p.m. monthly on dates listed below. Sessions are tape-recorded and are available at the Bio-Medical Librarv Learning Center. Tapes from previous seminars may be listened to in approximately half a day. Seminars will be held at the Health Sciences Unit A 2620 on the followinq dates:

April 1--"Legal and Consumer Advocacy for Chronically Ill and Handicapped Children." Lecturer: Attorney from Legal Advocacy Services for persons with Developmental Disabilities in Minnesota.

May 6--"Self Esteem, Identity and the Chronicall'v Ill Child: Attitudinal Barriers." Presentors: Rianne Leaf and LeAnne Nelson with the 'Count Me In' puppets from PACER, Inc.

For more information, call Barbara L. Leonard [phone], or Jan Rubenstein [phone].

NATIONAL LEADERSHIP TRAINING INSTITUTE OFFERS TRAINING IN PROGRAMS FOR HANDICAPPED

St. Cloud Universitv is offering graduate credits on "Supervision of Programs for the Severely/Profoundly Handicapped," June 8-15, 1982. This seven-day intensive training session to be held in the Twin Cities Metropolitan Area, is intended for upgrading and renewinq skills of persons employed in supervisory leadership capacities in public school programs for the severely handicapDed. Submit a letter of inquiry to Dr. Richard Johnson, Institute Director, Department of Special Education. St. Cloud University, St. Cloud, MN 56301.
 .

Metropol i tan Counci 1 DD Program 300 Metro Square Bldg., 7 th 6 Robe rt St. Paul, MN 55101

MR. RCGER ST RAND STATE PLAh DEV DISA~ PRO 200 CAPITCL SGUARE BL ST PAUL MN 5 5101

BULK RATE U.S. POSTAGE PAID Pe rm i t No .7029 St.Paul, MN

MAR- i l 11~
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r, ~i~ INFORhIATIO? ~ 1' EXCHANGE

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l~ubIished u~`U`ly by Ihe Ml''ropolil. n Region XI Developmc'~aI Disabil~lies l~rogram ol the tvIctr``politan tlealth Doard.

Mctropolitan Council 300 NIciro Square lluilding St. Paul, Minnesota 55101

Tont Llppert: 291-6364 Tom Chapel: 291-635'

METRO W P ROGRAM NOTES

Grant Information

Information on Requests for Proposals (RFPs) issued by the Minnesota Developmental Disabilities Proqram is located in the State Supplement of this issue (blue section). There are two catecori es of qrants: one set of RFPs will be funded by federal funds under the Devel opmental Disabiliti es Act, PL 95602; the other set will be funded by the McKninht Foundation.

All Twin Cities Metropolitan Area applicants submittinq proposals on resDite care must also send a copy to the Metropolitan Council for an A-95 Review by ADri1 30, 1982. For more information on these reviews, call Toni Lipoert, the Council's developmental disabilities Droqram manger at (612) 2916364.

Copies of all Requests for Proposals may be obtai ned f rom the state Do Program, 201 Canitol Square Bldg., 550 Cedar, St. Paul, MN 55101. For more information, call Ron Kaliszewski, qrants administrator, at [phone].

April 1982 Vol. 7, No. 4

FOR YOUR INFORMATION

Correcti on

The February issue of the DD Information Exchanqe listed a new foundation, the Chicaqo Resource Center, as a source of funds for newer, qrass roots, developmental disabilities orqanizations. An inquiry by a local aqency indicated that the information was not correct. This foundation's interest does not include Drojects related to ind ividuals who are developmentally disabl ed. We regret the error.

Aqency Seeks Information

Prolect: RESCUE, an outreach agency servinq adults and children who are mentally retarded, is developinq consumer infonTation concerninq case manaqement, support and home-based services. Project: RESCUE is seekinq information about research and consumer information in use by other agencies. If YOU have information to offer, contact Gillian Grable, Individual Program Deve1oDer, Project: RESCUE, 1465 NW. Northside Dr., #16, Atlanta, GA ~318.

* * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * *

* If you no lonqer wish to receive this newsletter, or if you receive * * unrequested duplicates, please inform us by callinq (612) 291-fi363 * * or by writinq: W Information Exchanqe, 300 Metro Square Bldg., * * 7th and Robert Sts., St. Paul, MN 55101. *

*

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 FOR YOUR INFORMATION (Continued)

FOR YOUR INFORMATION (Conti nued )

Vocational Educational Board to Hold Hearino

The State Board for Vocational Education will chair a public hearinq to update its educational qoals, including goals for persons who are mentally retarded or physically handicapped. The hearing will be held at the St. Paul Area VocationalTechnical Institute auditorium, 235 Marshall Av., on Wednesday, April 14, 1982, beginninq at 8:30 a.m. and continuing until all interested persons have had an opportunity to participate. Representatives of school districts, associations, interested qroups and i ndivi duals may submit either oral or written data and statements. Persons may submit statements by mail without personally appearing at the hearinq, to Mr. Robert Bocklund, State Plan Specialist, State Plan OPerationa1 Services Section, Division of VocationalTechnical Edu cati on, Room 551, Capitol Square Bldq., St. Paul, MN SS101. Tel. ( fil2) 296 -24 21.

Copies of Droposed amendments will be available April 1, 1982, at the State DeDartment of Education, Room 551, Capitol Square Bldq., St. Paul, MN 55101. Additional copies will be available at the h earinq.

Video-Tape Available on Budoet Cut Effects on Proqrams for Mental v Retarded

A video-tape of a television program on the effect of budget cuts on people who are mentally retarded is available for loan from the Association for Retarded Citizens Minnesota (ARC Minnesota). There is no charqe for this service.

The tape is from a program ARC Minnesota aired on the KTCA-TV program, "People and Causes," originally broadcast on Jan. 2, 1982. The program features a mentally retarded adult, and Darents of a mentally retarded child, school-age child and adult. The discussion centers on helpful pro-trams and ways that proposed budqet cuts could affect others with similar needs. Panelists are Tom Rusch, Margaret Bauman, Sally Swallen and Gloria Steinbrinq, members of ARC Mlonesota.

To borrow this 30-minute, 3/4" video cassette, contact ARC Minnesota, 3225 Lyndale Av. S., Minneapolis, MN 554C8. Tel. [phone] or toll-free [phone]. Please request at least two weeks in advance.

EMPLOYPEM OPPORTUNITIES

U. of M. Seeks Teachers

The Department of Continuing Education in Social Work at the University of Minnesota is seekinq applications for part-time teaching positions. The positions are in noncredit or certificate credit programs in qaneral social work, foster care education and early childhood studi es. Appoi ntments will be f rom Sept. 1, 1982, throuqh Aug. 31, 1983. Send a letter of application and resume, includinq the courses you feel you muld be qualified to teach, to: Director, Continuinq Education in Social Work, 338 Nolte Center, University of Minnesota, 315 SE. Pillsbury Dr., Minneapolis, MN 55455.
 EMPLOYMENT OPPORTUNITIES (Continued)

Volunteer Available

A qualified occupational therapist from Switzerland, who will be visitinq the Twin Cities Metropolitan Area th~s summer, is willinq to volunteer her professional services at a summer camp for handicapped persons in return for room and board. For details on the volunteer's professional qualifications, length of stay, etc., call Ted Simons at [phone].

InterDreter Wanted

The St. Paul Public Schools system is seekinq aplications for the position of Educational Assistant-Interpreter. Primary duties include substituting for interpreters who are absent, using American sion lanquaqe, manually coded Enqlish and speech-reading oral techniques. Send an application and a letter containina a statement of traininq and experience to Dr. Phillip D. Penn, Assistant Director of Personnel, Administration Bldq., Personnel Office, 3fiO Colborne St., MN 55102.

NEW SERVICES AND PROGRAMS

Courage Residence Offers Respite Care

Courage Residence offers a respite care pro-tram, for one to four weeks, for handicapped persons livinq in the community who need a place to live while their attendant or family caretaker takes a leave. Nursinq care, meals and recreational opportunities will be provided and additional therapy will be available in selective cases. For admission criteria, procedures and other information, contact Courage Center, 3915 Golden Valley Rd., Golden Valley, MN

55422. Tel. (612) ~38-0811.

NEW SERVICES AND PROGRAMS (Continued)

Epilepsy Leaque Opens New O ffice

The Minnesota Epilepsy League Inc. announces that its new St. Paul office will be open daily from 8:30 a.m.-4:30 p.m. The office is located in Room 209 of the Nalpak Building 333 Sibley St., St. Paul. Tel. [phone].

Graduate Course in Sensory Impairment

The department of special education at the University of Arizona is offerinq a qraduate course in multihandicapped sensory impairment. Completion of the two-year pro-tram leads to a master's degree in Education. A limited number of fellowships will be offered on a competitive basis. For information, contact: Jan Writer, Department of Special Education, College of Education, University of Arizona, Tucson, AZ 85721.

Recional Service Center OPens

The Reqional Service Center for hearinqimpaired persons has opened at 1020 Summit Bank Building, 310 4th Av. S., Minneapolis. Bruce Hodek is the center's supervisor.

The center is to be an advocate for people who are hearinq-impaired and to assist in securinq interpreters and referral services. It will also be a center for books, pamphlets and will display and loan devices enablina deaf Peonl e to commun i cate by telephone. The center has a social worker from the Department of Public Welfare, an interpreter and a clerical support person. Tel. [phone] (Voice TTY).

NSP Installs Telenhone Device for Deaf

To assist its customers who have hearing imDainments, the Northern States Power Co. (NSP) has installed a TDD, a telephone communication device. When callinq NSP for information on a hill, or callinq in a meter readinq or question about other NSP services, call 333-8080. The TnD is also available to customers makinq a business call from downtown Minneapolis.
 GIFTS

Disabled Artisans to Sell Crafts

Courage Center Homecrafters will sponsor three sales in April featurinq gifts made by artisans with physical disabilities.

Clothing, toys and other items will be disolayed at: Brighton Villaqe, New Briqhton, April 17; Valley West shoppinq center in Bloomington, April 30-May 1; and at Ridqedale shoppinq center in Minnetonka, May 3~3.

Thrift Store Onens

Value Villaqe is a new thrift store operated by the Association for Retarded Citizens Minneapolis to support its many programs. Located at 6412 Penn Av. S., the store sells clothinq, household items and small appliances at reasonable prices. Your tax-deductible donations are invited. Tel. [phone].

SUMMER CAMPING

The Twin Cities Society for Autistic Children is offerinq camping for autistic persons at Camp Wilder, Marine-on-theSt. Croix. Dates are Auq 1-7 for campers age 7-12 and Aug. 8-14 for campers aqe 3-21.

For information and reqistration forms, call (612) 642-n942.

Couraqe Center is off erinq campinq at Camp Courage or at Courage North. ApDlicants must be at least seven years old and have a physical disability or speech, hearinq or vision impairment. To register for family campinq, summer camDing or to work as a cams counselor, contact the camping department at Couraqe Center, 3915 Golden Valley Rd., Golden Valley, MN 55422. Tel. (612) 588~0811.

SUMMER CAMPING (Continued)

Camp Indian Chief, operated by the Association for Retarded Citizens Minneapolis, offers several summer campinq and recreation programs starting June 20. For information on programs, registration and camDershiPs, contact CamD Indian Chief, Association for Retarded Citizens Minneapolis, 2344 Nicollet Av. S. Minneapolis, MN 55404. Tel. [phone].

RECREATION

The Washburn Child Guidance Center, 2430 Nicollet Av. S., Minneapolis, is sponsorinq a "Children's Art Opening" to celebrate individual creativity, on April 9, 4:30-6:30 p.m. This activity ends an artist-in-residence program for special needs children made wssible by a grant from the Minnesota State Arts Board.

The 12th Annual Metropolitan Concert is scheduled for May 18, 11 a.m. at O'Sha whnessy Auditorium, St. Catherine's College in St. Paul. This concert is for people who are mentally retarded. Group home operators and parents may receive more information by calling Jody Seltzer, Association for Retarded Citizens Minneapolis, Te1. [phone].

Dakota County Association for Retarded Citizens is offerinq several recreational eroqrams such as swimming, dancinq, arts and crafts. For more information, or for registration forms, call [phone].

The West Area Adaptive Recreation/ Education pro-tram offers several activities for younq adults who are mentally retarded and for autistic children age 7-13. For more information call 1200 On the Avenue at (612) 935-12(
 BOOKS, PUBLICATIONS

The Spina Bifida Association of Minnesota, Inc. has many books and pamohlets on loan at its library. Contact: Christy Bateman, 3925 Xylon Av. N., New Hope, MN 55427. Tel. [phone].

The Minneapolis Association for the Hearing Impaired has information kits for parents of newly diagnosed, hearingimpaired children. The kits include information about hearinq impairment, hearing aids and special education laws. There is no char qe to parents, but there is a $2 charqe for non-parents. To order a kit, or for more information, call Barbara Flanigan at (612 ! 3742982.

Accessible Fashions is a book that encourages consumers, designers and manufacturers to create and fulfill a market for fashionable but accessible clothinq for peoDle who are disabled. It was written by Angela Thompson and Susan Voorhees who have a orofessional interest in fashions, and because of their own disabilities, have a personal interest in fashion for disabled people. The book was commissioned by the Nationa Access Center and supported by grants from the Design Arts Proqram and the - Office of Special Constituencies of the National Endowment for the Arts. It is available for $1 from National Access Center, 1419 NW. 27th St., Washinqton, D.C. 20no7.

,1

This publication is also available at the MetroDolitan Council in the DD Resource Library if you wish to review it before orderina.

WORKSHOPS CONFERENCES

The Minnesota Epilepsy League, Inc., is sponsoring the following meetinqs and workshops:

April 14

General Informational/Membership meetinq, 7-9 p.m. at the Francis Cabrini Church, Franklin Av. and SE. 27th St., Minneapolis.

April 21-MaY 26

"Adult Self-Help" is the subject of six consecutive weekly workshops to be held 7-9 p.m. at the Citizens' Aid Bldg., 404 S. 8th St., Minneapolis. Topics to be discussed include medical information on epilepsy, community resources and problem solvinq. Cost for the six sessions is $15.

April 22-June 10

"Teen Self-HelD/Parent Support Group" is the subject of eiqht consecutive workshops workshops to be held from 7-9 p.m. at the Minneapolis YMCA at 9th St, and LaSalle, Minneapolis. These workshops will include information on employment, career opportunities, community resources, medical information and problem solving. Cost for the eight sessions is S15.

For more information, call Terri Houle, [phone].

April 17

"You in 82'' is the third annual Metro Consumer Conference sponsored by the Associations of Retarded Citizens of Minneapolis, St. Paul, and Anoka and Dakota Counties. It will be held at the Colonial Church of Edina, from 12:30-9 o.m. The conference is designed for and by people who are mentally retarded and offers a number of workshops for consumers: the use of health care, competitive emPloYment, riqhts as a qroup home resident, and relationships.

For reqistration fonms, call Association for Retarded Citizens Minneapolis, [phone]. Fee for the conference is 55.
 WORKSHOPS, ODNFERENCES (Continued)

ADril 24

The second annual meetinq and banquet of the Deafness Education and Advocacy Foundation (D.E.A.F., at the Sheraton Airport Inn, 2525 E. 78th St., Bloominqton, will start with a social hour at 5:30 p.m. The speaker will be Dr. Steven K. Chough, president, American Deafness and Rehabilitation Association. Reqistration deadline is ADri1 15, 1982. For more information, call Linda Nelson at [phone] (TTY) after 7 p.m. or Mary Lou Gorski at (612) 7858220 (TTY or voice), durinq daytime hours.

1200 On The Avenue is sponsorinq the following sessions that will provide answers for Darents who are considering group livina for their child or younq adult:

ADri1 29

"From a Group Home Point of View" will include history, aDplication process and availahilitv of qroup homes. The sessions for parents from 7:30-9 n.m.

May 6

"Residential Livinq, Rules, Requlations and Red TaDe" is a session to discuss Darents' rights and resoons~bilities, tyDes and sizes of qroup homes and group homes rules. The session is for parents from 7:30 -9 D.m.

May 13

"Family Issues" is a session orovidinq an oDportunity for parents and young people to address concerns about movinq to a q~rouD home. The session is for parents and potential group home residents from 7:30-9 D.m. (1200 On the Avenue continued in next column,.

WORKSHOPS. CONFERENCES (Continued)

Mav 15

Parents and Dotential qroup home residents will tour three or four grouD home facilities in the west and northwest areas of Hennepin County. The tour runs from 10-3 p.m.

All meetinqs will be held at the West Hennenin Community Center, 1200 Excelsior Av., Hopkins. There is no charee for the sessions. To reqister, call (hl2) 9351201 before ADri1 15.

May 8

United Cerebral Palsy of Minnesota will sponsor "Positive Self Advocacy for the 80's," a seminar that will focus on individual and consumer advocacy. It will be held from 8 a.m.-3:45 p.m. at the Landmark Center, 5th and Washinqton St. in St. Paul. There is no charne for the seminar. For more information call Barbara Berqlund at {612) 935-0873 or United Cerebral Palsy of Minnesota at [phone]. (If you receive a recorded messaqe, please leave your name and phone number for a return call.)
 l~FOlIMATION EXCHANGE STATE SUPPLEMENT

Devoloprnental Disabililies Program / Dept. of Energy, Planning and Development 201 Capitol Square BlUg. 550 Cedar Street Lil. t`~'l, Minnesota S5101

MINNESOTA NATIVE APPOINTED COMMISSIONER OF DEVELOPMENTAL DISABILITIES

Dr. Jean K. Elder, educational psychologist, was recently appointed commissioner of The Administration on Developmental Disabilities in the federal Department of Health and Human Services. Dr. Elder was born in Virginia, Minn., in 1941. She has Ph.D. and masters degrees in psychology and an undergraduate degree in education from the University of Michigan.

Prior to her appointment, Dr. Elder served as director of the Upper Peninsula office cf the Michigan Protection and Advocacy Service for Developmentally Disabled Citizens. She had been a special education consultant for the Michigan Department of Education in Lansing and an associate professor at both Michigan State University and Northern Michigan University in Marquette.

She is the author of numerous publications in the field of developmental disabilities, mental retardation and special education and has lectured to state, national and i nternati onal audi ences.

TWO REQUESTS FOR PROPOSALS ISSUED FOR McKNIGHT FUNDS

The Developmental Disabilities Program has announced a request for proposals (RFPs) in two areas: 1) modifying developmental achievement centers (DACs) to make them wheelchair accessible; and 2) solving problems in regional service delivery provided to persons with developmental disabilities. Financial support will come from the state

Roger Slrand - fil2/Z96-4018

April 1982

PROPOSAL REQUESTS (Continuer

Developmental Disabilities program through the use of a McKnight Foundation grant. Applicants must be public or private non-profit organizations.

Up to $100,000 is available for projects in each area. Organizations receiving grants to modify bACs are expected to have the work completed by Sept. 1, 1983. The deadline for receipt of application in the state office is 5 p.m., May 14, 1982.

Organizations receiving grants to solve regional service delivery problems are expected to begin work on projects no later than Oct. 1, 1982, for a grant period of one year. The deadline for receipt of applications will be 5 p.m., May 28, 1982.

Guidelines for the preparation of an application are available from the developmental disabilities program office. Contact Ronald E. Kaliszawski, Grants Manager, Developmental Disabilities Program, 201 Capitol Square Bldg., 550 Cedar St., St. Paul, MN 55101. Tel. [phone].


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DEVELOPIvENTAL DISABILITIES PROGRAM TO DEMONSTRATE MODEL PROJECTS OF RESPITE

I CAKE bE RV I ~ S

The Oevelopmental D1sab111t1es Program has announced that 1t 1s seek1ng proposals from el~g1ble public and pcivate non-prof1t organ1zations to provide respite care serv1ces for persons w1th developmental disab~lit1es. A total of S175,000 1s ava11able for a one-year period for up to 10 prodects. Ind1vidual grants w111 not exceed S30,000. Organ1z at1 ons receiv1ng grants are to begin mck by Oct. 1, 1982. Subsequent fundinq depends upon pr10rit1es established by the Governor's Plann1ng Counc11 on Developmental D1sabi1it1es.

Tha applicat10n deadline ts 5 p.m., Apr11 30, 1982. Appl1cat10n gu1del1nes are ava11 abl e from the Developmental D1sab111ties Program offfce, 201 Cap1tol Square Bldg., 550 Cedar St., St. Paul, MN 55101, Attn. Ronald E. Kal1szewski, Grants Manager. tel. [phone].

SHOW FILMS ON RAINY APRIL DAYS

For those drab, rainy April days ahead, an exciting movie can prov1de d1vers10n and a learn1ng exper1ence. For more informat10n, contact the Aud1 o V1sual Library Serv1ce, Continu1ng Education and Extens10n, University of M1nnesota, 3300 University Av. SE., M1nneapol1s, MN 55414. Tel. ( 612) 373-3810.

MNAS H ELK CTS OFFI CERS

The newly organized M1nnesota Associatlon for The Severely HandlcappeJ (MNASH) has announced results of its f1rst election of officers from among its 70-plus members . Elected for three-year terms are: Neil Doughty, executive d1rector of E duc at1 onal Ass1stance, Int. Marilyn Jensen, Ph.D., ass1stant psychology professor, St. Cloud State Un1versity. Mary Kudla, techn1cal ass1stance special1st, Cepartment of Public Welf are.

MNASH ( Cont1 nued )

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Elected for two-year terms are: Lyle Wray, Ph.D., court monitor for the Welsch vs. Noot consent decree. Barbara L . Berglund who has cerebral palsy and ho lds a masters degree 1n Rehabil1tat10n and Spec1al Educat10n from Mankato State Un1versity. Toni Lippert, program manager for the Metro Devel opmental D1sabil1ti es program, Metropolitan Health Board of the Metropol1tan Counc11.

Elected for one-year terms are: - Charlotte Ryan, federal pro-trams spec1al1st, Spec1al Educat10n, M1nnesota Department of Educat10n. Er1ck Err1ckson, research scientist, Cambr1dge State Hosp1tal. Robert Teel1ng, spec1 al educat1 on program superv1sor, Rosev111 e School District.

MNASH was launched last fall with help f rom the state Developmental D isabil1t1 es Program. More than 200 people attended its i nau~qural conference. Inqu1ries about MNASH and membersh1p may be d1rected to any of the new board members listed above.

COMPAS ANNOUNCES THEATER WORKSFI)PS

COMPAS, a statew1de commun1ty arts organ1zat10n, w111 conduct a series of theater workshops for phys1cally d1sabled adults. The 10 sess10ns will focus on stage techn1ques and act1ng. The workshops w111 be held beg1nn1ng Wednesday, Apri1 7, 6~ p.m. In the auditorium of The Little Sisters of The Poor, 330 S. Exchange St., St. Paul. The class fee is S20 and enrollment is lim~ted to 15 part1cipants. To register, contact QOMPAS, 75 W. 5th St., St. Paul, MN 55102, Attn. Kathee Foran. Tel. [phone].


 CONTROL DATA AND COUNCIL FOR THE HANDICAPPED TO JOIN FORCES

The Minnesota State Council for the Handicapped and Control Data Corp. have formed a partnership to improve and expand information and referral services. Under provisions of a $20,000 grant from Control Data, the council will upgrade its information on services and laws. In addition, the future of the microcomputer will be explored. "This (process) will give us an opportunity to expand and improve our ability to serve out-state areas and to know more about resources for all disabilities," explained Jane Baird, informaticn and referral officer for the council.

AUOIO V ISUAL ME DIA SOUGHT

The Association for the Severely Handicapped (TASH) is seeking films, videotapes and slide tapes dealing with all aspects of services, programs and community living arrangements of severely handicapped i ndivi duals. Such media are needed at the Ninth Annual Conference in Denver, Nov. 4-6, 1982. Contact Dueretha Williams, Conference Coordinator, TASH, 7010 NE. Roosevelt Way, Seattle, W; 98115. Tel. (206 ) 523~446.

COURAGE CENTER OFFERS LIFE ENRICHI~NT CLASSE S

Exciting ~ucational opportunities are available to adults with physical disabilities through Life Enrichment classes at Courage Center in Golden Valley. The spring session begins April 13 and includes daytime classes in clayworks, art, ceramics, history and photography. Evening classes offer "liquid" embroidery, and relationships and self esteem. For reqistratian and fee information, call Cindy Raynor at ( 612) 588-0811.

PUBLICATIONS

"Family, Leisure and Social Activities of Mentally Retarded People i n Residenti al Facilities" is a report of a 1978-79 national survey of public and private resi denti al faciliti es serving persons who are mentally retarded. Available for $3 prepaid from: Developmental Disabilities Project, 207 Pattee Hall, 150 SE . P illsbury Dr., University of Minnesota, Minneapolis, MN 55455, Attn. Laura Heiberg. A list of other publications is available upon request.

Plain Talk About EarlY Education and Development is a new book that captures thoughts of leaders in the field of early education and child development. The book presents current information in "plain talking" style without technical jargon or excessive detail. Content comes from 10 members of the guest faculty of the Professional Growth Institutes, sponsored by the Center for Early Education and Development tCEED) at the University of Plinnesota. Pay S6.50 per copy to CEED, Room 226 C.D., 51 E. River Rd., Minneapolis, MN 55455.

SISTER KENNY INSTITUTE TO STAGE PLAY AT GUTH] I E

A production of "Disabled Genius," under auspices of the Sister Kenny Institute, will be staged at the Guthrie Theater as part of the Institute's 40th anniversaryobservance at 6:30 p.m., May 2, 1982. The play's author, Ray Gordon, will direct the play. Sandi Gordon ;s the producer. Star performers are Mercedes McCambridge, Bermond Bragg, Danny Deardorff and Henry Holden.

"Disabled Genius" features characters from the past, the great heroes of history---of a special kind---those with handicaps and disabilities. The cast portrays these great people, whose genius has influenced society. In the end, the actors become themselves, demonstrating their own brand of artistic genius.

Tickets sell for $5, $7.50 and S10 at the Dayton's ticket office, or the Guthrie theater box office.
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YEARNING FOR LEARNING

The state Developmental Disabilities Program Office has acquired several educatian and tra1ning resource materials. They may be borrowed from each of the regional developmental disabilities off1ces and from the state program office, St. Paul. Each month, this section of DO Information Exchanoe highlights selections from these resources to provide information to potent1al buyers.

Implementinq Learninq ~n The Least Restr~ct~ve Env~ronment, J. Schif-ni, R. Anderson and S. Odle, University Park Press, Baltimore, 1980. This book d1scusses competencies needed by developmentally disabled children who attend mainstream schools.

Much of the content is based upon the assumption that mildly and moderately hand1 capped children, regardless of labels applied to them, are more alike than different. The book focuses on common learning and behav10r problems of "educationally handicapped. children. Educators are urged to deal with educational proble~s such as information processing, language, academic and emotional behavior rather than with disabil1ty categories evolved from a medical m~del. ~

Meeropol i ean Counci 1 DD Program 300 Metro Square Sldg., 7th 6 Robere St. Paul, MN 55101

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Evaluate TradobDkiL]r7]rabiTr~[ iad~~.

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oss, un versity of Oregon, 1977. This training and evaluation kit is a comprehensive system for the evaluation of professional short-term training. Based upan a professfonally established evaluation model, the training and evaluation k1t o ff ers training personnel a way to systematically evaluate shortterm educational programs. A specimen set may be purchased for S10 (prepaid), payable to the University of Oregon. It includes: user's manual, sample evaluation booklets, sample tabulation and report forms, literature review and order blanks for purchasing additional kit material. Mail to: TEK, Rehabilitation Research and Tra1ning Center, 2nd floor Clinical Services Bldg., University of Oregon, Eugene, OR 97403.

5 UL K RATE U.S. POSTAGú PAID Pe rm i t No .7029 S t. Pau 1, Mld

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 r' ~ INFORMATION ~ra J: EXC~GE

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Published muntilly by the Mf~tropoi~t.ln Region Xl Develc,F:n. n aI Di~abilities ['rogram of rhe tvictr`,pulitan ilealth Boird.

Metropolitan Council 300 Ntetro Square Building St.Paul,Mir~nesote 5~1m Toni Lippert: 29163 Tom Chapel: 291-635 METPO nD P80ORAM NOTES

Council, Health Board seek nD Task Force Members

The Metropolitan Health Board/ MetroPolitan Council is seekinq nominations for aDpointment to its Developmental Disabilities Task Force. The Health Board/Council especially seeks nominations of minority persons and those reDresenting urban and rural provertv areas.

The "DeveloDmental Disabilities Assistance and Bill of Riqhts Act," P.L.95-fiO2, defines a developmental disability to mean a severe, chronic, disability that: Is attributable to a mental or ohysical impairment or combination mental and physical imDairments, Is manifested before 22 years of a~ Is like to continue indefinitely, Qesults in substantial functional limitations in three or more of th' followinq areas of major life activity: 1) self-care; 2) receptive and expressive lanquaqe; 3) learninq; mobility; 5) self-direction; 6) capacity for independent livinq; a' 7) economic sufficiency. Reflects a person's need for a combination and sequence of specie inter-disciplinary, or generic car' treatment or other services that at of life-lona or extended duration , are individually planned and coordinated.

The Developmental Disabilities Proaram of the Metropolitan Health Board/ vetropolitan Council does not provide direct services, but works to expand and

May 1982 Vol. 7, No. 5

Task Force (Continued)

improve services for Persons who are developmentally disabled. The work pro-tram for 1982~33 will include the foliowinq priorities: fiivinq technical assistance to develop a variety of essential community pro-trams; Helpinq agencies and organizations establish a hiqh-quality system of services throuqh review coordinati and advocacy activities; and Providinq data, information, refer and oublic education on the developmental disabilities populat and service network.

The n~ task force must have at least 50 percent consumer reDreSentation includinq persons with develoDmental disahilities, their parents, immediate relatives, and quardians of persons with mentaliv impairinq developmental disabilities includinq a parent of an institutionalized person. The remaininq task force members may reDresent providers of service, other Professionals and citizens. ~etroPolitan Council policy requires representation from each of the 16 Council districts.

A term of membership is three yPars, beginninq Oct. 1, 1982. A resume, including volunteer or professional experience should accomoany nominations. DO task force members attend meetings every two months (second Tuesday, 1-4 o.m.) and belonq to one or more committees, usualiv requirinq two to three additional meetings Per vear. Transportation and babysittina exDenses are reimbursed for consumer members who request it. Send nominations and resumes by Mav 30, 1982 to Toni Linpert, 300 tietro Square 31dc., 7th and ~ober~ Sts., St. P2U1, MN F5101. Tel. (510! oal-6364.
 Certificate of Need Information Session

The Minnesota Department of Health has determined that the Certificate of Need amendments passed in the 1982 leqislative session still require all proposed intermediate care facilities for people who are mentally retarded to have a certificate of need review regardless of the amount of capital expenditure.

An information session on the new certificate of need interim application, s wnsored by the develoomenta1 disabilities pro-tram, is scheduled for May 18, 1:30 p.m;, Metropolitan Council Chambers, 300 Metro Square Bldq., 7th and Robert Sts., St. Paul. Health DePartment sta ff will review the application, answer questions and entertain suggestions for revisions. Copies of the interim application will be available at the information session. Call 291-6363 if ~ou wish to review the application prior to the meeting.

EOR YOlJR INFORMATION

\McKnight Awards Announced

The ~cKnight Foundation, in conjunction with consultants Walker and Associates, has announced three planninq grant awards: Qesidential programs: Association O17 Residences for the Retarded in M j nnesota, St. Paul; nay programs: Minnesota Development Achievement Center Association, St. Paul; and . Employment proarams: Association for Retarded Citizens Minneapolis, Minneawlis. More information on these awards will aDpear in the June issue of this newsletter.

Couraae Center Seeks Award Nominees

Courage Center is seekinq nominations +-^ the Rose and Jay Phillips awards, pran^~r annually to five men and women who have achieved outstandinq success in their vocations despite severe disahilities. Nomination forms may be obtained from Courage Center, 3915 fiolden Valley Rd., fiolden Valley, MN 55422. Tel. (612) 5Q,Q0811, Ext. 217.

Pacer Proiect

Hispanic parents whose lanquaqe or cultural difference have prevented involvement with their children's education are being sounht as oart of a project by a Twin Cities parents' grouD. Felipa Ramirez and Nicha Coates, bilingual parents with a lonq background of workinq with St. Paul's HisPanic community, are conductinq the proiect for PACER Center (Parent Advocacy Coalit ~n for Educational Rights). They want to reach parents of students with all tyces of develoomental disabilities who would like to learn more about their children's current school proaram.

After a core prouD of interested parents has been found, meetinqs will be Dlanned to qive parents information and help the~ with specific problems, accordinq to Coates. She hopes that a network of parents will form who can pass information and traininq to others ir community.

Ramirez can be contacted at 432-2518 evenings or weekends; Coates can be reached at 4546579, or call PACEP a~ [phone].

Service for Handicanped Children Reduced ~

Services for Children with Handicaps (SCH), formerly CriPpled Childrens' Services, is a protram within the Minnesota of Health responsible for evaluation, treatment and habilitati, r- ~ children with chronic handicaps. SC~ been affected by budqet reductions resulting from larae state deficits decreased federal funding.


 Service Reduction (Continued)

Last year acproximately 12,000 children were served by the SCH staff and several thousand more were Provided care through contractual arrannements. Under the new federal block grant, the oroaram will receive Sa50,00 less than in fiscal year 1C8l. This has resulted in the termination of some staff Dositions and the elimination of nine clinics.

The pro-tram Provides diagnostic and treatment services throuqh arranaements with soecialists' offices, medical centers and a statewide network of comorehensive and specialty clinics oDerated by medical consultants and volunteers. SCH also administers the Supplemental SecuritY Income Disabled Children's Proqram and provides treatment for adults with hemoDhilia and cystic fibrosis.

RESPITE CARE

nakota~s Ohildren, Inc., off ers resoite care for Dersons UD to 21 years of age who are severely or Drofoundly retarded. They mav also be ohYsically handicaw ed but individuals v~ho need intensive behavior modification or 24-hour nursina care, cannot be acceDted. For more information, call Laurel Shiely or Penny Gunstad at (hl2) 455-1286.

Hiawatha Adult nome offers a respite care orooram for UD to two weeks for adult, mentally retarded and ohysicallY handicaooed persons livinq in the community ~`ho need a olace to 1ive ,nhile their attendant or family caretaker takes a leave. blursinq care, meals and recreational ODoortunitiieS will be Drovided. This service will be available after July 1.

For admission criteria, procedures and other information, contact Hiawatha Homes, 182í Nl^~. Valkyrie Or., Rochester N 55901.

EMPLOYMEMT OPPORTlJNITIES

Summer Jobs OfferPd

fiovernment funds will Drovide emploYment for Twin Cities Area youth for approximately 12 weeks this summer. Jobs will ranne from plantinq trees, landscapinq and imorovina park and picnic areas to "hands-ont' career exploration through the Henneoin Technical Center.

To be eligible for employment, each youth must be a HenneDin Count v resident and at least 14 years old bv ,lune 14, but not more than 21 years old. Soecia consideration will be qiven to handicapped youth whose handicap would he a substantial harrier in qettinq emPloYment. Applications may be obtained hy calling Ed Loomis, State Job Service at [phone], or for more information, call Karen Abbott, Flest Side Communitv Center at [phone].

Executive nirector blamed

The State Association for Retarded Citizens (ARC) is seeking an experienced person to manaqe its Drouram. The Derson selected will be resDonsible for qovernance, planning, promotion, fiscal manacement and staff of the aaencv. The position requires skills in human relations, 1eadershiD and communication. Knowledae of mental retardation issues and service sYstems is a must. Send resumes to Search Committee, Associatinn for Retarded Citizens Minnesota, 3225 Lyndale Av. S., MinneaDo~is, M~l 554Q8.
 SERVICES

Lecal services expanded

Accordinq to the Minnesota Dn Law Qeport, five Dersons have been hired by the Developmental Disabilities Legal Advocacy Proiect as a result of a $130,000 qrant received from the McKnight Foundation. With the additional personnel, the pro~ect will be able to expand the scooe of its services, especially in Northern Minnesota.

The Minnesota DD Law Re wrt is a publication of Leqal Advocacy for DeveloDmentally Disabled Persons in Minnesota, the agency designated by the qovernor to Protect and advocate for the riqhts of developmentally disabled Dersons throughout Minnesota. Subscriptions may be obtained hv contactinq the main office at 222 Grain Exchange Bldq., 323 4th Av. S., Minneapolis, MN 55415. Tel. [phone] or toll-free outside the MetroDolitan Area, [phone].

Accessihility SDecialist Available

Harold D. Kiewel, an accessibility specialist for the state for the past five years is available for private consultation. He provides technical assistance relatina to renovation or construction of residential and co~mercial huildinqs, and Dresents slide shows, seminars and lectures on accessible design. For more information, contact Harold O. Kiewel, Accessible Consultants, 1825 Reaney Av., St. Paul, MN 55119. Tel. [phone] durina eveninq hours.

Tel ecapti on necoder Offered

The St. Paul Rehabilitation Center has a telecaption decoder to lend to persons with hearinq imDairments. It can be borrowed for a maximum of two weeks without charqe. For information, call Jo Anne Close, [phone], Ext. 76 (voice) or (6121227-3779 (TTY).

UnRKsHnps' CONFERENCES

May 19

A "New Director's ~orkshoD," SPonsored bv the Voluntar~v Action Center of St. Paul, is intended to helo Dersons in charae of volunteers develoD useful skills in their field. The workshop will cover proaram evaluation, job descriDtions, interviewinn, recruitment and motivation. The conference will be from 12:30-4:30 p.m. in the conference room of Familv Service, Nalpak Buildinq, 333 Sibley St,, St. Paul. Reoistration is limited to 15 particiDants and the deadline for registration is May 7. For reqistration forms, contact the Voluntarv Action Center, h23 Endicott 81dn., 141 E. ~th St., St. Paul, MN 55101. Fee for the conference is S15.

FUTtIRE EVENTS

June 4-6

The 1982 state convention of the Association for Retarded Citizens Minnesota (ARC MN) will be held at Colleae of St. Catherine, St. Paul. The keynote sDeaker will be Paul Marchand, director of governmental affairs for ARC National. Barry Morrow and Bill Sackter will be featured auests at the awards banquet. Sackter's life was Dortrayed in the movie ''Rill.' shov!n last Decemher on CBS-TY.

For renistration forms and more information, call ARC Minnesota at (619 827-~641 or tollfree outside the Metrooolitan Area, [phone]. The renistration deadline is Mav 24.
 ~ NFOIl\IATlC)N EXC1lANGE STATE SUPPLEMENT

Devclopmental Disabilities Program / Dept. of Energy, Planning and Development 201 Car,'~ol Sq~'are BIdg. .'iFiO Cedar Slreet St. P;`ul. M'nnesota 5510i

OD PROGRAM ANNOUNCES TRAINING CONTPACT

The Minnesota DeveloDmental Disabilities Progam has awarded a one-year contract to the Government Training Service to develop a statewide training program for staff and board members of developmental achievement centers and residential facilities. This year is the first of a three-vear Project funded by the McKnight Foundation. Management trainina will be the focus of the first year and direct care staff traininq will be emphasized the second year. In the third year, manacement and direct care traininq will continue, with the addition of an on-site follow-up Drogram.

Government Trainina Service is a public ornanization that hrings to the project extensive training expertise in manaqement development, and experience in developing and managing comprehensive educational programs.

Kay Zwernik has joined Government Trainina Services as a traininq special~st. With 16 vears in the field of developmental disabilities, Zwernik has extensive background with developmental achievement centers and residential facilities. For the Dast nine years she has been executive director of Metro DeveloDmental Achievement Center Council in St. Paul. Presently, she serves on the Metropolitan Developmental Disabilities Task Force, the Advisory Committee to the Court Monitor in the t~elsch vs. Noot case, and on a vocational rehabilitation task force examining work activities in the state.

Roger Stra`,d - 612/296-4018

Mav 1982

DD WILL CO-SPONSOR CONFERENCE ON PREVENTION OF CHILD ABUSE

A conference entitled "Preventing Harm to Children with Disabilities: Dimensions in Recognizing and Responding to Abuse and Neglect" has been set for May 21. It will be cosponsored by the Minnesota Department of Public Welfare (DPW) and the developmental disabilities program office of the Minnesota Department of Energy, Planning and DeveloDment. It will take place at the Sheraton InnNorthwest, intersection of Hwy. 52 and Hwy. I-94 in Brooklyn Park.

Keynote speakers will include: Eli Newberqer, M.D., Director, Family Development Study, Children's Hospital Medical Center, Boston, Mass; and Lynn Wikler, Ph. n ., assistant professor in the School of Social Work, University of Wisconson-Madison.

Recent studies have suggested that children with disabilities are at least three times more likely to receive abuse or neglect than children of average health. Rettinq help for parents and their children with handicaps takes a willingness to change behavior that hurts children, a commitment to be involved on behalf of children, and vicilance.

For more information and renistration forms, contact: Paul Kilev, Family and Children's Section, DPW, 4th floor, Centennial Bldg., St. Paul, MN 55155. Tel. [phone].


 'VOLUNTEER FOR MINNESOTA' PROJECT LAlJNCHED

Pres. Reagan is encouraginq volunteers and other private-sector resources to fill service gaos created by government budget cuts at all levels. Accordinq to the Minnesota Office on Volunteer Services (MOVS), human service budgets are expected to be cut by 37 percent nationwide. Responding to the President's encouragement, they have bequn a "Volunteer for Minnesota" project.

The project will have three phases: planning, implementation and evaluation. Success will require the involvement of government officials, volunteers and the corDorate and academic communities. They will be called on to develop new privatepublic linkanes and coordination of financial and human services.

Laura Lee Geraghty, director of MOVS, said, "Without such a program, we would be thrust into chaos, resulting from the loss of service, an inability to use our citizen resources eff ectively and confusion between the reSDeCtive roles of paid agency staff and citizen volunteers."

For more information, contact, MOVS, 127 lJniversity Av., St. Paul, MN 55155. Tel. [phone]. The toll-free number outside the Metropolitan Area is [phone].

MINNESOTA'S PACER SETS THE PACE IN

In 1978, the Parent Advocacy Coalition for Educational Rights (PACER) in Minnesota, founded in 1976, was the first of its kind to be funded under the federal Department of Education's division of personnel preparation. Similar groups nationwide are currently receiving funds from the department of education or similar sources. Included among qroups receiving funds are: SEPTER in Alaska, PEATC in Virginia, PACE in Kentucky, PEN in Pennsyivania and PEP in Wisconsin. They all refer to "parents and education" in their names and most have benefited from the leadership that Minnesota's PACER has provided through shared materials and technical assistance.

PACER (Continued)

Reflecting upon the past few years, Paula Goldberg and Marge Goldberg, co-directors of PACER, each said "Clearly, Minnesota parents were doing something rinht when PACER Center was formed."

A 20-page prospectus is available, Drepared by Dissemin/Action in Virginia that outlines PACER's pattern of organization, services and resource materials. Copies of "Parents Train Parents: A Plan and Program" and other information about PACER activities may be obtained from: PACER Center, 4701 Chicago Av., Minneapolis, MN 55407. Tel. t612) 827-2966.

Despite PACER's success, DD Information Exchanqe recently learned that the federa, nepartment of Education intends to cut the PACER Center qrant by 48.5 Percent on June 1, 1982.

MINNESOTA CON6RESSMEN SUPPORT 'EDUCATION FOR ALL HANDICAPiED' ACT

On Feb. 5, 1982, 59 U.S. Senators and 285 U.S. Representatives (well over half of the U.S. Congress) sent an oDen letter to Pres. Reagan calling uPon him to support the substance and funding of the "Education for All HandicaDped" Act (P.L. 94-142).

The letter is a siqnificant achievement in defending the federal government's role in promotinq public education for children with handicaps. Among the letter's comments are:

- "Our major concern is assuring the continuation of the effective federal state and local partnership that presently exists to provide educational services to handicapDed children."

- "In addition to the positive impact i human terms that the leqislation has wrought for handicapped children and their families, the program has prov~ that it is cost-effective."

- "ble hose that you will reaffirm your pledqe by endorsinq current levels of federal funding for P.L. 94-142 and its SupDort programs, and ouposing ar substantive changes in the statute."


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MINNESoTA CONGRESSMEN (Continued)

Amonq the 344 signators were Minnesota Senators David Durenberger and Rudy Boschwitz, and three representatives: Bruce Vento, Arlen Erdahl and James Oberstar. Let them know of your appreciation and continued support.

MINNESOTA TASK FORCE ON EPILEPSY UNDER WAY

The Minnesota Legislature created the Minnesota Advisory Task Force on Epilepsy in 1q81 to study problems, concerns and issues affecting individuals with epilepsy and to make recommendations to help eliminate the problems. The task force has set up four working committees: 1) prevention, research and medical services; 2) education and employment; 3) independence, equality and living arrangements; and 4) social adjustment, mental health, and education of the individual, family, professional and public.

Committees and the task force have open meetings on the second Friday of each month, usually in Room 14 of the State Office Building. For more information, call the Minnesota Epilecsy League, [phone], or call toll-free outside the Metropolitan Area, 1-800- 292-7932.

PUBLICATIONS

A catalog entitled Training and Professional Skill Development has been released by the Council for Exceptional Children. This catalog features resource publications and nonprint media designed to assist educators of children who are handicapped or gifted. Contents include: Preservice and continuing education programs; programs and staff developmental resources for administrators; and classroom resources for teachers. Free coDies are available by writing: CEC Publication Sales, 1920 Association Dr., Reston, VA 229Q1.

PlJBLICATIONS (Continued)

Child Abuse and Neglect Policy and gg5~gg~yDe~ Develooment

School Procrams is a pamphlet published by the Minnesota Department of Public Welfare, (DPW) Sept. 1981. It presents guidelines originally prepared by the Greater Minneapolis Day Care Association. A brief format covers several essential elements: suggested procedures for recording and reporting child abuse, barriers to reportinq, a form for reporting suspected child maltreatment, a process for developing policy and procedures and a model statement regarding children's basic needs. For a free copy, contact DPH, Family and Children's Services Section, Centennial Office Bldg., St. Paul, MN. 55155.

EVENTS

Ma,y 10-11

The Association of Residences for the Retarded in Minnesota (ARRM) has entitled its 1982 Annual Sprinq Conference "How Will We Respond to the '80s? Finger in the Dike or Rebuilding the Dam?" It takes Dlace at the Hyatt Regency on Nicollet Mall, Minneapolis. For renistration information, contact ARRM, 459 Rice St., Suite 302B, St. Paul, MN 55103. Tel. [phone].

May 13-14

An independent living conference, "Being in Charge: Living with a Disability," will be conducted at Southwest University, Marshall, Minn. For registration information, contact Ginny Stuart, Rural Enterprises for Acceptable Living, 224 W. Main St., Marshall, MN 56258. Tel. [phone]

May 31-June 4

The 106th annual meeting for the American Association for Mental Deficiency, ''A Time for Creativity: In Research, Training and Services" will be held in in Boston, Maine. For more information, contact: The American Association for Mental Deficiency, 5105 Wisconsin Av. NW., Washington, D.C. 20016. Tel. [phone] toll-free.
 YEARNING FOR LEARNING

The state Developmental Disabilities Proqram Office has acquired several education and training resource materials. Each month, this section of DD Information Exchanae hiqhlights se'ections from these resources to prov]7e information to Dotentia1 buyers. 300KS reviewed this month may be borrowed from the state program oniv.

_ ~natinq Serv~ces to Handicapped Children A Haod~6: Fi~rAr---- -v Collaboration, P. Magrab and J. Elder (Eds.), Baltimore, Md. This book addresses problems of delivering adequate services to handicapped children. The book provides solutions by exploring concepts, policies and procedures for interagency cooperation. It examines the development and evolution of interdisciplinary care together with a number of existing local systems. The book is helpful in determining how to avoid overlapping and gaps of service between agencies. A suggested format for developing and writing interagency aqreements are of particular value.

Metropol i tan Counci I OD Program 300 Metro Square BlUg., 7th ~ Robert St. Paul, MN 55101

Plannina for Services to Handicapped Persons: Communitv, Education, Health. P. Magrab and J. E,der (Eds.) Baltimore, Md. This is important reading for all human service professionals policyshapinq positions. It tells how to get the most effective, cost-efficient use from e%isting services, how to influence planning for services and how to achieve interaqency collaboration and cooperation. A "cyclical" model is developed for integration of four service delivery systems: community and social; educational; medical and health care; and vocational and rehabilitative. The final chaDter contains a workbook section for the systematic collection of data to achieve a specific goal. Sample forms, questionnaires and worksheets can be easily adapted to any objective or target group.

3ULK RATE | U.S. POSTAGE |

PAID Permi t No.7029 St.PauI, MN
 p~ | r, ~ INFORMATION ~ EXCHANGE

~. s~ . `,- CIti

Published monthly by the Developmental D~sabilit~es Program of the Metropolitan Health Planning Board

Metropolitan Council 300 Metro Square Building St. Paul, Minnesota 55101 Toni Lippert: 2916364 Tom Chapel: 291-6357

METRO DD PROGRAM NOTES

Help Stock DD Libraries

Our Metropolitan Regional DD Program continues to add to its two DD libraries- a curriculum library and resource library. Publishers' brochures on new DD publications and copies of the DD Policy Analysis Series are available in the DD office.

Consideration will be given to your suggestions for purchasing additions of use to DO professionals. Send your suggestions in writing and enclose adequate descriptions ~f the materials, potential use, price and

~lisher information. Mail to Toni Lippert at the newsletter address above.

Needs Assessment for Residential Proqrams Under Way

An ad hoc study group of the Developmental Disabilities task force of the Metropolitan Health Board/Metropolitan Council is currently collecting data to determine the need for residential facilities for nonretarded, physically handicapped young adults. They must meet the federal definition of "developmentally disabled." The group the needs assessment seeks to identify are young adults, 16-30 years old, who may need personal care supervision, but not intensive medical care. The residential program would fill a gap between programs that provide 24-hour intensive care and others that enable semi-independent living with help of an attendant. Such a facility will serve as a permanent home for some and, for others, a temporary residence to prepare for more independent living.

ort questionnaires have been sent to ,pecial education directors, to Camp Courage and to some consumer organizations. If you know someone who needs such a service and you have not received a questionnaire, please call Tom Chapel at [phone], to request a form.

July 1982 Yol. 7, No. 7

METRO DD PROGRAM NOTES (Cont.)

Reminder for Certificate of Need ADP 1 j cants

A Letter of Intent must be submitted 60 days Drior to submission of the certificate of need (CON) application for health care facilities. This includes intermediate care facilities for people who are mentally retarded. Many applicants have neglected to follow this requirement of the CON law. Letters of intent should be directed to: Malcolm Mitchell, Director, Metropolitan Health Planning Board, 300 Metro Square 31dg., St. Paul, Minn. 55101. Requests for applications and technical assistance should be directed to Toni Lippert at 291-6364.

FOR Y WR INFORMATION

New Temporary Supplemental Security Income Rule for Disabled Children

An interim rule published in the June 4 Federal Renister (p. 24274) addresses the problem of children who remain unnecessarily institutionalized because returning home for less costly medical care would result in loss of Medicaid eligibility. The rule provides that the Secretary of Health and Human Services (HHS), in appropriate circumstances, will not include the family's income when consider~ng the child's income and resources as a requirement for eligibility to receive Supplement Security Income (SSI). Under SSI, qualified, needy individuals are entitled to cash payments and in Minnesota, they are also eligible for Medicaid. This interim rule followed President Ronald Reagan's intervention in a case in November 1981, concerning a child who continued to be hospitalized despite the fact that her medical conditions could have been treated at home at substantially less expense.
 SSI Rule (Continued)

The Federal Register states that HHS is taking two approaches to solve this problem. The first approach is the interim rule that allows an HHS board to decide, on an individual basis, whether to include the family income in determining SSI eligibility for the child. Each case will be subJect to two criteria. 1) Excluding family income from consideration must indicate savings to the Medicaid program (that is, a currently institutionalized child could be treated less expensively at home and therefore Medicaid expenses would be less).

2) The HHS board must be satisfied that the quality of medical care will be maintained after deinstitutionalization. The board may impose additional standards depending on individual cases. Restrictlons to prevent abuse of this policy may be imposed if necessary, such as institutionalizing a child currently being cared for at home, simply to use this regulation.

This rule is effective immediately. All applications must be made on behalf of a child by the Minnesota Department of Public Welfare (DPW) that must recommend that ~ncome cf the child's family not be considered. DPW is currently developing a procedure for county welfare departments to follow in processing applications at the local level.

The interim approach will terminate April 30, 1983. A long-term solution by HHS assumes that states will have ln place home and community-based services under the new statutory authority allowing waivers. HHS further states, "reinstitutionalization depends on the states developing an appropriate Medicaid program which they can do under authority of section 1915 (c) of the Act,. permitting states to apply for the waiver.

DPW Requests Proposals

The Department of Public Welfare (DPW) has issued three requests for proposals.

One proJect is to identify a continuum of living arrangements for disabled adults, examine costs of various types of arrangemments and provide technical assistance to establish such living arrangements.

A second proJect is to develop the use of home-based social services through county agencies to retain disabled adults in the community and avoid unnecessary institutionalization.

The target population for the two above proJects is adults who are mentally retarded, or mentally ill, or physically handicapped or chemically dependent, including elderly persons with such impairments. The proposals must address a of these disability groups. The two proposals can receive a maximum of g40,000 each.

The third prodect is for a Dlan to develoo adult day program models as part of the long-term care continuum for elderly persons and for persons who are physically disabled. The plan should also provide technical assistance to counties, community health agencies and private organizations for developing adult day programs. This prodect will be awarded up to S30, 000.

You may request copies of the requests for proposals and get additional information from Carol R. Watkins, Supervisor of Adult Services, Division of Social Services, Department of Public Welfare, 4th FloorCentennial Bldg., St. Paul, Minn. 55155. Tel. [phone]. The deadline for submitting applications for all three proposals is July 15, 1982.
 Cost-of Care Issue Resolved

~ve by the state Department of Public We,fare to consider parental income when determining whether children living in residential facilities are eligible for medical assistance has been withdrawn. The commissioner of welfare has determined that children living outside the home will continue to be eligible for medical assistance and will not be transferred back to a county cost-of-care program. It is a good idea to thank the welfare commissioner your county commissioners and legislators for their support on this issue.

Many individuals opposed the return to the cost-of-care program because it would have put increased financial burdens on counties and would have been a financial incentive for placement in state hospitals. Also, it potentially would have allowed each county to determine its own parental fee schedule, resulting in unequal parental costs among counties.

Hational Year of the Disabled Follows Tnternational Year

congress passed a law designating 1982 as the "National Year of the Disabled" last February. Congress did this to sustain the considerable momentum generated by the International Year of Disabled Persons (IYDP).

A new, private, nonprofit National Office on Oisability has also been established to "support and encourage community-based e ff orts, disseminate information on disability issues, and promote the long-term goals of disabled Americans presented during IYOP." In announcing the new organization, Alan A. Reich, president of the U.S. Council for IYDP, noted that in response to IYDP, "disabled and non-disabled people working as partners in more than 1,850 communities across the country initiated or strengthened programs to improve the lives of disabled persons." The National Office on Disability will seek to sustain that effort.

for more information, contact: The National nffice on Disability, 1575 NW. Eye St.,

~shington, O.C. 20005. Tel. (202-638oOll.

Homes Needed

A variety of home settings including large family homes, duplexes, and shared apartments are sought by Ramsey County Community Human Service Department for adults who are mentally retarded or physically handicapped. The agency has developed a community alternative to intermediate care facilities called "Supporting Adults in Family Environments" (SAFE). It is an adult foster care program that recruits individuals or families that can provide short- or longterm care.

Providers will be assisted by a county foster care team that will make available training and support groups. For more information, contact: Barbara Kellett, Ramsey County Community Human Services Department, 160 E. Kellogg Blvd., St. Paul, Minn. 55101. Tel. [phone].

Requests for Information About Disabled Persons Souqht

A request for information about older persons who have severe or profound disabilities has been received by The Association for the Severely Handicapped (TASH). The agency requesting the information is preparing disabled persons, age 50-80, for community placement. Readers who are familiar with programs or research geared to this age group should send information to: The Association for the Severely Handicapped, 7010 NE. Roosevelt Way, Seattle, Wash. 98115.

The Greenbrier Center in Lewisburg, west Virginia, is in the process of developing a vocational assessment program and would like information about objective evaluations of individuals who are severely handicapped. If your program is doing this type of work, contact: Robert Chamberland, Vocational Oirector, Greenbrier Center, 103 Church St., Lewisburg, W. Va. 24901. Tel. [phone].
 SERVICES

NEW PUBLICATIONS

Advisory Committee Gulde

"A Handbook for Members of Advisory Committees" has been published by the Association for Retarded Citizens Mi qesota. The purpose of the handbook is to -.rengthen the effectiveness of advisory committees of DO residential facilities. The suggestions for recruiting and orienting committee members and identifying their responsibtlities can be used for advisory committees or directorship boards of any DD service.

The handbook is intended for use by advisory committee members, facility owners, public o fficlals, agencies with monitorlog respons1bility, and residents, parents and siblings of ind~viduals who are developmentally disabled.

The handbook has been moderately priced (75t including postage) so that all advisory committee members can be provided copies. It may be ordered from: The Association for Retarded Citizens Minnesota, 3225 Lyndale Av. S., Minneapolis, Minn. 55408. Tel. t612) 8275641.

Policy Analysis Series #10 Available

An update to Policy AnalYsis Series i5, ~ federal court decision concerning the deinstitutionalization of mentally retarded persons, is now available. Number 10 is entitled: Admissions/Readmissions to State Hospitals, June 1, 1981, to Oecember 31, 1981: Th~e Behavior Problem Issue. Coples of the series may be obtained at no charge by contacting the state Developmental Disabilities Proqram Office, 201 Capitol Square Bldq., 550 Cedar St., St. Paul, Minn. 55101. Te1. [phone].

Self-Help GrouP Beqins

Self-help group sessions for adults with epilepsy and their families will be held in the Twin Cities Area starting July 8. The sessions are held on Thursdays for six consecutive weeks from 9:30-11:30 a.m. Cost for Joining the group is S15. For more information, call Gary Nygaard, Minnesota Epilepsy League at [phone].

Medical Information Cards Available

The National Safety Council has developed a wallet-size, personal med1cal information and identification card. It provides immediate access to medical, personal and insurance information, as well as treatment and organ donor authorization.

The medical information card comes with three stickers that can be attached to wallets, driver's licenses or other items to let people know that emergency medical information is carried by the card owner.

For more information, contact the Minnesota Safety Council, 555 Wabasha St., Suite 102, St. Paul, Minn. 55102. Tel. [phone].

Accessible Housinq Planned for Coon Rapids

Grasslands Housing, Inc., a non-profit corporation in Anoka County, is developing a housing program for disabled people who have mobility limitations.

The complex, located in Coon Rapids, will house 24 units, 16 one-bedroom and eight twobedroom. Two stories have accessible corriders. The complex will feature earthbermed technology and barrier-free design. All units will be eligible for Section 8 lowincome financing.

Grasslands is currently involved in fund raising to provide accessible garages and an emergency medical vehicle. For more information, contact: Grasslands Housing, Inc., 7150 River Rd., Fridley, Minn. 55432. Te1. [phone].
 Services for the Deaf Available

1 Deaf Services Division, Department of Public Welfare, (DPW) seeks to help hearingimpaired people in Minnesota live as independently as possible. It works to make sure all welfare programs are available to hearing impaired people. Visit their offices or contact them by mail or phone if you need information. The local Metropolitan Regional Center is staffed by David Lubinski, Robert Cook and Dale Finke. Each member of the team brings experience and expertise in specific areas. For more information: contact David Lubinski, DPW, Regional Consultant, 302 2nd Av. S., Minneapolis, Minn. 55412. Tel. [phone] Voice or TTY. Collect calls accepted.

Metro Mobility Expands Service

Metro Mobility, a specialized door-to-door transportation service for persons who are disabled, will expand its service to Roseville, Maplewood, New Brighton, Fridley, South St. Paul, West St. Paul, St. Louis Park and Brooklyn Center. Recertification riders will take place this summer under ~ guidelines established by the Metro Mobility Advisory Committee. Public hearings on this issue witl take place this sum~er. Developmentally disabled persons unable to use the regular bus system will continue to be eligible for Metro Mobility. For more information, call [phone].

NE`N PROGRAMS

Graduate Study Funded

The special education department of Peabody College, Yanderbilt University, has funding to support highly qualified students interested in masters and doctoral study during 1982-83 in visual impairment, multiple handicaps and orientation and mobility. Inquiries for these study areas are invited from special educators and other human service professionals. Other sources of financial aid and part-time employment are also available. Funds are limited, so inquiries should be made immediately. ~ontact: S.C. Ashcroft, Department of

pecial Education, P.O. 80x 328, George Peabody College, Vanderbilt University, Nas hv ille, Tenn. 37203.

Graduate Study (Continued)

The special education department is also offering three summer institutes during 1982 on specialized topics of interest for educators of visually-impaired and multihandicapped persons. Inquiries regarding these opportunities can be made to Everett Hill at the above address.

EMPLOYMENT OPPORTUNITIES

Group Home Needs Weekend Houseparents

Two people are needed to serve as houseparents on alternate weekends, 4 p.m. Fridays to 4 p.m. Sundays, for six adults who are mentally retarded. No children will be allowed while on duty. Preference will be given to individuals with experience in mental retardation. For more information, call Lory Perryman, Good Neighbor Home, at [phone].

SUMMER ACTI YITI ES

Family Retreat Planned for Auqust

The Minnesota Epilepsy League is planning a family retreat Aug. 28-29 for children, youth and adults with epilepsy and their families. It will be held at the Sibley State Park on Lake Andrew, 15 miles north of Willmar. It will provide an opportunity to learn more about epilepsy in a relaxed, fun setting. Activities include games for all ages, trail hiking, fishing, swimming, group sports, mini-seminars and discussion groups. For more information, call Terri Houle at [phone].

Carnival Day Activities

The North St. Paul American Legion Post #39 is sponsoring a day for retarded citizens at the annual legion carnival. The carnival will be held Saturday, July 10, from 9 a.m. to noon at the Funland Park on Hwy. 36 and Margaret in North St. Paul. There will be free refreshments, rides, fun and games.
 Soecial Olympics Familv Qay

Saturday, Aug. 7, is the date of the 1982 Special Olympics Family Day. This event, sponsored by Honeywell, focuses on Special Olymp~cs athletes, their families and friends. Athletic events, sports clinics, and a carnival are held while seminars are available for parents and coaches. Call the Minnesota Special Olympics office at 8880883 for more information.

Summer Swim Proqram

Gillette Children's Hospital, St. Paul, is accepting registrations for its summer swim programs for people with or without tisab1lities. The next program is scheduled from July 17 to Aug. 26 and will provide private lessons for infants, young people and adults, as well as open pool sessions and group rental plans.

To register, or for more information, contact Oebi DeFlorin, Gillette Children's Hospital, 200 E. University Av., St. Paul, Minn. 55101. Te1. [phone].

Track and Field Meet

The Camilia Rose Group Home and ProJect POWER af Anoka/Hennepin School District No. I1 are sponsoring a special track and field meet for persons who are handicapped. The meet is part of the grand opening of the Hoover park and playground in Coon Rapids. The playground is the first of its kind in the nation, featuring such special items as: a 4OQ meter requlation track, marked at wheelchair widths; a bike course, banked for wheelchair accomodation, special or regulation bikes; three softball dia~monds; triple tennis courts; playground equipment des-igned for both able-bodied and handicapped persons and asphalt trails with adaptive exercise apparatus winding throughout the 26 acres. Registration materials will be malled in mid-July. For more information, call Mary Lou Gorski at 755-8220 or Randy Olson, Camilia Rose Group Hame, at 755-8489.

TapeMark Charity Pro-Am Golf Tournament Set

The TapeMark Charity Pro-Am Golf Tournamen' will take place July 16-18 on two sites, Southview Country Club and Indian Hills Golf Club. The final round on Sunday will be played only at Southview in Dakota County. One ticket at S2.50 is good for all three days. Call your local chapter of the Association for Retarded Citizens.

WORKSHOPS, CONFERENCES

July 14-16

"Training in Program Analysis of Service Systems (PASS). is a workshop intended for people interested in designing, delivering, monitoring and evaluating a variety of human service programs to ensure high quality and adherence to the principle of normalization. The workshop will be held in Tracy, Minn. For information, call Gloria Vande Brake, [phone].

July 24-28

The state Spina Bifida meeting will be held at the Radisson South Hotel, Minneapolis. Keynote speakers are: Kent Smith, Executive Director of the National Spina Bifida Association and Alan 8ensman, M.D. For additional details, call Ron Bateman at [phone].

July 26-28

"Special Education Leadership Institute," designed to discuss and formulate new directions in special education, will take place at the San Diego State University's Aztec Center. For more information, contact: San Diego State University, Special Education Leadership Institute, Department of Educational Administration, San Diego, Calif. 92812. Tel. [phone].
 I ~ FOItM~\TlC;N EXCt1ANGE STATE SUPPLEMENT

Developmental Disabilities Program l Dept. of Energy Planning and OeveloPment 201 Cnpitol Square Bldg .550 Cedar Stree' Sl. f~.`ul, hlu~nesota SSIOI

DO COUNCIL HEARS TESTIMONY ON COMMUNITYBASED SERVICE SYSTEM

The Governor's Planning Council on Developmental Disabilities sponsored a public forum May 4 and 5, to document issues in its next three-year plan. A summary report said that, "If a single theme can be identified, it is that the community-based service system is a system under threat-a system fraqmented, hampered by contradictory policy and uncertain leadership and erodinq because of unstable funding."

Spokespersons from 29 agencies and orqanizations provided testimony. They reDresented regional developmental disabilities councils, service agencies, provider and advocacy groups from around the state.

''Testimony supported the view that achievinq community-based services, or a decentralized service system, will require creative managers and policy-makers," the report stated. Concerns covered the areas including: day pro-trams; pre-school; residential; case management and training needs.

The summary report concluded, "If the Sovernor's Planninq Council on Developmental Disabilities is to take the active stance called for bv most organizations, it will need stratanies to deal with a 'problem' agenda including: 1) broadening the base of suDport for policies of community care and treatment; 2) gaining financial stability and financial incentives consistent with policy; 3) selling the cost-effectiveness of community care and less restrictive programming, 4) working in prevention, and 5) considerinq whether there are other, as yet untried, forms for delivering essential services at the com~unity level. The context for planning is one in which fiscal restraints could continue to exist and redesign of service systems may be a productive alternative to piecemeal cuts in existing services."

Roger Slra'~d - 612ict96- 1018

July 1982

TESTIMONY (Continued)

A special thank you is extended to those who presented their views at the public forum.

Copies of "Public Forum-A Summary of Testimony" may be obtained from the Developmental Disabilities Proqram Office, tel. [phone]

LEGAL ADVOCACY PROGRAM TESTIFIES AT OD COUNCIL PUBLIC FORUM

(Note: Although all presentations made at the Dublic forum, as described in the article above are worthy of wider dissemination, space limitations dictate the selection of only one, appearinq below.)

In discussing information available from the caseload at Legal Advocacy for Developmentally Disabled persons in Minnesota, attorney Anne Henry said, "Both adult and children's developmental achievement center services are in very serious jeopardy." She pointed out the dangers of the possibility that all programminq be received from within community residential facilities, with the result of inadequate monitoring and licensing for quality review. Several compliance issues have surfaced reqardin~ the implementation of the Welsch v. Noot Consent Decree and the deinstitutionalization effort. Some counties are be-tinning to require that clients from other counties go back to their financially responsible counties for services. "This trend," says Henry, "has serious implications for the rights of developmentally disabled persons to travel, move and obtain quality services that meet their needs."

A complete written copy of this public forum testimony is availahle by callinq (612) 2964018.


 .

CHtLO ABUSE_CONFERENCE HELD. VIDEO TAóFS AVAILABLE

_,

Over 160 people attended the conference "Preventing Harm to Children with Disabilities: Dimensions in Recognizing and Respondinq to Abuse and Neglect" on May 21. From a 42 percent return of conference evaluation forms, 98 percent rated the overall experience as good to excellent and 97 percent indicated the conference had met their obJectives for attending. All agreed that a special presentation by the "Count Me In" puppeteers from the Parent Advocacy for Educational Rights Center was a particularly meaningful experience. The conference was cosponsored by the Department of Public Welfare and the Developmental Disabilities Program Office. People interested in obtaining video tape cassettes should contact: Developmental Disabilities Program Office, 201 Capitol Square Bldg., St. Paul, Minn. 55101.

PROGRAM FOR YICTIMS OF SEXUAL ASSAULT

ImPlementation of a one-year project, "Sexual Abuse Education for nisabled Adolescents," was recently announced by the Minnesota Program for Victims of Sexual Assault in the state Department of Corrections. The prolect will receive a grant from the Northwest Area Foundation. For more information, contact: Pency Specktor, director, [phone].

OAN PPORTUNITY FOR SUMMER LEARNING

A new Boy Scouts of America merit badge is for "Handicapped Awareness." Scouts learn about available resources, take part in an awareness program and spend 15 hours working with disabled people. There are many such ways to involve the energies and enthusiasm of young people this summer. Why not share your ideas and experiences throuqh this newsletter? Write to: Roger Strand, Editor, Information Exchanne Developmental D,sabilities Program Office, 201 Oapitol Square 81dg., St. Paul, Minn. 55101.

OPW REQUESTS PROPOSALS FOR ADULT SERVICES

ProDosals requested by the DeDartment of Public Welfare (DPW) in three separate areas of adult services (livinq arranqements, homebased services and day programming) are due July 15. Contact: Carol R. Watkins, Supervisor, Adult Services Unit, Minnesota Department of Public Welfare, 4th Floor, Centennial Bldg., St. Paul, Minn. 55155. Tel. [phone].

UNIVERSITY SEEKS IDEAS TO TEACH MEOlA COMMUNICATION TO DISABLED

A prodect for communications media production for severely handicapped students at Vanderbilt IJniversity is seekinq ideas on ho~w to design a oractical, hands-on course. Prodect designers would like to receive ideas from teachers and other professionals working with severely handicapped learners to identify specific instructional needs. Share ideas by writing: Box 318, Peabody College/Vanderbilt tJniversity, Nashville, Tenn. 37203.

ADVANCE TRAINING OFFERED IN SERVICE SYSTEM PROGRAM ANALYSIS

One week of advanced Program Analysis of Service Systems (PASS) training will be o ff ered Auq. 30-Sept. 3, at the MidwaY Motor Lodge in LaCrosse, Wis. The workshop, "Implementing the Principle of Normalization: Using PASS for nrganizational Change," is oDen to people who have attended an introductory PASS workshop and want to continue their learning. Tuition for out-ofstate residents is $175, and for residents of Wisconsin, S130. For further information, contac~: Wisconsin Coalition for Advocacy, 2 Mifflin St. W., #200, Madison, Wis. Attn: Barb. Billings. Tel [phone] or [phone].

~,

. ~
 PUBLICATIONS

Down's Syndrome: Advances in Biomedicine and the Behavioral Sciences, edited by Siegfried M. Pueschel and John. E. Rynders, Cambridge, Mass., The Ware Press, 1982 (570 pages hardback, S65.). This book makes available in one place the enormous scientific advances made in the last 20 years about Down's syndrome. This two-part volume presents the latest information on the entire medical and behavioral spectrum of an individual with Down's syndrome. It is a critically important work for the researcher, medical and clinical practitioner, and professional in child development, special education and behavioral science.

Siegfried M. Pueschel, MD., with a master's in public health, is director of the Child Development Center at the Rhode Island Hospital. John Rynders, Ph.D., is professor and coordinator of special education programs at the University of Minnesota.

To purchase, contact: The Ware Press, P.O Box 397, Cambridge, Mass. 02138. Tel. (617j

SuDplement to Leeal Ri~hts of Devel~pmentally Disabledl FF-~ ons

Legal Advocacy has completed a 198Z supplement to its advocacy manual. The suDplement updates the manual by noting changes since the manual's publication in 1979. The supplement costs S2, plus 65ó for postaqe. It is available from Legal Advocacy for Developmentally Disabled Persons in Minnesota, 222 Grain Exchange Bldg., 323 4th Av. S., Minneapolis, Hinn. 55415.

The manual and supplement together are available for $5, plus $1 postage.

Communitv Services in Reion N~ne (South-Central Minnesota) is available by calling Pam Schmidt, developmental disabilities planner at [phone] or, toll-free 1 (800) 7229389.

EVENTS

July 7,

(The following course is held in conianction with the event on July 8-9 listed below)

Training course on "Computer Applications for Handicapped Individuals," at the J. F. Friedrick Center, University of WisconsinMadison. Contact: The Trace Training Course Coordinator, 314 Waisman Center, 1500 Highland Av., Madison, Wis. 53706. Tel. [phone].

July 8-9

Workshop on Science and Technoloqy for the Handicapped at the J. F. Friedrick Center, University of Wisconsin-Madison, sDonsored by the American Association for the Advancement of Science and the Trace Center. This is the first of the 1982 series of regional workshops on utilizing the engineering community to assist disabled individuals. Contact: American Association for the Advancement of Science, 1776 Uassachusetts Av. NW., Washington, O.C. 20036. Te1. ( 202 ) 467-4497 (voice/sty). Attn: Virginia Stern or Lorraine Stillwell.

July 8-11

Disability Rights Conference, Radisson Plaza St. Paul (regarding Sectinn 504 of the Rehabilitation Act of 1973 dealinq with providing equal access to federally funded services.) Contact: Disability Rights Education and Defense Fund Inc., 2032 San Pablo Av., Berkeley, Calif. 94702. (Tel. (toll-free) 1-800-227-2472, voice or TDD),

July 24-28

The annual convention of the National Spinal Cord Iniury Association will be held at the Radisson South hotel in Bloomington, Minn. For further information: Twin Cities Chapter, Spinal Cord Iniurv Assn., P.O. Box 8588, Minneapolis, Minn. 55408.

July 26-28

Special Education Leadership Institute, San Diego State University Aztec Center. For further information call: [phone] or 6115 (24-hour information service available).
 YEARNING FOR LEARNING

The state Developmental D~'sabilities Program Office has acquired several educat`Ton and training resource materials. They may be borrowed from each of the regional developmental disabilities offices and from the state program office, St. Paul. Each month, this section of OD Information Exchanqe highlights selections from these resources to provide information to potential buyers. A list of the materials may be obtained by writinq the State Oevelopmental D`'sabilities Program Office, 201 Capitol Square Bldg., 550 Cedar St., St. Paul, MN 55101.

M.W. Gold, Research Press, 1980. This 1s an overview of the "Try Another Way" training system for teaching persons who are labeled retarded. The system emphasizes a balanced relationship between learner and trainer based on mutual respect, including respect for abilities, rights, time comitment, personal preferences and feelings. The author says "The mentally retarded person is characterized by the level of power needed in the training process required for him or her to learn, and not by 1imitat`'ons in what he or she can learn. The height of a retarded person's level of functioning is determined by the availability of training technology and the amount of resources society is willing to allocate and not by significant limitations in biological patent T al." AvaTlable from the state program only.

Net=Do t 1 t" C:unc 1 T 3D Proor" TOO Ye~re Scuare 3Tdq. 7th L icbert' St. 33ut Ya 5;;31

[f U.N0E!;'~'AtLE FL:A~E lC~N 73 SEN0c,

MR. RoGER SERvANDl ~B PRO 2T1pCUL HN 55101 -

JUL ~ 'EQ

Beyond The Ordinary; The Preparation of Professionals to Educate SeYerely and Profoundly HandicaDPed Persons; Toward the Develonment of Standards and Criteria: A ComDendium of Conversations. Edited by R. Perske and J. Smith and distributed by the American Association for the Education of the Severely/Profoundly Handicapped. This book explains the need for specific competencies of trainer and trainee alike, beyond those ordinarily required of the special education profession. These guidelines are intended as a stimulus for program development and as a system of evaluation for the preparation of professionals.

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Published monthly by the Developmental Disabilit~es Program of the .:\Ietropolitan Health Planning Board

Metropolitan Council 300 N[etro Square Bu~lding St. Paul, Minnesota 50101 Toni Lippe~: 291-6364 Tom Chapel: 291-6357

METRO DD PROGRAM NOTES

Needs Assessment for Residential Proqrams Continues

An ad hoc study group of the Developmental Disabilities task force of the Metropolitan Health Planning Board/Metropolitan Council is continuing to collect data to determine the need for residential facilities for nonretarded' physically handicapped young adults. They must meet the federal definition of "developmentally disabled.'' The needs assessment seeks to identify young adults, 16 to 30 years old, ~ho may need personal care supervision and developmental programs, but not intensive medical care. The residential program would fill a gap between programs that provide 24-hour skilled nursing care and others that enable semi-independent living with help of an attendant. Such a facility will serve as a permanent home for some and, for others, a temporary residence to prepare for more independent living.

Short questionnaires have been sent to special education directors, to Camp Courage and to some consumer organizations. If you know someone who needs such a service, or work with people in this target group, call Tom Chapel at [phone] for more information.

August 1982

Yo1. 7 No. 8

Group Home Personnel Study Begins

The personnel study committee of the Developmental Disabilities task force began a two-phase survey of personnel longevity in group homes in the Metropolitan Area last month. The study seeks to identify factors that influence retention of directcare staff members. Conventional wisdom says that turnover in these positions is high, but little study has been done on this subject in Minnesota. Furthermore, no studies have been done since the onset of the recession, although bad economic conditions often decrease turnover rates, even in low-paying and lowskilled jobs.

In the first phase of the study, approximately 30 home administrators were asked to calculate their direct-care staff turnover in the last six months, to list factors causing turnover in their facilitie~ and to note recent changes. Early returns indicate that staff turnover is lower than expected, with the exception of a few parttime aide positions.

If extensive turnover is found in the first phase of the study, a sample of current and former direct-care staff members will be interviewed to determine the factors for staff satisfaction and dissatisfaction. A profile of "leavers" and "stayers" will alsc be developed to guide administrators in selecting direct-care staff.

If your facility received a questionnaire, please return it in the next few days so that analysis can begin. Call Tom Chapel at 291-6357 for more information.
 ~. ~

SERVICES

Epilepsy Leaque Plans to Increase Services

The Minnesota Epilep League is planning to increase its serv~ice in the St. Paul area. The effort will include: - Brochures, pamphlets and films on epilepsy; - Epilepsy education for schools, churches and organizations; - Self-help sessions for adults with epilepsy at the Griggs-Midway Bldg., 1821 University Av., St. Paul, on six consecutive Wednesdays, starting Oct. 13, 7-9 p.m. Volunteers are needed to serve as community contact persons. For more information, contact, Robin Lewis, 333 Sibley St., Rm. 209, Nalpak Bldg., St. Paul, MN 55101. Tel. [phone] or [phone].

In an e ff ort to raise public awareness about epilepsy, o fficials of the Minnesota Epilepsy League and Minnesota Jaycee Women will jointly conduct a two-year public education project directed primarily at educators and school children statewide.

GRANTS AND LOANS

Requests for Proposals for Crants to Improve DAC Access,bil~ty Re~ssued

Earlier this year a grant program designed to improve accessibility to Developmental Achievement Centers for mobility-impaired persons was announced by the State Developmental Disabilities Program of the Minnesota Department of Energy, Planning and Development. The limited response to that announcement made it possible to reissue the request for proposals (RfP) There are two changes from the earlier RfP:

- Applications are due Sept. 17, 1982; and The grant ratio has been increased to 75 percent of the costs up to a maximum of S15,000.

If you have questions or wish to receive a copy of the RFP, please contact Ron Kaliszewski at the State Oevelopmental Disabilities Program, 100 Capitol Square Bldg., St. Paul, Minn. 55101. Tel. [phone].

GRANTS AND LOANS (Continued)

Transportation Grants Available

Applications for federal funds to purchase vehicles for transporting disabled people will be available to private, non-profit organizations after Aug. 16, 1982. Requests for applications and eligibility requirements for Urban Mass Transit Assistance grants should be directed to Nancy Moore, Minnesota Oepartment of Transportation, 820 Transportation Bldg., St. Paul, MN 55155, Tel [phone].

Low-Interest Loans Offered bv Northwestern Bell

A new financing program for persons who need special equipment to communicate by telephone is available through Northwestern Bell. The special program offers financing up to S1,200 at six percent interest for the purchase of equipment, such as telecommunication devices for the deaf (TDDs), artificial larynxes, cordless telephones, headsets and speaking phones

To qualify for for a 70an, applicants must live in Minnesota, have a certified disability and have Northwestern Bell residential telephone service. The equipment purchased must be compatible with the Bell System network. Additional information and applications forms are available by contacting the Telecommunications Center for Disabled Customers, toll-free, 1 [phone] (voice or TDO), or by writing Northwestern Bell, TCOC, Room 142, 200 S. 5th St. Minneapolis, Minn. 55402.
 NEW _PU8LI CATIONS

The Challenqe of Disability: America's Commun~ties Respond is auLibE i]~: 57 commun~ty action for persons who are disabled. It is available from the National Office on Disability, an organization designed to promote public awareness and inter-agency cooperation for the National Year of Disabled Persons. The book presents innovative ideas and programs launched by communities, states and national organizations to address problems and issues of disabled persons. Single copies are $7.50 from the National Office on Disability. 1575 NW. Eye St., Washington, D.C. 20005.

Helpful Booklets for Parents

New materials developed by "Closer Look," a project sponsored by Parents' Campaign for Handicapped Children and Youth include:

- "One Step at a Time" a booklet by Barbara Schreiber; - "Practical Advice to Parents: A Guide to Finding Help for Children with Handicaps," by Barbara Schreiber and Cory --Moore; and "Know Your Rights and Use Them," an information paper.

Parents can obtain one copy of each document at no cost from the Dakota County Association for Retarded Citizens, [phone], or from Closer Look, Box 1492, Washington, D.C. 20013

MISCELLANEOUS

Nominations Requested

The Vocational Rehabilitation Ombudsman Project, Inc. (VROP) is seeking a sheltered worker to fill a vacancy on its operating board. The person selected must be a Minnesota resident, and will be expected to attend Saturday meetings held quarterly. Travel expenses are paid by VROP.

Interested sheltered employees, or ~thers who would be a valuable addition to ~his board are encouraged to call the VROP office co11ect. Te1. [phone] (Yoice) or (612) 6455245 (TTY). Application deadline is Sept. 18.

MISCELLANEOUS (Continued)

National Study on Respite Care in Proqress

Several hundred respite care programs nationwide are being reviewed by the Association for Retarded Citizens (ARC) of the United States. A nationwide survey has requested information on sponsorship, types of clients served, services offered, funding and family satisfaction. ARC plans to release survey result plus guidelines for establishing respite care programs in early 1983. Information Exchange will include more informat~ion on the study when it becomes available.

Maternal and Child Health Task Force to Hold Public Hearing

The Maternal and Child Health (MCH) Advisory Task Force began work in June on its legislative charge to advise the State Commissioner of Health- on maternal and child health services. To fulfill its charge, the task force seeks to learn about public and private efforts that serve the special needs of mothers and children. Your experiences and ideas about problems and established programs geared to part of this population at risk are solicited.

The MCH advisory task force invites fiveminute presentations by interested parties to be given at its Aug. 18 meeting, 10 a.m.-2 p.m. To make a presentation, indicate your intent in writing, by Aug. 11. If an oral presentation is not convenient, the task force will be pleased to receive your written statement; deadline for this ;s Aug. 18.

A written summary of your presentation is requested for the minutes. It is suggested that the summary of your program description outline the purpose of the program or agency, the clientele it serves, the geographic service area, the scope of services or activities and sources of funds. Programs and agencies previously reviewed by the MCH task force are not encouraged to make presentations at this meeting, although consumers of these ~ services will be welcome to comment on their experiences.
 . ~ ~ ~

- ~ ~

MISCELLANú0US (Continued)

Public Hearing (Continued)

For more information, contact Grace Gunmit, [phone]. Letters of Intent to make a presentation should be sent to Ms. 6umnit at Minnesota Department of Health, 717 SE. Delaware St., Minneapolis, MN 55440.

WORKSHOPS. CONFERENCES

Aug 30, 31

"Sexuality and the Mentally Handicapped" is a conference sponsored by Planned Parenthood of Minnesota, 1965 Ford Pkwy., St. Paul, Minn. 55116. Conference speakers include: an advocate from Legal Advocacy for Developmental Disabilitles, Phyllis Cooksey, director of education and training, and Ruth Markowitz, program coordinator. Both are employed at Planned Parenthood. For more information, contact Department of Education and Training, Planned Parenthood of Minnesota, at [phone].

Sept. 11

The Minnesota Committee for the Handicapped will be holding a conference on the legislative process at the College of Catherine, 9:30 a.m.-5 p.m. The purpose of the workshop is to educate members of organizations on what the legislative issues are in vocational rehabilitation, employment, special education, developmental achievement centers, and residential services. Participants will also share information about the status of s erv i ce cutb acks .

The two main speakers wil1 be Frederick Weintraub from the National Council for Exceptional Children and Gene Mammenga, fonmer state senator, currently lobbyist for the Minnesota Education Association.

Preregistration for the conference is S5 and lunch is S4. Registration at the door is S7. Deadline for pre-registration is Sept. 6. For more information, call John Sherman, United Cerebral Palsy of Minnesota, Inc., at [phone].

WORKSHOPS. CONFERENCES (Continued)

Manaqement Learning Prooram Offered

The Association of Residences for the Retarded in Minnesota (ARRM) announces that enrollment is open for its fall 1982 Management Learning Program. This ls an eight-month independent study program for managers of community programs for developmentally disabled children and adults

For more information, contact: Harold Tapper, ARRM, 459 Rice St., St. Paul, Minn. 55103. Te1. [phone].

FUTURE EVENTS

Oct. 28, 29 and 30

Minnesota chapters of American Association on Mental Deficiency, The Association for the Severely Handicapped and Association of Behavior Analysts will be hold a joint annual conference at the Sunwood Inn, St. Cloud.

With a 'What's Happening' theme, this jc'-t conference plans to explore questions a~ concerns of parents and professionals who work with people who are developmentally disabled.

Please mark your calendar for these dates. More information will be published in our September issue.

Nov 4-6

The Association for the Severely Handicapped (TASH) will hold its ninth annual conference in Denver, Colo.

Presentaions will focus on curricula and instruction design, behavior ~anagement, assessment, personnel preparation, working with families and other apsects of services to severely handicapped persons. For registration information, write to TASH, 7010 NE. Roosevelt Way, Seattle, Wash. 98115.
 ~ 1N ~ VlilYlA 1 1~1N E~Y C HA N GE STATE SUPPLEM ENT

Develoomental Disabilities Program / Dept. of Energy Planning and OeveloPment 201 Caoitol Square aldg. .550 Cedar Street

~1. raul M',~nesota SSICI Rooer St.and - 6~2/~g6-~018

McKNIGHT GRANT AWARDS ANNOUNCED

The Developmental Disabilities (DD) Program of the Minnesota Department of Energy, Planning and Development, recently announced the funding of 17 projects under two McKnight Foundation grant programs. Last January, the foundation made a three-year $300,000 grant to the state DD program. The $300,000 was divided into three $100,000 programs, two of which were awarded July 8, The two programs are for improving accessibility for mobility-impaired persons at Development Achievement Centers (DACs) and for regional problem solving.

Grants for DAC accessibility improvement were approved for the following DACs: Alpha --hoof (Albert Lea), Big Stone County DAC,

Jwn-Nicollet Counties DAC, Oevelopmenta7 Learning Center (Eagan), East Range DAC (Eveleth), Faribault County DAC, Fillmore County DAC, LeSueur County DAC, and Martin County DAC.

The following grants for regional problem solving were approved: Alternatives for Autistic People, Inc., for daytime programming for severely disabled adults; Association for Retarded Citizens-Duluth, for assisting developmentally disabled persons in the criminal justice system; Minnesota Department of Education, for interagency cooperation to identify preschool children with developmental disabilities; Freshwater-Woodland Cooperative Center (Staples), for coordination of services to developmentally disabled children from birth to four years; Northwestern Regional Development Commission (Crookston), for adult foster care; Olmsted Developmental Achievement Center (Rochester), for integration of older developmentally disabled citizens into

~ior citizen day programs; Region Nine -_velopment Commission (Mankato), for coordination of behavior management programs; and Service Industries, Inc., (Redwood Falls), for vocational training and employment opportunities.

August 1982

NATIONAL CENTER FOR LAW AND THE DEAF CLARIFIES SUPRE,ME COURT OPINION

The National Center for Law and the Deaf (NCLD) recently released an analyis paper to clarify impacts of a U.S. Supreme Court ruling in the case of Amy Rowley, a child who is profoundly deaf. The NCLD is responding to what it says are misleading press reports on the case.

On June 28, 1982, the supreme court made a decision involvinq the Education for All Handicapped Children Act, Hendrick Hudson School District vs. RowleY. Althounh the supreme court found that Rowley was receiving an appropriate education without an interpreter, the court upheld the fundamental parts of the Education for All Handicapped Children Act. T'nese include individualized instruction; sufficient support services to benefit from education; such instruction and services to be at public expense; parental involvement in development of individualized education programs; due process rights for parents; and judicial review.

The court's decision regarding this child has no direct effect on existing educational plans and programs for similar children who may be able to demonstrate that they need such services to benefit from their educational program.

Accompanying the analysis is a list of the most common questions fICLD has received about the case with appropriate answers. A copy of the analysis and the questions and answers maybe obtained from the Developmental Disabilities Program Office, 201 Capitol Square BlUg., St. Paul, Minn. 55101. Tel. [phone].


 RATIONAL REGISTRATION AND CERTIFICATION OFFERED TO WORKERS IN HUMAN SERVICES

A national system for voluntary registration and certification of mental health and human service workers will be available this year. The Paraprofessional Manpower Branch of the National Institute of Mental Health has provided support in developing the new system. A new organization, the National Commission for Human Service Workers, is being formed to operate the system.

Registration as a mental health or human service worker is intended to be a simple and inexpensive procedure for large numbers of workers to achieve basic occupational identity. It is available to any student or worker who completes the application, pays a $15 fee and provides evidence that minimal training (30 hours) and experience requirements (three months) have been met.

Certification is a voluntary, competencybased system designed to assess and certify basic mental health or human service competence. The process involves three assessments: an objective multiple-choice test; a clinical simulation exercise; and the assembly of a portfolio documenting the worker's competence.

For further information, contact Angela Holweger, Executive Director, National Commission for Human Service Workers, 615 Peachtree St., Suite 8ZO, Atlanta, Ga 30308. Tel. [phone].

PUBLICATIONS

A Difference in the Familv Livino With a . .

5~; ~ ec -: ~ild," by He en Featherstone, is a paperback published by Penguin 800ks in 1g81, that focuses on the entire family in which the disabled child is an integral part. It is "must" reading for parents and professionals. It is about fear, anger loneliness, guilt and selfdoubt, marital stress, brothers and sisters, getting and giving help, and, most important, acceptance. The author is the mother of a child with severe handicaps and her book is filled with knowledge, personal experiences and compassion. Available from most bookstores.

REPORT CLAIMS TECHNOLOGY'S POTENTIAL UNFULFILLED fOR DISABLED PERSONS

According to a recent report by the Congressional Office of Technology Assessment, "technology's great potential for aiding disabled people has not been fulfilled." The most serious problems preventing the effective use of technology, are "financing for the acquisition or use of technologies, conflicting and illdefined goals, and uncooordinated programs," the report said. The U.S. government spends 536 billion a year on social programs that support the income of disabled people. This is five times what it spends on research and development (566 million per year). Better use of technology represents a cost-effective approach toward meeting the needs of handicapped citizens, the report concluded.

"Technology and Handicapped People," Stock No. 052-003-00874-2) is available for 57 from: Government Printing Office, Superintendent of Documents, Washington, D.C. 20052.

"VESTIBULAR STIMULATION" -- A PROMISING

"When parents rock or bounce their babies, or simply carry them about, they may be benefitting their children more than they know. There is mounting scientific evidence that this kind of movement is related to the growth of motor skills in children..." These findings were recently released in Research ProQress (Spring 1982) of the John F. kennedy Center in Nashville, Tenn. Two Kennedy Center scientists, Alfred A. 3aumeister and William E. MacLean Jr., are investigating the effects of "vestibular" or inner ear stimulation on the motor development and stereotyped behavior of developmentally delayed children. Vestibular stimulation occurs in the inner ear, which helps to maintain balance and visual orientation. Such early intervention may have ramifications beyond motor development, since there is evidence in research literature that motor competence may be a necessary prerequisite for more mature cognitive functioning as well.

For more information, write: Office of Information Services, John F. Kennedy Center, Box 40, Peabody College, Nashville, Tenn. 37203.
 hEW LAW INTENDED TO PREVENT INAPPROPRIATE HOSPITAL COMMITMENTS

~~e Minnesota Commitment Act of 1982 will

, into effect Aug. 1, 1982. This new law includes many safeguards for protecting the rights of people with mental illness, chemical dependency and mental retardation. It is intended to reduce the possibility of inappropriate commitments.

A helpful flow chart was recently published by the Minnesota Social Service Assocation that outlines the process. A copy may be obtained by contacting the Developmental Disabilities Program Office, 201 Capitol Square 81dg., St. Paul, Minn. 55101.

PARENTS MONITOR GROUP HOMES

An innovative program using parents to monitor group homes was recently initiated in Michigan. A partnership was formed between the Macomb-Oakland Regional Center (MORC) and the Association for MORC, a parent advocacy group. Its purpose is to ensure the best possible care and quality services for per~uns wno are menta71y arced. For more information, write: ,~ch Taylor, Association for MORC, MacombOakland Regional Center, 16200-19 Mile Rd., Mount Clemens, Mich. 48044.

DISABILITY FILM WINS AtWARD

"There's More to Me Than '.lhat you See," a half-hour film produced by the American Lutheran Church, has received a Golden Eagle Certificate, presented by The Council on International NonTheatrical Events. Winning in the social problems documentary category, the film illustrates the physical, emotional and societal barriers faced by persons with disabling conditions. The prize authorized the film to represent the United States and American cinematography in international film festivals. The film can be rented for 515.75, plus postage, through the audiovisual department of the Augsbur~ Publishing House, 426 S. 5th St., Minneapolis, Minn. 55415. Tel. [phone].

C3NFERENCES AND WORKSHOPS

Aug. 17, 18, 19.

"Conversations '82: Our Changing Countryside" is the Countryside Council's second national conference designed to stimulate discussion about rural values, problems and public policy. To be held on the campus of Southwest State University, Marshall, Minn. Contact: Countryside Council, P.O. Box 78, Marshall, Minn. 56238. Te1. (5078) 532-9641.

Sept. 13-16

"Training Midwest '82." Trainino Magazine s first annual cont-erence and exhibition will be held at Hyatt Regency O'Hare in Chicago. This should be of interest to people involved in training and staff development in human services. For information, contact: Training Midwest Seminar Director, Conference Management Corporation, 17 Washington St., Box 4990, Norwalk, Conn. 06856.

Sept. lC-17

"Going Beyond Survival" is an advanced level educational conference sponsored by United Way's Voluntary Action Center in St. Paul. Planning and collaboration will be key themes. Registration fee of $130 includes conference materials, lodging and meals. The conference will be held at the Koinonia Retreat Center, Annandale, Minn. Contact: Vi Russell, Community Volunteer Service of the St. Croix Valley Area. [phone].

Sept. 22-24

.'The Rural Experience in Community Support Programs" will be held at the Holiday Inn, Eveleth, Minnesota, to explore how the continuum of care system fits into the rural service delivery system. Contact: Norma Schleppegrell, Range Mental Health Center, Virginia, Minn. Tel. [phone].
 YEARNING FOR LEARNING

The state Developmental Disabilities Program Office has acquired several education and training and resource materials. They ~ay be borrowed from each of the regional developmental disabilities offices an~ f~om the state program office, St. Paut. Each month, this section of D3 Information Exchanne highlights sections from these resources to provide information to potential buyers. The following selections are available from DD Regional Offices.

Effective Educational and Behavioral Prooramming for Severely and Profoundly Handicapped Students A Manual for

Teachers and Aides , Dorothy Popovich, Brooks Publishing Company, 1981. This is a practical "how to" manual that adapts behavior modification techniques to the special problems faced in teaching severely and profoundly handicapped students. Emphasis is placed on how to design individualized curricula to optimize learning. An entire chapter is devoted to aversive treatment and how to decrease inappropriate behaviors. Questions and answers for self-testing accompany each chapter.

Metropolitan Council OD Program 300 Metro Square Building, 7th & Robert Sts., St. Paul, MN 55101

IF UNDELIVERABLE, PLEASE RETURN TO SENDER

- ~ L ~8L PR C

Normalization, Social Integration and Community Services. Robert J. Flynn and Kathleen E. Nitsch (eds.), University P.ark Press, 1980. Widespread, rapid adoption of the concept of normalization has sometimes been accompanied by superficial understanding of the term, which has affected proper implementation of programs for persons with developmental disabilities. This treatise clarifies and completely updates the principles of normalization as they relate to community services. It provides systematic statments by the three most influential definers of normalization: Wolf Wolfensberger, 3engt Nirje, and Neils BankMikkelsen. Also included is a comprehensive bibliography of normalization literature.





BULK RATE U.S. Postage PAID Permit No. 7029 St. Paul, MN



 INFORMATION EXCHANGE

... .

Published monthly by the Developmental Disabilities Program of the Metropolitan Health Planning Board

Metropolitan Council 300 Metro Square Building St. Paul, Minnesota 55101 Toni Lippert: 2916364 Tom Chapel: 291-6357

METRO DD PROGRAM NOTES

MNASH Conference Set for October

A conference cosponsored by the Minnesota Association for the Severely Handicapped (MNASH), Minnesota Chapter of the American Association on Mental Deficiency and the Minnesota Association of Behavioral Analysts, is scheduled for Oct. 28, 29 and 30 at the Sunwood Inn, St. Cloud, Minn.

The conference, "What's Happening," will provide updated information for parents, service providers and the general public on new programs and curricula for persons with severe and chronic handicaps. Each sponsoring organization will have its own agenda of speakers, panel discussions and presentations of papers.

State and regional developmental disabilities programs actively support MNASH activities since they focus solely on severely handicapped persons. A membership application to MNASH and more conference information is included in this newsletter.

Notice to Certificate of Need Applicants

At the direction of the Commissioner of the Minnesota Department of Health, the certificate of need application for intermediate care facilities for mentally retarded persons (ICFs-MR) will require

September 1982 Yo1. 7 No. 9

Certificate of Need (Continued)

more detailed information. The review will include a comprehensive analysis of issues related to cost containment and long-term financial solvency of proposed ICFs-MR as well reviewing the need for such health facilities.

are advised ta

To ensure inclusion of appropriate information and data related to these criteria, current and potential developers call Metropolitan Health Plannir,g Board s~aff, Toni L,ppert (29'6364) or Tom Chapel (291-6357) prior to submitting an application. Technical assistance and direction will be provided in detail to ensure that applicants understand what information is needed to complete the Board's analysis. If this information is not included, the applications will be considered incomplete, which may cause unnecessary delay in the review process.

CEREBRAL PALSY GROUP CHANGES NAME

United Cerebral Palsy of Greater Minneapolis, Inc. is now Cerebral Palsy Center, Inc. The name change is the result of having legally disaffiliated with the national and state organizations, United Cerebral Palsy Associations, Inc. and United Cerebral Palsy of Minnesota, Inc. The disaffiliation will allow the organization to make more effective use of its resources.

Cerebral Palsy Center's programs remain the same. Programs and services will continue to be provided for children and adults with cerebral palsy and for children and adults with other physical and mental handicaps. -
 -2

T0: ALL PERSONS WORK ~ NG AND LIVING WITH HAr~n ~ CAPPE9 PEOPL E

~. FR9M: MNASH, MTNN ABA, AAMD RE: 1982 FALL CONFERENCE '.'!\ \t 6b~ OCTOBER 28-2930, 1982 ~\ 1 SUNWOOD I NN ~ [] K/~; ST. CLCUD, MINNESOTA ~ ~:

a " s - "

an~o 0~es~

CONFRONT THE CHALLENGE OF THE '80s! DEVELOP INNO\.'ATIVE AND HIGH OUALITY PROGRAMS.

THE 1982 FALL CONFERENCE SPONSORE9 BY MNASH, MIN[' ABA AND AAND IS YOUR OPPORTUNITY TO MEET THIS CHAILENGE HEAD-ON. THIS UNIQUE EVENT OFFERS A VARIETY OF PRESENTATIONS THAT WILL BE BOTH COMPP.EHENSIVE AND STTMULATING; NO ONE WTLL BE DTSAPPOINTED!

OCTOBER 28-29-30, 1982, SUNWOOD INN - ST. CLOUD,MTNNESOTA. NARK YOUR CALENDARS TODAY!

DON'T MTSS IT!

KEYNOTE SPEAKERS:

,'.~IAYNE SAI'OR, SA`~] FRANCISCC S7~.TC lIr4TAJERCTTY' TARH PRESTnENT NTLL DISCUSS SERVICE DELIVERY INCLUDING INNOVATIVE PROGRAMS AND A FEDERAL

UPDATE.

Ñ ROBERT SPRAGUE, UNIVERSITY OF ILLINOIS-URBANA, INSTITUTE FOR CHILD

BEHAVIOR AND 0EVELOPMENT - WILL DISCUSS MEDICATION RESEARCH METHODOLOGY.

.STEPHEN BREUNING, UNIVEP.SITY OF PITTSBURGH, SCHOOL OF MEDICINE- WILL

DISCUSS THE USE OF MEDICATION AND CRITICAL RESEARCH FINDINGS.

Ñ JERRY MARTIN, SUNLAND CENTER-FLORIDA - WILL DISCUSS ISSUES RELATED TO

LIMITATIONS ON HABILITATION.

TOPICS WILL INCLUDE RESEARCH FINDINGS, POLITICAL AFlD LEGAL ISSUES, SERVICE DELI'/ERY INNOVATIONS AND ADVOCACY APPROACHES IN THE FOLLOWING AREAS:

MEDICATION

CURR!CUL'IM

BEHAVIORAL INTERVENTION

COMMU 'ICATION

FA;1ILY SUPPORT

;.~`ONFERENCE FEES:

SEX EDUCATION

EARLY C~!'DHOOD

VOCATIOrlAL PROGRAMS

COMMU;lIT! LI`,ING AND MORE!

REGULAR $15.00 STUDENTS S2.00 PRE-REGISTRATION DEADLINE IS OCTOBER 15, 1982.

FOR MORE INFORMATION AND PRE-REGISTRATION MATERIALS CONTACT: BOB TEELING,ROSEVILLE PUBLIC SCHOOLS - 1910 W. CO. RD. B. ROSEVILLE, MN 55113 TEL: [phone], X317

DAILY $10.00
 ' 7"'^~ :: ~ ~::~

-

-3- . I ,APPLICAllON MINNESOTA A~I.ATI~ F~ ~E ~'t H~DI~PF~ .;

A UQ~Ue p~ouo with a un~quz pu~po~e . . . The Minnesota Association for the Severely Handicapped (.~NASH) is your opportunity to take part in 1aunching a new organization.

-As a member of the state chapter of TASH you will be part of a unique group with a unique purpose, made up of parents and professionals working together, bound by a commitment to advocacy and quality progra~s. Be a leader! Act now! Use this chance to develop an organization whose identity will be tailored to the needs of Minnesota's citizens with severe handicaps.

i iViNA-SH ;

FO:EXTIAL MNASY. KEM9E?S INCLUDE:

Ñ P~rents and Ad.~ocates . School Perso.nel _ Vocational und ~ork Activi y ?er~onn-1 , D~y Progreo 0d Residential Sta.'

College and 'lniversity Feculcy and S~ud

u:ASH of'~rs ~:-e foe La~ing ~mbe-sAips:

XNASH HEXEEFS~UL~ EENZEIS5 INCLUDE:

! e Reduced reSistration at ull F~'ASN _on'erences and workshope

e All votine privilecges in ~:ASH -

Ñ Opportunlty to hold of~ice anc be on tClASN Governinz 30ard ~ Access to all .~YASH infor~natlon ;~::d resources

. . _ ~ype F-e Cri:er'.a 3enef.'s Ñ~-gular 37.50 ::ust nold ?`egul~r .~e~bership in TASH All ~3r-nt S4.CC 2'us- be parent o. handic~pped child and All hold ?~rent .~er.bership in ~AS'M S~.~dent/ ~~-aprofess_cn--' 3~.00 dust ;no!^ 3tudent/?aroprofes,ional All -.e.-be-ship ''n TASF.

.'.''il~ate 57.50 Addi.iona. fee ~or TASH Ne'~sletter Al2-not elig'2ble subscription fo~ Go~erning co=.d

Home Accr-ss: -

_. . ' ~ Ñ~ 7; ~ Ñ Dh~n D -

Date:

Check ~-.' of ~he .ollowlng 'ma. ',ndica.e your involvemen' ~i:h persons ~i- -evere handicaps:

?aren~ 3ay ?.-~-~.s ?.esioent.al ?-rsonnel CollegelUniversity ;~centCollege,'.'ni;ersi'y Fac~i~y O~her (Please specify)

, - ,

?lease c:n-ck ~he appropr,~a_e membership category:

?.e~ul-. 37.50 Ñ . S'.udent/Parapro~essional ^-~.CO

Sc".ocl ?-r,onnei locationalfYork Activ ~y ?-~sonnel

?aror.~ ,4.oc

Af.iliate

Ñ;ake checks payable to the MI~lESOTA ASSOCIATION FOR THE SEVERELY HANDICAPPED (~NASH)

Send application and check to:

Neil Doughty MNASH Membership Chairperson 113-8th Avenue North Hopkins, .~linnesota 55343 [phone]





 -4-

RESPITE CARE FOR HANDICAPPED CHILDREN

Starting in September, St. David's Oay Activity Center, 13000 St. David's Rd., Hopkins, will o ff er respite care from Monday through Friday, 12:30-5:30 p.m., for handicapped children age six months to seven years. Cost is S1.25 an hour for each child. For more information, call Marilyn Bloom at [phone].

GRANTS

Education 6rants Announced

The federal Oepartment of Education has announced grant funding for projects in studentinitated research, technology and school-based research.

Student-initiated research prodect grants will be made to colleges and universities for students who initiate and direct research projects on the education of handicapped persons. The application Jeadline; are Sept. 1 for the f'rs~ ;ycle and March 17, 1983, for the second. Grants will average S8,333.

Technology proJect grants are to support proJects on the use of technological devices and systems in schools and by students who are handicapped. The application deadline is Sept. 15. 6rants will average S50,000.

School-based research proJect grants are based on data from school records used to focus on issues relating to the education of handicapped persons. The application deadline is Sept. 15. Grants will average $45,00.

The amount of current funding and number of grants for each program has not been determined.

For more information, contact: Max Mueller, Research Projects Branch, Special Education Programs, Department of Education, 400 Maryland Av. S.W., Washington, D.C., tel. [phone].

GRANTS (Continued)

Grants awarded by Foundations

Some foundat~ons award grants on a percentage basis. For example, during 1980, the 8enedun Foundation in Pittsburgh, Pa., awarded 12 percent of its total grants to proJects falling under the category of ~handicapped.~ The Frueauff Foundation in New York awarded six percent of its total grant funds for such purposes and the Edwards Memorial Trust in St. Paul, Minn., awarded 31 percent of its grant funds to such programs.

For further information, contact: Claude Worthington 8enedum Foundation, 223 4th Av., P1ttsburgh, Pa. 15222; Charles A. Fruew ff Foundation, Inc., 70 Pine St., New York, N.Y. 10005 or the Edwards Memorial Trust, c/o First Trust Company of St. Paul, W-535 First National Bank Bldg., St. Paul, Minn. 55101.

This ~nfor~ation i; from Supple~ent Nc. 45, Federal Programs Advisory Service, Washtngton, D.C.

SERVICES

The Family Tree Needs Information

The Family Tree, a clinic specializing in reproductive and gynecological services is asking disabled persons to fill out a questionnaire to determine whether the clinic's medical service area should be made handicapped accessible.

The clinic, 1599 Selby Av. in St. Paul, currently offers a sexuality education program for disabled people and their families.

For more information, or to request a :questionnaire, call Debbie Rechner at (612) 6450478.


 -5-

PUBLICATIONS

A Handicapped Child in Your Home, Children's Bureau. This publication speaks of adjustments necessary for parents of severely handicapped chi1dren, but also of the rewards for a family facing this task. Single copy free from: Library Statutory Distribution Service, Dept. 76, Washington, D.C. 20401.

All Children Grow and Learn:_ Activities for Parents of Children with DeveloDmental Problems. Deborah Spitalnik, Irving Rosenstein, eds. This publication is a simple and clear explanation of developmental delays as well as activities to keep children learning daily living skills. Available for S1 from: temple University Developmental Disabilities Center, Ritter Annex, Philadelphia, Pa. 19122.

Helpinq Mentally Retarded Infants Learn. A resource guide for parents that provides an overview of infant learning and describes books that would be helpful to parents in home activities. Cost: S.70, which includes postage. Available from: Association for Retarded Citizens National Headquarters, 2501 Avenue J, Arlington, Tex. 76011.

New Directions for Parents of Persons y2S:~:jieO~rJed, Rober i~Ib;~-~-publicadFiiFcb~~~deals simply and honestly with parents' feelings and conveys a philosophy of acceptance that should be helpful to any parent. Cost $1.95. Abingdon Press, 2018th Av. S. Nashville, Tenn. 37202.

Accessibilitv List of Meetinq and Lodginq Facilities in Minnesota

State law requires that meetings and conferences, sponsored in whole or in part by the state, be conducted in facilities accessible to disabled persons. The Minnesota State Council for the Handicapped has developed a listing of those places meeting current state specifications on barrier-free design.

PUBLICATIONS (Continued)

For a free copy of this list, contact Susan Laso ff at the Minnesota Council for the Handicapped, 208 Metro Square Bldg., St. Paul, Minn. 55101. Tel. [phone].

Legal Richts Supplement

Legal Advocacy has completed a 1982 supplement to its advocacy manual, Lenal Riqhts of Developmentally Disabled ersons.

The supplement updates the manual by noting changes that have occurred since the manual's publication in 1979.

To order the supplement, send a check for S2.65 (S2 for the supplement, 65ó postage) to: Legal Advocacy for Developmentally Disabled Persons in Minnesota, 222 Grain Exchange Bldg., 323 4th Av. S., Minneapolis, Minn. 55415. To order the original manual and 5upp 1 ement, send a check for S6 (this includes postage).

GREETING CARDS _

The Association for Retarded Citizens, (ARC) Dakota County, will again have Christmas cards for sale. They will sell for S6 for a box of 25.

Volunteers are needed to help sell the cards. Persons who can display the cards or a color brochure are asked to call Marianne at the ARC office. Tel. [phone].

A catalog of Christmas cards is available from Courage Center. Contact the Center at 3915 Golden Valley Rd., Golden Valley, Minn. 55422. Tel. [phone].



 Ñ--~ A ~-~ ~ ;~;~ ~

-6-

MISCELLANEOUS

Professional Certificatlon Available

The first people to meet certification standards estabilshed by the American Quallfled Mental Retardatlon Professlonals Assoclation (AQMRPA) have received thelr certificates. Certificatton Is based on relevant education, tralolog and experience the field of mental retardation.

The purpose of AQMRPA Is to determine If a person's quallficatlons are adequate to enable him or her to provide professional, programmatic services to persons with mental retardation or sim11ar disabilltles.

Certificatlon fees are S52 for the first year and S35 for each year thereafter. Annual renewal of certification requires evidence of completion of at least 30 hours of applIcable training or Inserv1ce work.

Eligible persons are those employed in residential facilities, agencies or offices dealing with mental retardation or other areas where professional knowledge, abilltles and skills about the nature and program needs of mentally retarded persons are needed.

For more Informatlon, contact Jerry Walsh, Box 393, Ylctorla, Minn. 55286. Te1. [phone].

Fun^ina Cutbacks Cancel Proaram

Fur':ing cutbacks have ended the Citizen Advocate Development Recruitment and Evaluation Program (CADRE), a program for developmentally disabled people Involved with the criminal Justice system.

John Mackey, former CADRE proJect advocate Is currently Involved In crime prevention training for group home residents and staff. He can be reached at 874-6650. The former proJect d1rector, Sharon Southard, is working for the Minneapolis Crime Prevention Center, 310 4th Av. S., Suite 100, Minneapolis, Minn. 55414. Tel. [phone].

CONFERENCES, WORKSHOPS

Oct. 9

"Computer Power for the Hearing Impalred" is a conference that will focus on the use of home computers for education, personal use and telecommunication for persons who are hearlog Impaired and their families.

It will be held at the Hennepin County Yocational Technical Institute, South Campus, Hwy. 169 and I-494, Eden Prairle, Mlnn. Pre-registration deadline is Sept. 20.

For Information on costs, or to receive a registration form, contact: Tom Karnowskl, 4532 N. Oouglas Dr., Crystal, Minn. 55422. Tel. [phone].

Oct. 28-30

The conference is cosponsored by the Mlonesota Association for the Severely Hand 'capped , M1 nne wta Chapt~r of the American Association on Mental Deficiency and the Mlunesota Assoclation of Behavioral Analysts. See item on page 1.

FUTURE EVENTS

The Associatlon for the Severely Handicapped (TASH) will hold Its ninth annual conference In Denver, Colo.

Presentatlons will focus on curricula and ~nstruction des1gn, behavior management, assessment, personal preparation, working with families and other aspects of services to severely handicapped persons. For registration Information, write to TASH, 7010 NE Roosevelt Way, Seattle, Wash. 98115.

-


 ADDITIONS DD TO RESOURCE LIBRARY September 1982 (Hours: 8:30-5 p.m. - For use in Library only)

DEINSTITUTIONALIZATION

Wisconsin's Residential Continuum: Four Case Studies Wisconsin Coalition for Advocacy Newsletter, (WCA) July 1981.

The history of residential services which emerged in the 1970's to promote deinstitutionalization from the State Centers.

FINANCIAL ISSUES

Final Report and Recommendations of the Governor's Task Force on Health are. cto er .

Contains recommendations of the Task Force on Health Care that was appointed by Governor Albert H. Quie and provided for by the Minnesota Legislature in May 1981. The official charge and the recommendations of the task force are included in the report.

Can Wisconsin Afford Institutions, Wisconsin Coalition for Advocacy Newsletter (WCA). April 1981.

This newsletter examines the proposed 1981-83 biennial budget for Wisconsin, and how the budget has been shaped by an impending financial crisis and how its provisions will affect disabled people who do not live in institutions.

Fiscal Crisis: Danqers and OPPortunities, Wisconsin Coalition for Advocacy Newsletter (WCA) February 1982.

An examination of the dangers to programs for people with disabilities, at the federal, state and county levels because of rising costs from inflation, growing pressure to cut taxes and reduced revenues from the economic recession.

NEEDS ASSESSMENT

Service Recommendations and Needs Assessment of the Deaf-Blind Population of M'nnesota, Department of Public Welfare, July 1982.

An assessment by the Department of Public Welfare of the human services currently available to the deaf-blind population in Minnesota, and recommendations to improve the service availability and coordination.
 RESIDENTIAL SERVICES

When Does Care Become Incarceration? Wisconsin Coalition for Advocacy Newsletter (WCA). January 1981.

In early 1981 WCA completed a study cailed Life in Limbo which examined the ways in which the environment of nursing homes affects the capacity of persons who are developmentally disabled to have a valuable and contributing life in the community. This newsletter examines the study.

Report on Private Residential Care for MentallY Retarded Pertcus: O~g i,> from 1972-74. National Association of Private Residential facilities for the Mentally Retarded.

A national study of out-of-home living arrangements for people who are mentally retarded. Originally conceived as an effort to document what was occurring in large, private residential programs serving people who were mentally retarded, the study was expanded to identify each and every private, out-of-home residential program in the country that was serving one or more retarded persons.

RESPITE CARE

Demonstratinq Continua of Respite Care and Parent Training services for Families of ~ersons With Developmental Disabilities - A Co-operative/University Service Agency Program United Cerebral Palsy Associations Inc., New York. Oec. 1979.

Guidelines that present a model for technical assistance that can foster development of respite care programs and refinement of services with respite care functions.

VOCATIONAL TRAINING

A ReDort of the Assessment of Yocational Education Alternatives (YEA) by Means of Proqram Analysis of Service Systems (PASS). Lynn Breedlove, Terri Johnson, Wisconsin Coalition for Advocacy, March 1981.

Conclusions and recommendations of a team of nine people who visited and evaluated Vocational Education Alternatives in Madison, WI. The team used an evaluation instrument called Program Analysis of Service Systems (PASS).

Mental Retardation Services in Sheltered Workshops and Consumer Outcomes and Policy Alternatives; G. Thomas Bellamy, Larry E. Rhodes, Philip E. Bourbeau, Davi] 9. Mank, University of Oregon.

Activity Program

An appraisal of the current status of employment and related services for individuals with mental retardation who are served in sheltered workshops and day activity programs.
 1~.~1~1113LN EXt ~ A ~ GE STATE SUPPLEM ENT

Developmental Disabilities Program / Dept. of Energy Planning and Development 201 Capitol Square Bldg. 550 Cedar Street St. Paul, Minnesot a 551Ql

REGIONALIZED TRAINING FOR DO STAFFS BEGINS-THIS FALL

A comprehensive three-year staff training program will be launched this fall by the Developmental Disabilities Training Program, assisted by the 60vernment Training Service (GTS). This new program is made possible by a McKnight Foundation grant to the developmental disabilities program of the Minnesota Department of Energy, Planning and Development. GTS will provide training services under contract with the state. Kay S. Zwernik has recently joined GTS as training specialist for the project.

During the first year, workshops will be oecially designed and presented for anagers of developmental achievement centers, sheltered workshops and residential facilities. Agencies will be encouraged to participate in a series of eight management workshops. Managers will complete a self-assessment of their organizations, using a workbook provided as part of the project. In addition, follow-up consultation is planned.

The first workshops will be presented in northwest and southwest Minnesota. Delivery will then be expanded to the remaining regions. "Regionalization will help to minimize participants' travel costs and time away from the job," said Zwernik.

The second phase of the program will provide training for direct care staff and will also be delivered on a regional basis.

For additional information, contact: Kay S. Zwernik, GTS, Suite 202, Minnesota Bldg., 46 E. 4th St., St. Paul, Minn. 31. [phone].

Roger Strand - 612f296-4018

September 1982

STUOY SAYS: GROUP HOMES DO NOT AFFECT PROPERTY VALUES

Changes in property values are not related to the presence of a group home on the block. This was one of the major conclusions of a recent study conducted by the developmental disabilities program of the Department of Energy, Planning and Development. The report, "An Analysis of Minnesota Property Values of Community Intermediate Care Facilities for Mentally Retarded (ICF-MRs)," is number 11 in the Policy Analysis Series' Issues Related to Welsch vs. Noot (July 1, 1982).

The study confirmed results of earlier resea ch in Minnesota ar,d in other parts of the U.S. on the impact of group homes on surrounding neighborhoods. It also looked at any marked increase of buying and selling of surrounding homes before and after group homes were established in a neighborhood. "Neither the number nor the timing of property transactions in a neighborhood has anything to do with the establishment of a group home," the report said.

Results were based on the study of a random sample of 34 group homes and their neighbors throughout Minnesota. Such findings may be particularly helpful to future group home developers to allay fears and misconceptions commonly expressed by potential neighborhood opponents.

The property value study will automatically be sent to those on the Series mailing list. Or it may be obtained by contacting: Developmental Disabilities Program O ff ice, 201 Capitol Square Bldg., St. Paul, Minn. 55101. Tel. [phone].


 ~>

THINK WINTER--THINK SKI FOR LIGHT INTE2NATIONAL

Applications for the ninth annual "Ski for 'ight International" at Telemark Lodg , Cable, Wis., are due Nov. 15. Ski tor Light ls a week-long program (Feb. 27-March 6, 1983) designed to introduce visually impaired and other physically disabled adults to crosscountry skiing. For further information, write: Healthsports, Inc., 1455 W. Lake St., Minneapolis, Minn. 55408.

INFORMATION ON DISABLED PARENTS NEEDED

The North Coast Regional Center in California seeks information concerning children who have developmentally disabled parents. If anyone has knowledge of any research or written materials on this subJect, or is aware of support groups for developmentally disabled parents, please contact: Grace L. Brown, Counselor, North Coast Regional Center, 808 E. St., Eureka, Calif. 95501. Tel. t707) 445-0893.

"PLANiS FOR PEOPLE" MAY MEAN JOBS FOR PEOPLE

nPlants for People" is a new national project to find Jobs in horticulture for disabled persons, announced by the National Council for Therapy and Rehabilitation through Horticulture. Representing human service organizations and horticulture businesses, council president, Kenneth T. Stoutamire said, "We feel that the horticulture community can train and hire disabled Americans in good stable jobs. It is the council's hope that the horticulture industry will embrace this concept and support the project fully and enthusiastically." A national public/private sector partnership is proposed to guide and direct the e ff ort.

For further information, contact: National Council for Therapy and Rehabilitation through Horticulture, 701 N. St. Asaph St., Alexandria, Va. 22314. Te1. [phone].

~_] ~ SPECIAL EDUCATION RULES

In response to proposed rules by the U.S. Department of Education about special education, the Parent Advocacy Coalition for Educational Rights (PACER) will sponsor three informational meetings in the Twin Cities in September.

"Ifspproved, the proposed revisions would entail significant changes in special education procedures and in the parental role,~ according to the

codirectors of PACER Center, Paula _

Goldberg and Marge Goldberg. "It is important that parents become informed about what the changes involve. The public will have until Nov. 2 to make their views known by writing letters to Washington,~ said Paula Goldberg.

The meetings will be similar in content, so it would not be necessary to attend more than one session. Dates and locations are as follows:

- Friday, Sept. 10, 9 a.m.-12 p.m., McRae Park 81dg., (across the street from the PACER off i ce at 4701 Chicago_ Av., Minneapolis, - Wednesday, Sept. 22, g a.m.- 12 p.m.McRae Park Bldg.; - Wednesday, Sept. 29, 7-10 p.m., St. Paul Vocational Technical Institute auditorium, Marion St., St. Paul.)

For more information on the meetings or the proposed rules (P.L. 94-142), contact: PACER Center, 4701 Chicago Av. S., Minneapolis, Minn. 55407. (Tel. [phone]).
 PUBLICATIONS

in UPdate on the Medicaid Home and Community Care Waiver Authority. This is a fact-filled report about the many developments that have occurred during the first half of 1982. The report particularly concerns the implementation of Title XIX waiver authority, provided in the Omnibus Budget Reconciliation Act of 1981 (P.L. 97-35). The statutory aim of this new authority is to help states circumvent existing statutory requirements that prevent Medicaid funding of noninstitutional services for elderly and disabled persons who otherwise would require care in Title XIX certified institutions. Minnesota has not yet utilized this waiver as an alternative for funding community programs.

The Update and the original December 1981 report are available for S10 each from the National Association of State Mental Retardation Program Directors, Inc., 113 Oronoco St., Alexandria, Ya. 22314.

Jorking with the Developmentally Disabled Person and the Family: A Manual for Instruction of the Homemaker-Home Health Aide. Soon to be released, this curriculum addresses the training needs of those who provide respite services for persons with developmental disabilities and their families. This is a sequel to a previously published document Basic Traininq Curriculum and Teachinq~lIFFTe by the same author. Contact: National Council for Homemaker-Home Health Aide Services, Inc., 67 Irving P1., New York, N.Y. 10003. (Tel. [phone].)

The Mental DisabilitY Law Reporter has recently expanded its coverage to include legal topics of concern to physically disabled as well as mentally disabled persons. Subscriptions to this bimonthly journal are $50 per year ($40 for public defenders, legal aid and poverty law offices and nonlegal client protection programs). Contact: Commission on the Mentally Disabled, American Bar Association, 1800 NW. M St., Washington, .C. 20036. (Tel. [phone].

EVENTS

Sept. 11.

"SOS-Save Our Services; How You Can Fight the Cutbacks," a workshop sponsored by the Minnesota Committee for the Handicapped (MCH), will be held from 8:30 a.m.-4:30 p.m. at the College of St. Catherine, 2004 Randolph Av., St. Paul, (St. Joseph's Hall - Marion Lounge). Frederick Weintraub from the National Council for Exceptional Children will present "The Washington Scene--More Disasters Ahead." For registration, contact: MCH, c/o United Cerebral Palsy of Minnesota, S-233 Griggs-Midway Bldg., 1821 University Av., St. Paul, Minn. 55101.

Nov. 5-7

"The Challenges of Down's Syndrome" is the 10th Annual Down's Syndrome Congress Convention to be held at the Conrad Hilton Hotel in Chicago. Contact: Down's Syndrome Congress, 1640 W. Roosevel, Rd., Chicago, !ll. 50608. Tel. [phone].


 YEARNING FOR LEARNING

The state Developmental Disabilities Program Office has acquired several education and training and resource materials. They may be borrowed from eac~ of the regional Developmental Disabilities offices and from the state i program o ff ice in St. Paul. Each month, this section of DO Information I Exchange highlights selections from these resources to provide information to potential buyers. The following sel~ctions are available from DD Reqional Offices.

Services for Persons with Di~od9DEFFTiT? T6~i Excellence-. Tony Apolloni, Joanna Cappuccille and Thomas Cooke (eds.) University Park Press, 1980. Programs and experiments described in this paperback book provide a broad review of residential alternatives to state institutions for persons with developmental disabilities. Several contributing authors identify major problems and opportunities from their "real world" experiences in California, Michigan, Nebraska, Pennsylvania and Canada. Although the content originated from a 1977 conference held in Pomona, Calif., the enthusiasm and ideas expressed still have great relevance to those who share the common goal o~ creating and maintaining wholesome living environments in community settings for people labeled as being "developmentally disabled."

Metropolitan Council DD Program 300 Metro Square Building, 7th ~ Robert Sts., St. Paul, MN 55101

IF UNDEilVERABLú, PLEASE RETURN TO SENDER

MR. ROGER STRAND STATE PLAN DEV DISA8 PRO 201 CAPITOL SQUARE BL ST PAUL MN 55101

Leisure Programs for Handicapped Persons: Adaptations. echniques and Curriculum, Paul Wehman and Stuart Schleien, University Park Press, 1981, This paperback manual covers sequenced activities, instructional techniques and over 100 sports, games and hobbies in task analysis format. It can be used by anyone involved in planning effective leisure-time curricula for people with handicaps. Data-based case studies demonstrate the validity of selected skills. Emphasis is placed upon ageappropriate activities that encourage integration of handicapped with nonhandicapped persons and independent utilization of community recreational facilities. The manual also is recommended in work~rg w-,th pecFle w,th severe handicaps, to encourage participation and avoid exclusive reliance on sedentary leisure activities.

BULK RATE U.S. Postage PAID Permit No. 7029 St. Paul, MN
 r~ INFORMATION ~, EXCHANGE ~_1

OCT ~ ~ t~

. ,~ ~

Publishec' monthly by the Developmental Disabilities ProgTam of the Metropolitan Health Planning Board

hletropolitan Council 300 Metro Square Building St. Paul, Mi~nesota 55101 Toni Lipper~: 291-6364 Tom Chapel: 291-6357

METRO DD PROGRAM NOTES

DD Program Announces Work Planned For Fiscal Year 1983

The Metropolitan Council's Developmental Disabilities (DD) work program will have two major objectives for fiscal year 1983. They are: to develop strategies to cope with reduced government assistance and to maintain service capacity to meet identified need of the Twin Cities Area's DD residents.

Because traditional government programs have been cut back, the Metropolitan Council's ~ program will:

-Assist service developers to obtain alternate resources through the private sector; - -Help counties secure more stable funding and improve administration of services;

-Help consumers obtain more in-home family support services.

The Council's DD program will collect need assessment data, publish information on new services, hold training workshops and participate in developing new, costeffective services and appropriate policies and regulations.

The program's objectives for fiscal year 1983 (October 1982 through September 1983) are to:

1.Secure alternate resources for DD

-Establish contacts and joint actions with private sector donors (foundations, corporations, United Way, churches, civic organizations, etc.) to further DD goals consistent with the Council's Metropolitan Development Guide ;

October 1982 Vol. 7. No. 10

-Assist applicants to obtain private sector funding by providing informational packets, data, research and a workshop on proposal-writing techniques; and

-Assist local counties and DD consumers to obtain increased and more stable funding for residential, day and inhome family support services through changes in state and county legislation, policy and administration.

2.Ensure accessibility to quality services:

-Provide timely information on DD program to DD consumers, families and professionals through the DD newsletter, information and referral, the DD resource and curriculum libraries and public information sessions; and

-Improve service quality through provider and consumer education/training sessions and meetings with other Minnesota DD regional programs; and

-Respond to proposed service development, policy, legislative and regulatory change and initiate opportunities to participate in research and policy development with public and private agencies to achieve decisions consistent with the Council's Metropolitan Development Guide.

3.Implement DD Program effectively

-Complete management tasks, including personnel supervision/training, progress and budget reports, support for Council, Health Planning Board, DD Task Force.

-Renew grant by developing approved work program and budget.
 Metro DD Program Notes (Continued)

DD Task Force Memberd Names

The Developmental Disabilities Task Force has announced its members for fiscal year 1983. Following members' names the letters "6P" mean general public, "C" means consumer and "P" means provider. The members are:

Kathryn Beebe, Chair - GP Kay Zwernik, Vice-Chair - P Carolyn Anderson - P Jay Bischoff P Harold Booker - C Mary Busch - GP Michele Ellis - P Diane Fleetham - C Bernadette Hughes C Dennis Johnson - P Ramona Jung - P Barbara Kaminski - C Nancy Ledin - C Mary Libera - C Dr. Dennis Matthews - P Al Oertwig - P Sharon Sayles - C Eileen Schmokel - C Joan Schoepke C - Katherine Schultz - P Deborah Skwarek - C Richard L. Stroncek - Sally Swallen - C Robert Teeling - P Linda Ting - C

Regional DD Curriculum Libraries Listed

Note: Books from the Developmental Disabilities Curriculum Libraries may be borrowed from DD libraries in the region where the reader resides. In the Metropolitan Area, books must be checked out in person. Outside the Area, please contact the closest regional office from the following list:

Northwest Re~ional Development Commission 425 Woodland 4v. Crookston, Mi~n. 56716.

Arrowhead Regional Development Commission 200 Arrowhead Place, 211 W. 2nd St., Duluth, Minn. 55802.

Libraries (Continued)

Region 5 Development Commission 611 Iowa Av. Staples, Minn.56479.

Region 6E Regional Development Commission 333 W. 5th St., Willmar, Minn. 56201

East Central RDC 119 S. Lake St. Mora, Minn. 55051

Southwest Regional Development Commission Box 26S Slayton, Minn. 56172

Region 9 Development Commission 410 S. 5th St., Mankato, Minn. 56001

SE. Minn. Development Disabilities Project Box 4, Court Sq. Mall 132 St. Anthony Preston, Minn. 55965.

MISCELLANEOUS

Partners of the Americas Project

The Partners of the Americas Project (PATH/Americas), funded by IBM Americas/Far East Corporation, is establishing five resource centers in the United States. They are intended to promote disability prevention and rehabilitation in 21 Latin American counties and the Caribbean. The centers, located in the states of New York, Oregon, Idaho, Colorado and Minnesota, are seeking technical assistance to locate or create low-cost approaches to disability prevention. The centers also seek to provide teachers with methods and materials to educate handicapped students and to encourage families to work at home with their children to help them develop more rapidly.

For more information about the project, or to offer assistance, contact: PATHIAmericas, 2001 NW S. St., Washington, D.C. 20009. Tel. [phone].
 MISCELLANEOUS (Continued)

`'ow Badge for Boy Scouts

the Boy Scouts of America (BSA) have created a Handicapped Awareness merit badge in an effort to acquaint the public with needs of persons who are mentally or physically handicapped. Requirements for earning the badge include: learning about training and employment of handicapped persons; studying literature about accessibility of public and private places and working with handicapped persons for 15 hours during a three-month period.

Parents of scouts are encouraged to call their local scoutmaster to see whether or not the badge is being offered. For more information, call Kent York, Indian Council BSA at (612) 2241891.

Information Requested

A doctoral candidate in educational psychology at the University of Minnesota is studying the coping patterns of mothers of children with physical or mental ~isabilities and their adjustment to their ildren. Mothers of children up to six years of age are being sought for the study and will be asked to respond to four questionnaires. Each mother who completes and returns the questionnaire will receive a $5 thank-you gift. All replies will be confidential.

Mothers interested in participating in the study may send their names and addresses to Judith R. Thompson or Dr. Dewey Force, 253 Burton Hall, 178 SE. Pillsbury Dr., Minneapolis, Minn. 55455.

Homecrafter Gifts for Sale

Courage Center Homecrafters gifts created by artisans with physical disabilities will be available at the following shopping centers:

Southdale - Oct. 11-16, Brookdale - Oct. 25-30; and Rosedale - Nov. 1-6.

A variety of handcrafted toys, clothing, woodcrafts and other items will be splayed.

Homecrafter Gifts (Continued)

Courage Center Homecrafters is a nonprofit program that teaches craft skills to homebound people with physical disabilities and then markets the items they produce.

For information, call Gina Kugler at [phone].

BOOKS, PUBLICATIONS

"The Model Act for the Adoption of Children with Special Needs, Accompanied by SectionbySection Comments and Analysis" is a 54page document published by the National Committee for Adoption. This publication is intended to help state legislators, adoption advocates and others to study the model act for the adoption of children with special needs. It has been issued by the federal Oepartment of Health and Human Services. It costs $6 a copy ($5 for 10 or more) and is available from: The National Committee for Adoption, Inc., Suite 326, 1346 Connecticut Av. NW., Washington, D.C. 20036.

"The Handicapped Funding Directory" has been revised and updated. This third edition lists more than 500 corporations, foundations, government agencies and associations that fund programs and services for handicapped persons. Also included are guidelines on obtaining grants, addresses and directors of state agencies for the handicapped and a bibliography of grantfunding publications. Copies are available at $18 each from: Research Grant Guides, P.O. Box 357, Oceanside, N.Y. 11572.

SERVICES

Family Enrichment Program Offered

Gillette Children's Hospital has started a program to provide support and information to families of children with disabilities, ongoing medical concerns or behavior problems. This program is open to parents, and other interested family members.

Gillette staff members who specialize in
 Gillette Program (Continued)

working with families of children with handicaps will lead participants in classes and small group discussions. Topics include information about specific disabilities, how to communicate with family members as well as with professionals, and how to manage stress and child behavior.

A special support and information program for families with a child who has epilepsy is also available.

For costs and more information, contact Norma Kirchner, Family Services secretary, Gillette Children's Hospital, 200 University Av. E., St. Paul, Minn. 55101. Tel. [phone].

Volunteers Needed

The Association for Retarded Citizens-Dakota County, is seeking volunteers to assist with their fall 1982 recreation programs. Anyone who has a sincere interest in assisting people who are mentally retarded to develop their full potential to enjoy leisure time opportunities, should contact Mike Carlson at [phone].

To obtain more information about the fall programs, call Gail Colton at 457-2588.

CONFERENCES, WORKSHOPS

Oct. 9-10

The state fall meeting and family camp of the Spina Bifida Association of Minnesota will be held at Camp Courage in Maple Lake. Activities will include a short business meeting and election of state officers. Afterwards there will be activities for all family members and a picnic.

For more information, contact Pam Schleeter, 16610 NE. Madison St., Ham Lake, Minn. 55303. Tel. [phone].

Conferences (Continued)

Oct. 20

"Grantmanship for Beginners" offers basics in proposal writing, exploration of funding resources and a sample funding search. This seminar will be held at the Minneapolis Public Library, 300 Nicollet Mall. Registration fee is $10. For more information or to register, call the Minnesota Council on Foundations at [phone].

Oct. 21-24

The National Conference of the Epilepsy Foundation of America (EFA) will be held at the Hyatt Regency Hotel, Kansas City, Mo. For information, contact: Chic Dambach, EFA National Conference, 4351 Garden City Dr., Landover, Md. 20785. Tel. [phone].

Oct. 28-30

The Minnesota Association for the Severely Handicapped (MNASH) Conference will be held at the Sunwood Inn, St. Cloud. Deadline for registration is Oct. 15. For more information, contact Bob Teeling, Roseville Public Schools, 1910 W. County Rd. B., Roseville, Minn. 55113. Tel. [phone], Ext. 317.

FUTURE EVENTS

Nov. 10

"Staff/Volunteer Teams: Maximizing Agency and Community Resources.'' Conference topics will include the "new mandate" for volunteering and its implications for the delivery of social services, the motivation for volunteering and the role of staff in working with volunteers. The conference will be held at the Earle Brown Center on the St. Paul campus of the University of Minnesota. Cost is $51. For more information, contact: Shirley Zimmerman at (612) 3735831.
 STATUS REPORT OF SIX-YEAR PLAN FOR PEOPLE WHO ARE MENTALLY RETARDED RELEASED

The State Department of Public Welfare (DPW) released a draft status report of the sixyear plan to help people who are mentally retarded. The report by the mental retardation program of DPW outlines:

- Priority areas for 1983-85 legislation;

- Requirements under Welsch vs. Noot consent decree and subsequent court orders; and

- The state commissioner's obligations to propose measures for implementation of the consent decree to state governor for submission to the Legislature.

"The list of issues is not particularly long, but the items on the list are central to efforts of compliance (with the consent decree) and by that fact, are extremely critical," the report stated.

The issues address:

Funding of development achievement centers (described in the report as "the most vexing problem"); Need for expansion of semi-independent living services (SILS), "the only viable cost-effective alternative to the more expensive intermediate care facilities"; and Need to expand sheltered work and work activity slots, in order to relieve the burden on developmental achievement centers.

1 NED.~110N E\~A~G~ STATE SUPPLEMENT

Developmental Disabilities Program / Dept. of Energy Planning and Development 201 Capitol Square Bldg. 550 Cedar Street St Paul, Minnesota 55101

Roger Strand - 612/296-40t8

October 1982

STATUS REPORT (Continued)

For more information or copies of the final report, contact: Ardo Wrobel, Director, Mental Retardation Program Division, Department of Public Welfare, Centennial Office Bldg., St. Paul, Minn. 55155. Tel. [phone].

PRINCIPLE OF NORMALIZATION MISUNDERSTOOD, AUTHOR SAYS

"The principle of normalization has been misunderstood for too long," declares Burt Perrin in an article titled "Misconceptions of Normalization," Mental Retardation. Summer, 1982. "In some cases it has been misinterpreted so perversely as to produce implications and programs directly opposite to what is meant by the principle," he writes.

The principle originated in Scandinavia during the 1960s, with primary credit going to Niels Bank-Mikkelsen. A systematic statement was provided by Bengt Nirje in 1969: "The normalization principle means making available to all mentally retarded people patterns of life and conditions of everyday living, which are as close as possible to the regular circumstances and ways of life of society." Perrin writes, "This principle has major implications regarding the way people with disabilities are viewed and the programs developed for them."

After sharing six common misconceptions about the principle in the article (for example, "Normalization means making people normal,") Perrin concludes that the principle of normalization "...makes no pretense of answering all possible questions,,.. yet understanding and implementation of the principle will provide a good start."


 Normalization Coneepts (Continued)

Copies of this ~rticle may be obtained from the State Developmental Disabilities Program Office, 201 Capital Square Bldg., St. Paul, Minn. 55101. Tel. [phone].

EDUCATIONAL TY SERIES PREMIERS WITH SEN. LOWELL WEICKER

The National Association of Developmental Disabilities Councils (NADDC) has initiated a public education program series, starting with a 20-minute videotape of Sen. Lowell Weicker, Conn., chairman of the Senate Subcommittee on the Handicapped. Sen. Weicker discusses the reauthorization of the Developmental Disabilities Act, and the Education for All Handicapped Children Act. He also explains the purposes behind deregulation attempts and addresses how citizens can have an impact on the political process and the budget. He gives powerful arguments, rooted in American tradition, for a continued federal commitment to people with disabilities.

Tapes are available for rental for $25 from: NADDC, 1234 Massachusetts Av. NW., Suite 203, Washington, D.C. 20005.

NEUROFIBROMATOSIS GROUP SEEKS FEDERAL COMMISSION

A bill to create a national commission on neurofibromatosis has been introduced in both houses of Congress (H.R. 6751 and S. 2901). The commission would:

- Direct limited resources toward their most effective, comprehensive use;

- Promote patient education;

- Heighten professional awareness;

- Address needs for prevention, treatment and research; and

- Stimulate action.

Neurofibromatosis is considered one of the most common serious neurological genetic disorders. One in 3,000 people have this progressive disorder of tumors forming on nerves anywhere in the body at any time. These tumors can cause dysfunction of many organs, deformity of limbs, deafness,

Neurofibromatosis (Continued)

blindness, disfigurement and early death. Learning disabilities, epilepsy, mental retardation and cancer are frequently linked to neurofibromatosis.

For further information, contact: Lynne Pilgrim, president, Neurofibromatosis Association, 1114 Title Insurance Blvd,, 400 2nd Av. S., Minneapolis, Minn. 55401. Tel. [phone] or 474-1008.

RESPITE CARE PROGRAM BEGINS IN NORTHWEST MINNESOTA

REM-Roseau, a licensed residential facility serving residents from 3 to 25 years old is offering respite care to northwest Minnesota families in need of short-term placements for a developmentally disabled family member for reasons of relief, vacation or emergency.

For more information, contact: Larry Clausen, program director, REM-Roseau, Inc 208 2nd Av. NE, Roseau, Minn. 56751. Tel. [phone].

COMMUNITY INTEGRATION GAME AVAILABLE

A new educational board game designed to teach handicapped persons, advocates, students and professionals about involvement in community life for handicapped individuals is now available. The game teaches how to overcome barriers to participation and how to analyze issues.

For information, including cost, contact: Leisurability Publications, Inc. Box 36, Postal Station A, Islington, Ontario, Can. M9A 4X1.

PROPOSED DEVELOPMENTAL DISABILITIES REGULATIONS EXPECTED SOON

According to Jean Elder, federal commissioner on developmental disabilities, it is the intention of the administration t have final regulations for the Developmental Disabilities Act by Nov. 30, 1982. This means that publication of proposed regulations (requiring a comment period of 30 days) can be expected at any time.
 ~ALL FOR PAPERS

The Institute for Child and Family Studies, at Texas Tech University, Lubbock, Tex., is preparing "Research in Action II," a conference scheduled for Feb. 9-11, 1983. Two-page proposals are being requested by Nov. 1. If accepted, a five-page report will be requested for possible presentation and inclusion in the conference proceedings publication. Focus may be on research or activities relating to young children (both handicapped and nonhandicapped) and their families.

For more information, write: Jamie Tucker, Institute for Child and Family Studies, Texas Tech University, P.O. Box 4170, Lubbock, Tex. 79409.

FUTURE EVENTS

"The Disabled: To Kill or Care?" is a seminar to explore ethical and legal issues regarding eugenic abortion,

nfanticide and euthanasia. It is to be ,eld at the Hennepin County Government Center in Minneapolis on Nov. 6. Contact: Sharon Hardy, Human Life Alliance of Minnesota, 2400 Rhode Island Av. N., Golden Valley, Minn. 55422. Tel. [phone].

FACT SHEET ON SUPPLEMENTAL SECURITY INCOME APPEAL PROCESS AVAILABLE

A fact sheet has been prepared by the Legal Aid Society of Minneapolis, entitled ''Have Your SSI Benefits seen Reduced or Terminated? Or .Your Application Denied?"

The fact sheet informs people of their right to appeal decisions made by the Social Security Administration that affect their eligibility to receive Supplemental Security Income (SSI) and/or Social Security Disability Income.

Due to an increased number of reviews and stricter interpretations of disability requirements, many persons whose disability status may be affected should be encouraged

o appeal.

For more information, contact: Community Legal Education Program, Legal Aid Society of Minneapolis, 2507 Fremont Av. N., Minneapolis, Minn. 55411. Tel. [phone].

HUMAN SEXUALITY TRAINI~G OFFERED

Staff training sessions are being offered by the education and training department of Planned Parenthood of Minnesota. Topics about human sexuality, such as premenstrual syndro~e, sexually transmitted diseases, or other topics can be ;pecially designed and scheduled to meet staff needs and interests. On-site training can be-provided at an affordable price.

For more information, contact: Planned Parenthood of Minnesota, Education and Training Dept., 1965 Ford Pkwy., St. Paul, Minn. 55116. [phone].

PUBLICATIONS

Kaleidoscope: National Literary/Art Magazine for Disabled is published twice yearly as a special project funded by the National Committee on Arts for the Handicapped, an affiliate of the John F. Kennedy Center for the Performing Arts. The periodical provides a means of artistic expression for disabled writers and artists throughout the country. It also informs the general public about the importance and benefits of arts programs for persons who are disabled. Single copies can be purchased for $2, plus 75ó postage.

For more information, contact: Carson Heiner, Jr., Editor, Kaleidoscope, 318 Water St., Akron, Ohio 44308.

Planninq Your Job Search: Making the Right Moves. Diane K. Aves and Debra Anderson, Sister Kenny Institute-Abbott-Northwestern Hospitals, 1982. This is a practical, straightforward guide for acquiring effective job-seeking skills. It is designed for job applicants who have never worked, or are returning to work after a period of unemployment. The manual, used with an instructor's guide, is recommended for classroom instruction, vocational counselors, placement specialists, social service departments and job-seekers.

Contact: Research and Education Dept, Publications--A/V Office #323, 800 E. 28th St., Minneapolis, Minn. 55407. Tel. [phone].
 1

YEARNING FOR LEARNING

The state Developmental Disabilities Program Office has acquired several education, training and resource materials. They may be borrowed from each of the regional Developmental Disabilities offices and from the state program office in St. Paul. Each month, this section of DD Information Exchanee highlights selections from these resources to provide information to potential buyers. The following selections are available from DD Regional Offices.

Materials Lists The Assoc~at ~ icapped (TASH), 1981. This is a comprehensive listing of general resources, materials produced by TASH and publications of interest to parents of severely handicapped children. The lists are categorized under various headings: for example, communitybased services, curricula, early childhood, journals, self-help skills and vocational training.

Metropolitan Council DD Program 300 Metro Square Building, 7th ~ Robert Sts. St. Paul, MN 5510i

IF UNDELIVERABLE, PLEASE RETURN TO SENDER

Locating, Recruiting and Hiring the Disabled, Ram ~ , 1981. Personnel administrators have learned that two specific activities contribute most to the success of any affirmative action program:

- Awareness of training for management and employees; and

- Effective outreach into the community for recruitment of qualified candidates.

This book examines the reasons for the current shortage in the supply of qualified disabled candidates and offers innovative approaches to affirmative action. Over 500 sources of information, including referral agencies and media lists, are provided.

BULK RATE U.S. Postage PAID Permit No. 7029 St. Paul, MN

sr ~ MNL ~ SA8LPRO
 ~- - I r, ~ INFORMATION bL~ EXCHANGE

5.~. s ~/ir 7`VI~ ~ ~ rti"

Published monthly by the Developmental Disabilities Program of the Metropolitan Health Planning Board

hletropolitan Council 300 Metro Square Building St. Paul, Minnesota 55101 [oni Lippert: 2916364 Tom Chapel: 291-6357

METRO DD PROGRAM NOTES

DD Program Requests Curriculum Materials

The Metropolitan Developmental Disabilities program maintains a DD curriculum library. The materials can used by Metropolitan Area staff people with responsibility for providing or developing programs for developmentally disabled persons. There are also books on measuring performance in human services and on management by objective.

The library also includes a folder of promotional literature about new curriculum publications for users to review. You must check out library materials in person between 8:30 a.m. and 5 p.m. The DD program does not mail this material.

Readers may have used a curriculum publication helpful for residential, day or vocational training programs, or one which may be recommended for parents or foster care providers in managing their problems as care-givers. We invite those

readers to notify our office so that we may consider purchasing it for the library.

Send a written description of the publication or material that includes the title, publisher and address, price and brief summary of contents, and the reason you feel it would be useful to other readers. Please include your name, address and telephone number. Mail this information to Toni Lippert, DD Program, 300 Metro Square Bldg., St. Paul, Minn. 55101.

Vol. 7. No. 11 Nov. 1982

Po1icy Analysis Series No. 11 Ready

A new policy paper, No. 11 in the Policy Analysis Series: An Analysis of Minnesota Property Values of Community Intermediate Care Facilities for Mentally Retarded (ICFs-MR) is now available. The paper was prepared by Dr. Colleen Wieck be of the Minnesota Developmental Disabilities Program program. It may be obtained at no charge from the Metro Developmental Disabilities Office, 300 Metro Square Bldg., St. Paul, Minn. 55101. Tel. [phone].

BOOKS, PUBLICATIONS

--The 1982 edition of The Green Pages REHAB SOURCE800K is a comprehensive source directory of products and services available to people who work with physically disabled persons in work, school, social or rehabilitation environments. An alphabetical list of products and services is included in the book plus an index of products and services for general areas of use. The directory costs $25 plus $2 for postage and handling. It is available from: Green Pages Rehab Sourcebook, P.O. Box 158S, Winter Park, Fla. 32790.

--The publication Street Wheeling offers instruction and suggestions for persons who use electric wheelchairs. The safe wheeling techniques discussed in the manual will help in all aspects of outdoor wheeling and will provide individuals with greater mobility and independence.

The cost is $4.25, which includes shipping and handling. Mail orders to: Metro Center for Independent Living, 1728 University Av., St. Paul, Minn. 55104.
 Books, Publications (Continued)

--The second edition of the Educational Resource Catalog has been published by the National Technical Institute for the Deaf at Rochester Institute of Technology. The catalog provides professionals serving deaf, hearing-impaired or handicapped people with a resource for locating information and research data related to deafness. It also offers videotapes on career preparation in the technical business fields, engineering, science, photography, art and printing, communication development techniques, and materials in speech and hearing.

Information on cost is available from the Rochester Institute of Technology, National Technical Institute for the Deaf, Public Information Office, Room 12220, P.O. Box 9887, Rochester, N.Y. 14623.

--A new publications and materials catalog is available at no charge from the Ohio State University Nisonger Center. Included are materials developed for professionals, paraprofessionals, advocates and parents interested in mental retardation and developmental disabilities. Many of the publications are appropriate for staff training and development. To request a catalog, contact: Publications, The Ohio State University Nisonger Center, Room 434 McCampbell Hall, 1580 Cannon Drive, Columbus, Ohio 43210.

--An Update on the Medicaid Home and Communi tY Care Waiver Authoritv is the

latest report on community care waivers permitted under Title XIX, as amended in the Omnibus Budget Reconciliation Act of 1981. The update provides: information n the status of 36 waiver requests ~bmitted as of June 15, 1982; a detailed nalysis of contents of five approved state wa er programs, a report on a state-by-,/ate survey of other state plans; specific procedures used by the Health Care Financing Administration (HCFA) in reviewing state waiver requests; and a discussion of key issues arising out of waiver use and how the HCFA is addressing the issues.

Books, Publications (Continued)

Order the report from the National Association of State Mental Retardation Program Directors, Inc., 113 Oronoco St., Alexandria, Ya. 22314. The cost is $10. All orders under $20 must be prepaid.

--Ten bulletins have been developed and tested by the Cooperative Extension Service of the U.S. Department of Agriculture. They are:

-An Extension Worker's Guide to Serving the Handicapped; -Cooperative Extension Projects for the Handicapped: An Administrative and Organizational Manual; -An Overview of Handicapping Conditions; -Involving the Handicapped in 4H; -Eliminating Architectural Barriers in the Community; -Organizing Parents of the Handicapped; -A Look at Some Myths Regarding Handicapped Individuals; -Laws and the Handicapped; -4H for the Handicapped in Institutions; and -4H for the Handicapped Activities Handbook.

The bulletins were developed to help extension service personnel and others to develop a better understanding of handicapped people and their special needs. They are intended to provide assistance in locating service organizations on behalf of handicapped persons and to develop 4H programs that will accommodate people with various handicapping conditions. Bulletins are available at no cost from: Yonda Douglass, Exceptional Child Center, Utah State University, Logan, Utah, 84322. Te1. [phone].
 SERV I CES

Accessible Housing Referrals Available

The Metropolitan Center for Independent Living has a list of apartment complexes in the SevenCounty Metropolitan Area that are wheelchair-accessible. They can also assist you if you wish to buy or sell a wheelchair-accessible house.

To obtain a list, or for more information, call [phone] or (612 646-6048 (TTY).

Computers for Handicapped People

.

People interested in personal computer systems for persons with disabilities can join an organization whose purpose is to search out, evaluate and share information about these systems. The Committee on Personal Computers and the Handicapped (COPH-2) includes disabled and non-disabled people.

Additional information is available from COPH-2, 2030 Irving Park Rd., Chicago, I11, 60618.

MISCELLANEOUS

New Mainstreaminq Pr wram

-The American Federation of Teachers, (AFT) has established a program to develop and disseminate resources designed to assist regular classroom teachers in meeting the needs of handicapped students who are mainstreamed. The program, t.AFT Teachers' Network for Education of the Handicapped," receives funding from Special Education Programs of the U.S. Department of Education. It provides in-service training to regular teachers and has published a series of pamphlets that give practical information to teachers who work with handicapped children. The following pamphlets are available:

Mainstreaming Program (Continued)

-The Hearing-Impaired Child in the Regular Class (#442); -The Child with Cerebral Palsy in the Regular Class (#444)i -The Slow Learner and Retarded Child in the Regular Class (#446); -The Visually Handicapped Child in the Regular Class (#448); -Dyslexia and Severe Reading Disability (#440); and -What are Learning Disabilities? (#438).

Each pamphlet includes an overview of the disability, instructional techniques to use in the classroom and a list of reference materials and organizations to contact for more information. There is a charge of $.35 for single copies and $30 for 100 copies.

To order the pamphlets or to have your name placed on the mailing list to receive a monthly newsletter, write to Carolyn Trice, director, AFT Teachers' Network for Education of the Handicapped, 11 NW., Dupont Circle, Washington, D.C. 20036.

New Address for Special Olympics

Minnesota Special Olympics has moved to a new office, courtesy of Kraus-Anderson, Inc. The new address is 10581 Johnson Av. S., Bloomington, Minn. 55437. The telephone number remains the same - [phone].

Group Home for Mentally Retarded Children to Open

DeMar Children's Home in Coon Rapids is currently under construction and is projected to be completed in January 1983. The home will be a Class B intermediate care facility for 20 mentally retarded children. Class B is a Department of Health designation of a facility that houses residents who cannot exit independently in an emergency.

If interested in potential admission or employment at the home, contact: DeMar Children's Home, 11777 Xeon 81vd., Coon Rapids, Minn. 55433.
 Miscellaneous (Continued)

Information Requested

A candidate for a masters degree in special education at the University of Minnesota is seeking physically impaired students, age 18-20 years, to participate in a self-concept survey.

Interested persons should contact Pam Bloedoorn at [phone] after 5. p.m.

Gift Drive Needs Volunteers

The Association of Retarded Citizens of St. Paul is asking for volunteers to wrap Christmas gifts or deliver them to mentally retarded children and adults residing in Ramsey County. Persons willing to donate a few hours are needed to wrap gifts at the Edgewood Community Center in Moundsview. Others are needed to assist with pick-up and delivery of gifts. Mileage expenses are reimbursed.

For more information on volunteering or contributing gifts, call Pat Schenk at 224-3301 (days) or 646-8673 (evenings).

CONFERENCES, WORKSHOPS

Nov. 5, 6, 7

The tenth annual Down's Syndrome Congress Convention will be held at the Conrad Hilton Hotel in Chicago. For information, contact Down's Syndrome Congress, 1640 W. Roosevelt Rd., Chicago, I11. 60608. Tel. [phone].

Nov. 15

"No Easy Answers" is a conference for persons working with both handicapped and nonhandicapped adolescents. It is sponsored by the Minnesota Program for Yictims of Sexual Assault and is planned in cooperation with the Illusion Theatre in Minneapolis. The program schedule includes workshops on adolescent rape victims, sex offenders and incest victims. The conference will be held at the Holiday Inn, 1313 Nicollet Av., Minneapolis.- The cost is $18.

Conferences, Workshops (Continued)

For more information, contact Minnesota Program for Yictims of Sexual Assault, 430 Metro Square Bldg., St. Paul, Minn. 55101. Tel. [phone].

Nov. 19

NAbility/Disability Seminar," sponsored by the Sister Kenny Institute, will provide information about hiring and employment of disabled workers. Certificates of attendance for five contact hours will be awarded upon completion of the program. For more information, contact Helen Paul, seminar coordinator at [phone].

Nov. 20

The annual meeting of the Minnesota Epilepsy League (MEL) will be held at the Lutheran Brotherhood Building, 625 4th Av. S. in Minneapolis, starting at 8:30 a.m. If motel accommodations are needed over the weekend, the Airport #2 Holiday Inn in Bloomington has reduced its rates for MEL members for that weekend. The daily charge of single, double or fourperson rooms is $29.87 plus tax.

Registration costs $7.50 for members and S8 for nonmembers. For more information, contact Tanley O'Hara, Minnesota Epilepsy League Inc., Room 242, Minneapolis, Minn. 55404.

Dec. 1, 2

8'Sexuality and the Mentally Handicapped" is a workshop sponsored by Planned Parenthood of Minnesota. It will be held at 1965 Ford Pkwy., St. Paul, from 9:30 a.m. to 4 p.m. both days.

For more information, call (612) 6982401.
 I 1x ~ OlClili\TlON E~XC1lA NGE STATE SUPPLEMENT Developmental D'sabilities Program / Dep'. of Energy. Planning and Development

["~;t (; <0' Caoitol Square Bldg.

.S50 Cedar Street '` 1. P;~1 M',,'`esola 55101 Roger Strand - fil2/296-4018

November 1982

FOUR AGENCIES RECEIVE MINNESOTA "LEADING EDGE" AWARD

In a first attempt to recognize outstanding or innovative services, the Minnesota Association for the Severely Handicapped (MNASH) and the state Developmental Disabilities Program Office jointly selected and awarded four "Leading Edge" agencies. Awards were anounced and presented at the MNASH annual conference held recently in St. Cloud.

Out of 35 nominations received, four agencies were selected:

-Ability Building Center, Inc., Rochester, which successfully established work-training stations within local businesses, referred to as "Community Sheltered Employment" programs;

-Dakota's Children Inc., West St. Paul, which developed the "Pyramid Skills Assessment" instrument;

-Nekton, Inc., St. Paul, which has expanded services to provide "In-hoary' Services" to parents who are developmentally disabled and their children; and

-Therapeutic Child Development Program of the St. Paul Rehabilitation Center, which created an approach for conducting comprehensive evaluations within a preschool classroom.

Announcing the awards, Dr. Colleen Wieck, executive director of the DD program office said, "I hope our Leading Edge award will encourage creative problemsolving and give recognition to those who eve been innovative in serving people with severe handicaps."

PROVISIONAL 1980 CENSUS DATA ON DISABILITIES AVAILABL-E

The Census Bureau has released 1980 Census data on work disability and transportation limitations. The disability questions were part of a form sent to 20 percent of the population. A computer tape was recently received by the state demographer's office that provided a sample of eight percent of all sample questionnaires. Readers are cautioned that the estimates are provisional and may differ from those based on the full sample.

Minnesota Census estimates for noninstitutionalized persons aged 16 to 64 with a work disability was 180,577. Of these, an estimated 49 percent (88,772) were not in the labor force and of these, in turn, 75 percent (66,734) were prevented from working because of their disability. The total estimate of nondisabled w bers in the labor force was 2,383,264. w~,s

The estimate for persons with health conditions that make it difficult or impossible to use public transportation are as follows: 25,423 for noninstitutionalized persons aged 16 to 64; and 44,163 for noninstitutionalized persons age 65 and over.

The report, provis~onal Estimates of

Characteristicsf r~6iJb---~~~red from the Superintendent of Documents, U.S. Government Printing Office, Washington, D.C. 20402. The price is $5.50; the stock number is 003-02403626-6.

OVERDUE BOOKS

Books may be borrowed for three weeks from the state developmental disabilities library. Borrowers are urged to return the books promptly because many people are waiting for them.
 STATE DD COUNCIL SEEKS NEW MEMBERS

The Governor's office is accepting applicitions to fill anticipated vacancies on the Governor's Planning Council on Developmental Disabilities. Three-year appointments will begin Jan. 1, lg83.

People who have a developmental disability are encouraged to apply. Other eligible applicants include parents or guardians (especially a parent whose child resides in a state hospital), service providers and people who have a special interest in developmental disabilities.

Ask for a form, "Application for Service in State Agency," from the Governor's office, Room 130, Capitol Building, St. Paul, Minn. 55155. Tel [phone].

PROFESSIONAL CERTIFICATION AYAILABLE IN MENTAL RETARDATION

Voluntary certification based on education, training and experience in the field of mental retardation is made possible through the American Qualified Mental Retardation Professionals Association (AQMRPA). People can qualify for certification based on two-year degrees plus training and experience. Fees are $52 for the first year and S35 each year thereafter. Annual renewal requires evidence of completion of at least 30 hours of training or inservice. More information can be obtained from Jerry Walsh, Box 393, Victoria, Minn. 55386. Tel. [phone].

AUGSBURG COLLEGE OFFERS ACCESSIBILITY TO STUDENTS WITH HANDICAPS

"Having an accessible campus is a special way that Augsburg College in Minneapolis serves responsibly within the community," said John Hielmeland, director of admissions. He added, "Accessibility means more than the removal of physical barriers. It also includes the adaptation of programs and improving attitudes."

Augsburg Colleae (Continued)

Augsburg is a private, four-year, liberal arts college that has been working toward its accessiblity goals since the mid-1970s. Through a student-run service called Cooperative Services for Handicapped Students, volunteers assist disabled students in achieving their academic and personal goals.

For more information, contact: John Hjelmeland, Office of Admissions, Augsburg College, 731 21st Av. S., Minneapolis, Minn. 55454. Tel. [phone].

LEAGUE OF DISABLED VOTERS SEEKS NEW

"The Minnesota League of Disabled Voters (MLDY) needs more members to keep it moving toward its goals of becoming a viable, educated and integrated political force," said Mary Ann Elefson, president of the league. The mission of MLDV is to develop a nonpartisan educational group to increase the participation of disabled persons in the political process. For information on becoming a league member, call or write: MLDV, 1821 University Av., Suite 163N, St. Paul, Minn. 55104. Tel. [phone].

PARENTS SHOULD CLARIFY PROBLEMS BEFORE CRITICIZING SCHOOL

In the August issue of The Exceptional Parent, Charles Heneley, professor at Michigan State University in Lansing, and Harold Spicknall of the Ingham School District, present a step-bystep guide to dealing with educational bureaucracy. The article, "Solving School-Related Problems," is intended for parents of children with disabilities, but it contains suggestions of value to any parent.

The authors emphasize a parent's first priority must be to "verify and clarify the situation. The goal is to understand the problem better, not to attack the school." Although the authors urge parents to settle matters informally whenever they can, they note that parents have the legal right to question any
 Schools (Continued)

.ecision made about their child. Parents also need to learn about the structure of the school system and to know their legal rights. The article contains suggestions for informal problem resolution and procedures to be followed for more formal action.

Copies of the article may be obtained from: The ExcePtiona1 Parent. 296 80ylston Street, 3rd floor, Boston, Mass. 02116.

PUBLICATIONS

--Programming for Emotionally Disturbed Students in Rural Public ~chools: Conferen _ ings, Upper Midwest Regional Center, University of Minnesota, 1982. This publication contains highlights from a conference held in Minneapolis on Nov. 4, 1981. "Rural schools face unique problems when planning for improved educational pportunities for students with serious ~ehavioral or emotional disorders," the report states. Several major issues are explored: formal eligibility and labeling, funding, transportation, public versus private, and day school versus residential planning. The document describes several service options: selfcontained special classes, resource rooms, consultant teachers, management assistants and regular mainstream teachers. These alternative options provide a useful framework for adaptation to rural and small town schools. Training resources for the paraprofessional are also included. To obtain copies of the report, costing $1.50, contact: Upper Midwest Regional Resource Center, 1st floor, 2037 University Av. SE., Minneapolis, Minn. 55414.

Publications (Continued)

--The University of Kansas has published two self-advocacy guides:

-How to Work with the System...and

-Evaluation: Every_Person's Right.

Both books are written especially for people with substantial disabilities. The books have understandable language, large type and illustrations. Price: $2 each. Mail to Kansas University Affiliated Facility, 348 Haworth, Lawrence, Kan. 66045.

EVENTS

Nov. 4, 5

"What's the Point of Evaluation?" will be the theme of the fall conference of the Minnesota Association for Continuing Adult Education (MACAE). This organization represents a broad spectrum of adult educators seeking new avenues for professional improvement. The conference will be held at the Earle Brown Continuing Education Center, St. Paul. Contact MACAE, Metropolitan State University, c/o Joan Byrne, 121 Metro Square Bldg., 7th and Robert Sts., St. Paul, Minn. 55101. Tel. [phone].

Nov. 15-19

The Wisconsin Coalition for advocacy is sponsoring an intensive workshop on assessing service quality from a normalization perspective using a program analysis of service systems (PASS) technique. John O'Brien of Responsive Syste~s Associates, Atlanta, Ga. will conduct the workshop at the Holiday Inn in Waukesha, Wisconsin. Tuition is $210. Contact: Wisconsin Coalition Advocacy, 2 W. Mifflin St., Room 200, Madison Wis. 53703. Tel. [phone]
 YEARNING FOR LEARNING

The state Developmental Disabilities Program Office has acquired several education, training and resource materials. Each month, this section of DD Information Exchange highlights selections from these resources to provide information to potential buyers. The following selections are available from

the state DD program office only. -

Advocacy in Residential Proqrams C. D. Rude and P. A. Aiken,tEds.l, Texas Tech. University, 1982. This book presents information that applies specifically to residential programs for persons with developmental disabilities. It is intended primarily to be used for training of advocates. It provides knowledge about different types, aims and procedures of residential programs and about relevant rights and standards. Also addressed are the various skills needed by an advocate. Chapters are independent and may be used selectively.

Metropolitan Council DD Program 300 Metro Square Building, 7th & Robert Sts., St. Paul, MN 55101

~ .

IF UNDEL-IVERABLE, PLEASE RETURN TO SENDER

Developing IndiYidualized Education Programs for Severely HandicaPped Children and Youth. N.G. Harring (Ed.) Bureau of Education for the Handicapped. This is a product of a topical conference held in Washington, D.C., Aug. 9-11,.1977. The conference was held in response to the mandates set forth in the Education for All Handicapped Children Act of 1975 (P.L. 94142). A number of experts share their optimistic views toward improved educational opportunities for children with severe handicaps. Topics covered are assessment, evaluation, management and interdisciplinary procedures. Most important, however, are detailed considerations for developing comprehensive individualized education programs.

BULK RATE U.S. Postage PAID Permit No. 7029 St. Paul, MN
 F~W r,

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INFORMATION EXCHANGE

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Published monthly by the Developmental Disabilities Program of the Metropolitan Health Planning Board

Metropolitan Council 300 Metro Squ~re Building St. Paul, Minnesota 55101 Toni Lippert: 2916364 Tom Chapel: 291~357

METRO DD PROGRAM NOTES

Organization and Management Traininq Offered

The State Developmental Disabilities (DD) Program Office will offer eight training sessions on organization and management in early 1983, The state DD office has used McKnight Foundation funds to contract with the Government Training Service to provide the workshops in several regions of Minnesota. Topics are as follows: Governance, or overall administration, Organizational mission, Personnel management, Financial manag~ment and record-keeping, Legal obligations and reporting requirements, - Organizational planning, Community involvement and Consumer access to programs.

The Metropolitan Developmental Disabilities program will assist in the training series presented in the Metropolitan Area.

The training sessions are designed for administrative staff and board members of residential facilities, development achievement centers, and sheltered workshops serving persons who are developmentally disabled.

Kay Zwernik, training director, said that staff of agencies enrolling in all eight session will receive: an assessment manual for the agency board and staff to use in evaluating strengths and weaknesses of their agency, priority for workshop attendance, reduced rates and on-site consultation for specific needs of an individual agency. Agencies may enroll for selected workshops but they will be accepted on a space-available basis. They will receive only workshop materials, not

Vol. 7. No. 12 December 1982

Training (Continued)

the assessment manual or follow-up consultation. Attendance will be limited to 30 participants.

A DAC director who attended a session on personnel management said it addressed many of her agency's needs. She found the consultant competent, the cost reasonable and she recommended the session as worth the time and effort. A residential facility director commented that his organization gained considerably from participation. The workshop impressed him and helped him realize the agency's middle management needed more information and guidelines to do an adequate job.

The following organizations participated in the training development: The Minnesota Oevelopmental Achievement Center Association, the Minnesota Association of Rehabilitation Facilities, the Association of Residences for the Retarded in Minnesota, state Department of Public Welfare and the Association for Retarded Citizens. For further information, contact: Kay Zwernik, training specialist, Developmental Disabilities Training Project, 202 Minnesota Bldg., 46 E. 4th St., St. Paul, M;nn. 55101. Tel. [phone].

Study Says Group Homes Don't Reduce Property Values

Developers of intermediate care facilities for mentally retarded persons are encouraged to obtain a copy of An Analysis of Minnesota Property Values of Community Intermediate Care Facilities for Mentally Retarded (ICFs-MR). The study examines the impact of community residential
 Group Homes (Continued)

facilities for mentally retarded people on neighborhood property values. It selects a statewide sample of t~irty-four neighborhoods with group homes. The study compares the average property value of these neighborhoods with property values in similar neighborhoods without group homes. The study found no adverse impact. Although several studies throughout the country have reached the same conclusion, the policy paper is the first examination of the situation in Minnesota. The study should prove helpful to developers of group homes, who may encounter questions about the effect of group homes on property values.

Metro DO research analyst Tom Chapel assisted in the analysis and final editing of the data. Copies are free and may be obtained from the Metro Region Developmental Oisabilities Program, 300 Metro Square Bldg., St. Paul, Minn. 55101. Tel. [phone].

Additions to Resource Library

A list of recent additions to the DO Resource Library is attached to this newsletter. This material may be used only in the Metropolitan Council library.

_

The State of Minnesota requires that recipients of our publications be requested to notify us if they no longer wish to receive our publications. Tel. [phone].

EMPLOYMENT OPPORTUNITIES ;

OD Information Exchange encourages

. _ .

resuers to seno emp oyment opportun~ty information for publication in this newsletter. We are not able to include "employment wanted" item~s, however.

Employment Opportunities (Continued)

Educational Researcher

Associate program director for research, University of Minnesota Consortium Institute for Eduation of Severely Handicapped Learners needed for a fulltime 12-month position beginning Jan. 1, 1983.

Responsibilities include: coordination of all research and evaluation activities of the institute focused on transition to least restrictive environments; consultation research design and analysis; collaboration on specific studies; supervision and training of project staff, including behavioral observers; and maintenance of subject data files. Minimum qualifications: Ph.O. in education or social sciences with demonstrated analysis and observational research methodology skills; experience in evaluation research; ability to work with public school and agency personnel; and successful publications record in referred journals. Position federally funded toSeptember 1987, up to S28,000 to start with annual increases. To apply, send letter of application, vita and three letters of reference to: Luanna Yoeltz, Department of Educational Psychology, 259 Burton Hall, 178 SE. Pillsbury Dr., University of Minnesota, Minneapolis, Minn. 55455. Deadline for application is Dec. 10, 1982.

Part-time Program Coordinator

Minnesota Foundation for Better Hearing and Speech seeks a half-time program coordinator. Responsibilities include developing, implementing and evaluating and services for parent and ~ _ _. networks. Minimum qualifications: BA degree in education of the deaf, counseling the deaf or comparable area.

programs educator

For more information, or to obtain an application, call [phone] (Voice/TTY). Deadline for application is Jan. 3, 1983.
 Employment Opportunities (Continued)

Executive Director

The Minnesota Foundation for Better Hearing and Speech seeks an executive director. Responsibilities include organization and implementation of all policies and programs, fund raising, supervision of a six-person staff and administration of a $190,000 budget. 3A degree in health, rehabilitation human services or-comparable area required. Master's degree in public administration or related area, or five years of successful administrative experience.

Resumes should be sent to Minnesota Foundation for Better Hearing and Speech, 508 Bremer Bldg., 7th and Robert Sts., St. Paul, Minn. 55101. Tel. (b12) 222-6866 (Voice or TTY). Application deadline is Jan. 3, 1983.

NEW PUBLICATIONS

In the November issue of DO Information Exchange. we said that 10 bulletins on 4H programs were available "free of charge" from Utah State University. This information came from a Department of Education publication. However, we now find that there is a $3 charge for the bulletins. The set of bulletins may be be borrowed from the developmental disabilities curriculum library.

--"The Deaf Services Placement Guide" is a catalog of licensed development achievement centers and residential facilities in the Seven-County Metropolitan Area. It should be useful in locating services for hearing-impaired people. Contact David Lubinski with comments, questions or informatisn about new or unlisted facilities. The catalog was produced by the Department of Public Welfare, and is available free of charge from: Deaf Services, Dept. of Public Welfare, 4th floor, Centennial Office Bldg., St. Paul, Minn. 55155. Tel. [phone] (TDD) or [phone] (Voice).

Publications (Continued)

-- The Fourth Annual Report to Congress of the Implementation of Public Law Y4-142: The Education of all Handicapped Children Act reports on the number of handicapped children in public schools throughout the country. Copies or the publication are available from: ERIC Documentation Reproduction Service, P.O. Box 190, Arlington, Va. 22210. Price, including postage, is $13.60.

~ ] ~

and Managing Nonprofit Orqanizations lists organizations and publications that can help raise funds for non profit charitable enterprises. Single copies are free from: Ann Heywood, The Edna McConnell Clark Foundation, 250 Park Av., New York, NY 10017.

-- The Disabled Child and Child Abuse Donald F. Kline, Ph.D., professor and head of the department of special education, Utah State University. Since there isevidence that the handicaps of disabled children may increase their susceptibility to child abuse, the National Committee for Prevention of Child Abuse (NCPCA) has produced an information packet that includes guidance for parents in locating sources of information and assistance in raising a handicapped child. The information packet is free and may be obtained from: National Committee for Prevention of Child Abuse, 332 S. Michigan Av., Suite 1250, Chicago, Ill. 60604-4357.

SERV ICES

Interpreters available

Professional oral interpreters are available for hearing-impaired persons who rely on lipreading rather than sign language as their primary means of communication. The interpreters are trained in receptive and expressive oral communication and are certified by the Registry of Interpreters for the Deaf.
 Interpreters (Continued)

For mor~ ~formation, contact: Patricia Wilder, ~ ector, Interpreter Referral Center, M`nnesota Foundation for Better Hearing and Speech, 216 Bremer Bldg., Suite 518, 7th and Robert Sts., St. Paul, Minn. 55101. Tel. [phone].

Consulting Team Offers Assistance

A consulting team developed by the Voluntary Action Center of St. Paul is available to assist directors of volunteer services in managing volunteer programs. The team offers assistance in planning programs, developing Job descriptions, keeping records and maintaining volunteer and staff relationships. The area served includes Ramsey, western Washington and northern Dakota counties.

For more details about the service, or information about costs, contact: Roxanne Hart at (612) 227-3Y38.

Membership invited

The National Association of Oevelopmental Disabilities Councils (NADDC) invites disabled people, their parents, interested individuals and organizations to become members of NADDC. Benefits of membership include: information and referral services; education and coordinative services; studies on developmental disabilities; information on Job opportunities; and participation at national conferences. Members will also receive the quarterly newsletter FORUM and discount auto rental club membership.

For further details, contact: Susan AmesZierman, executive director, NAODC, 1234 Massachusetts Av. NW., Washington, DC. 20005.

DSO Receives Respite Care Grant

The Developmental Services Organizat1on, Inc. (DSO) is the recipient of a thirdyear respite care grant from the state developmental disabilities program. The $27,000 grant will enable DSO to continue developing a respite care service system for the Seven-County Metropolitan Area.

OSO (Continued)

The system includes an information and referral service for both respite [shortterm) care and residential (long-term) care. Respite care services are provided both in and out of the home and arrangements for the handicapped person may be made for a specific period of time or on an intermittent basis. Residential care is provided in small group homes or other residential facilities. DSO provides comprehensive respite and residential placement information that formerly was unavailable from a single source.

For more information, call DSO at [phone].

FOR YOUR INFORMATION

Yolunteers Needed

Volunteers are needed to help handicapped and elderly people and people with low incomes to prepare their income tax returns. Volunteers attend a training course in Oecember or January, then work two to four hours a week from Feb. 1 to April 15.

For more information, contact: Barb Gustafson, Volunteer Services Coordinator, State of Minnesota Department of Revenue, Centennial Office Bldg., St. Paul, Minn. 55155. Tel. [phone].

Other State Programs

State schools in Mississippi and Texas have recently established residental and rehabilitation programs for mentally retarded Juvenile offenders. 80th programs feature graduated levels or a continuum of services depending on the intensity of the aggressive or disruptive behaviors exhibited by the participants. If you would like more information on these programs, write to: Jim A. Stovall, Coordinator of Main Street, Ellisville State School, Ellisville, Miss. 39437 and Joe P. Mirisciotti, Director of Community Services, Fort Worth State School, 2910 S.E. Loop 82, Fort Worth, Tex. 76140.
 Additions to DO Resource Library December 1982 - (Hours: 8:30 - 5 p.m. For use in library only)

BIBLIOGRAPHY

Human Services for Handicapped Persons. Project Share, June 1981.

A listing of community services for handicapped children and adults, issues of special interest to human service planners and methods of removing barriers to physically disabled individuals.

DE I NSTITUTI ONAL IZATI ON

Group Homes for the Mentally Retarded: An Investigation of Neighborhood Property Impacts. Dr. Julian Wolpert, Princeton University, 1978.

A study made in 1978 for the New York State Office of Mental Retardation and Developmental Disabilities on the impact of group homes in the community.

When I Got the Potatoes. I Ate Them All

-

Anne Fraser Scott, 1982.

An article on group homes for mentally retarded people in the Metro Area, and neighborhood reactions.

MISCELLANEOUS

A Writer's Response to DeveloPmental Disabilities. Developmental Disabilities Planning Office, Jan. 1980

A reference book for people who write about people with developmental disabilities. It includes acronyms often used with reference to developmental disabilities, a glossary and chapter dealing with resources and agencies.

Medicaid Fundinq for th,e Continuum of Care for MR/DD Persons. Wm. C. Copeland, Iver A. Iversen, University of Minnesota, 1980.

A policy memo on the history and reasons for funding continuum of care for mentally retarded persons and fiscal consequences.
 RESIDENTIAL SERVICES

Rural DD Services, Gary Richman, Ronald Neufeld, Ann Ramsbotham, DD/TAS, University of North Carolina.

A report of a study done in West Yirginia designed to determine how many developmentally disabled people living in rural areas need services, and whether or nor these services need to be re-evaluated.

RESPITE CARE

Financinq ResPite Care Services: An Initial Exploration, United Cerebral Palsy Assoc. Feb. 1980.

A paper developed for the Developmental Disabilities Funded Project of National Significance, demonstrating model continua of respite care and parent training services for families of persons with developmental disabilities.

SERVICE DIRECTORY

The Resource Directory. Ann M. Heywood, June 1982.

A reference book for nonprofit organizations that lists publications and organizations that will help them raise funds and manage their programs. It is not a how-to guide; it describes where to get the information and skills to successfully run a project or nonprofit organization.

VOCATIONAL

Minnesota State Plan for Vocational-Technical Education, State of Minnesota,

~epartment of :oucat~on, ~t. ~au`, ~ o~.

A two-component document addressing two major, unique, but related operations regarding the development of vocational-technical education in Minnesota. The plan is comprised of an Annual Program Plan and an Accountability Report.

;

Emp10yment Service ConcePts United Cerebral Palsy Association, New York, 1982.

A selection of program concepts being offered to UCP affiliates and interested rehabilitation personnel as a catalyst and resource to promote activities in employment training and placement of persons with cerebral palsy and related disabilities.
 INFORMATION EXCHANGE

STATE SUPPLEMENT

Developmental DlsabiQties Program 201 Capitol Square Building 560 Cedar Street St. Paul, Minnesoba 55101

Minnesota DepartTnent of Energy, Plannuag and DeYelopment

Roger Strand 612~2964018 Editor

wuste 0, ~ "a ~A~ ~ _~ ;~ ~CI^no~

~_ ~ ~10~~" ~1S C~5

~ UESTS PROPOSALS

In response to the growing number of working mothers entering the labor market who have preschool age chiTdren, the Northwest Area Foundation recently announced that it will consider proposals from clusters of day-care providers for personnel training in child development and early childhood education. Up to S30O, 000 will be made available to eligible applicants from Minnesota, Iowa, North Dakota, South Dakota, Montana, Idaho, Washington and Oregon. The deadline for receipt of proposals is Jan. 2, 1983.

For more information, contact: Judith K. Healey, senior program associate, Northwest Area Foundation, W-975 First National Bank Bldg., St. Paul, Minn 55101. Tel. [phone].

STATE DD COUNCIL SEEKS NEW MEMBERS

The Governor's office is accepting applications to fill anticipated vacancies on the Governor's Planning Council on Developmental Disabilities. Three-year appointments will begin Jan. 1, 1383.

People ~ho have a developmental disability are encouraged to apply. Otner eligible applicants include parents or guardians (especially a parent whose child resides in a state hospital), service providers and people who have a special interest in developmental disabilities.

Ask for the form, "Application for Service in A State Agency," from the Governor's office, Room 130, Capitol Bld~., St. Paul, iiinn. 56155. Tel. (ol2) 2Y6-3391.

December 1982

CONTINUUM OF CARE UNATTAINABLE IN THE 1980S?

"The instablility of most federal human services programs combined with a policy vacuum has created an environment which seriously questions whether a continuum of care is likely in the decade of the 1980s." This was the concluding remark made by E. Clarke Ross, director of the United Cerebral Palsy Associations, Inc., in a paper entitled "Changing Policies and Program Trends in Publicly Financed Services to the Developmentally Disabled." Ross presented his analysis at the annual meeting of the American Academy for Cerebral Palsy and Developmental Medicine held in San Diego in October.

This report provided a crash history course concerning federal involvement in setting policy for and providing services to people with developmental disabilities. It also detailed events and strategies of New Federalism and its effects. This is "must reading" for all concerned. Copies may be obtained from: Developmental 3isabilities Program Office, 201 CaDito1 Square Bldg., St. Paul, Minn. 5~101. Tel . [phone].

INDEPE,NDENT LIVING ASSOCIATION FORMED

A new organization is being formed that ~ill be called Minnesota Association of Independent Living (,dAIL). This statewide group of individuals and agencies will focus attention on improving living opportunities for people with disabilities. For information about membership, contact: Walt Seibert, Metro Center for Independent Living (~ACIL), 1728 University Av., St. ?aul, Minn. oS1 W . Tel. [phone].



 f

ART WORKS SOUGHTT

AUTHOR OUTLINES 20 WAYS TO PREVENT DISABILITIES

Allen G. Crocker, M.D., director of the developmental evaluation clinic at Children's Hospital Medical Center in Boston, Mass., recently listed the 20 most prominent and effective methods for reducing the incidence or severity of developmental disabilities. Since the 1960s, the idea of prevention has grown from a hopeful notion to an exciting reality. Increased knowledge through biomedical and social research has been accompanied by a corresponding growth of awareness that prevention and early intervention benefits the individual, the family and society.

Primary prevention activities designed to eliminate the occurrence of a condition causing handicaps include: rubella immunization, improved prenatal care, special care for the premature infant, genetic counseling and advice regarding alcohol intake during pregnancy.

Secondary prevention activities include early identification and intervention techniques such as screening for phenylketonuri a, gal actosemia and congenital hypothyroidism.

Tertiary prevention activities are specialized support services to children and families with the intent of minimizing long-term disabilities and prevent complications, such as deafness and Down's syndrome. "The ultimate potential for success in prevention efforts will depend on continued research and education of physicians and other professionals," concluded Dr. Crocker.

Reprints of Dr. Crocker's article, "Current Strategies in Prevention of Mental Retardation" (Pediatric Annals 11 (5): 450-457, 1982), may be obtained from the Developmental Disabilities Program Office. Tel. [phone].

Sister Kenny Institute's 20th Annual International Art Show by Disabled Artists will open in Minneapolis on April 21, 1983. The deadline for entries is Feb. 1. This is an opportunity for disabled artists to display and sell their works in a variety of art media. For further information, write: Mary Ann Ellefson, Community Relations and Advocacy Dept., 800 E. 28th St. at Chicago Av., Minneapolis, Minn. 55407.

GUNFLINT TRAIL RESORT OFFERS BARRIERFREE ACCOMODATIONS

The Golden Eagle Lodge on Flour Lake recently announced the completion of two barrier-free cabins designed according to guidelines from the State Council for the Handicapped. The owners, John and Irene Baumann, said they understand that they are the only resort in Minnesota to have barrier-free housekeeping cabins. For more information, contact: Golden Eagle Lodge, GT. Box 27, Grand Marais, Minn. 55604. Tel. [phone].

GIVE THE JOYS OF READING TO THOSE WHO CAN HEAR

"Most people are unaware of our existence," said Joanne Jonson, director of the communication center, State Services for the Blind. Any Minnesota resident who has difficuly reading normal newsprint or turning pages because of physical disabilities may be eligible to receive special library services.

Audio equipment and materials are loaned without charge to help people to "read" (or listen to) the latest newspapers, books ant magazines through methods including Radio Talking Book, special cassette players, phonographs, and remote control units.

"We're eager to help those who miss reading," Jonson continued. "We need your help in locating eligible people." For more information, call: (612) 2967560 or, toll-free, 1 (800) 6529000.
 SLIDE-TAPE PROGRAM HIGHLIGHTS INDEPENDENT LIYING

The Wisconsin Council on Developmental Disabilities has produced a slide-tape program about how people with disabilities can live independently. Entitled At Home in the Community, the production promotes a better way of life for people with disabilities. It illustrates how increased independence can affect self-confidence and personal growth. Copies are available for preview prior to purchase (price, $100, plus shipping charges). Contact: Wisconsin Council on Developmental Disabilities, P.O. Box 7851, Madison, Kis. 53707. Te1. (~08) 266-0979.

PUBLICATIONS

Service Recommendations and Needs Assessment of the Deaf-Blind Population of Minnesota, Department of Public Welfare, July 1982. This report estimates that between 213 and 640 people in Minnesota have both hearing and vision impairments, commonly called "deafblind." While only about 12 percent may be profoundly deaf and totally blind, the remaining 88 percent have some usable vision, hearing or both.

The report points out that, "Historically, the human service system was not structured to serve persons with dual disabilities." Programs designed to serve blind persons are not usually accessible to the deaf person who is blinded and vice versa. Therefore, the report recommends the Department of Putlic Welfare designate one of its existing divisions to be primarily responsible for assuring a continuum of adequate services to deaf-blind adults.

The study makes the following recommendations:

- Initate comprehensive coordination of human services for deaf-blind persons; - Initiate an assistance program available to private vendors (space

Deaf-Blind Study (Continued)

should be reserved in Metropolitan Area residential facilities and developmental achievement centers); - Develop an adequate reporting system for long-range programming, and Designate the Brainerd State Hospital to serve all institutionalized deafblind persons (as opposed to current placement in all seven state hospitals).

Copies of the report may be obtained from Deaf Services Division, Minnesota Department of Public Welfare, Centennial Office Bldg., St. Paul, Minn. 55155. Te1. [phone], TTY [phone].

EVENTS

Dec. 7

"Mental Retardation and the Family: A Workshop Exploring Family System, Coping Strategies and Abuse" will be held from 94:30 p.m. at Planned Parenthood of Minnesota, 1965 Ford Pkwy., St. Paul, Minn. 55116. Fee: $30. Tel. [phone].

Dec. 13

"Materials and Services for the Handicapped," a workshop be to held at Kirby Ballroom, University of Minnesota, Duluth (UMD), will address issues relating to library and educational services. Quest instructor will feature Dr. James L. Thomas, author and lecturer. Fee: S18. Contact: Continuing Education and Extension, Duluth Center, 403 Darland Admin. Bldg., UMD, Duluth, Minn. 55812.
 .'

YEARNING FOR LEARNING

The state Developmental Disabilities Program Office has acquired several education, training and resource materials. Each month, this section of DD Information Exchange highlights selections from these resources to provide information to potential buyers. The following selections may be borrowed from the regional DD offices.

Teaching Ind _iduals with Physical and Multiple Disabilities. J. L. Bigge and P. I0Donnell, Merril1 Publishing Co., 1976. Ideals and commitments have been combined with knowledge and experience of professional educators in this publication, designed essentially for teachers of children and adults with physical and mental handicaps. Its comprehensive coverage include: task analysis, psychosocial aspects, severe communication problems, self care, life experience programming, academics, leisure, work and advocacy.

Metropolitan Council DD Program 300 Metro Square Building, 7th ~ Robert Sts., St. Paul, MN 55101

IF UNDELIVERABLE, PLEASE RETURN TO SENDER

MR. ROGER STRAND STATE PLAN DEV OI SAB PRO 201 CAPI TOL SgUARE BL ST PAUL MN 55101

,oward Independent Livinq. B. Baker, A. J. Brightman, and S. P. Hinshaw, Research Press, 1980. This is the eighth teaching manual in the StePs to Independence series for parents and teachers of children, adolescents and young adults who are mentally retarded. Part one covers self-care and home-care skills. Part two covers information skills, such as reading sight words, using a telephone, telling time and handling money.

BULK RATE U.S. Postage PAID Permit No. 7029 St. Paul, MN

OEL